Comfort with having sexual orientation recorded on official databases among a community and online sample of gay and bisexual men in Aotearoa New Zealand
A. H. Ludlam 1 * , H. Petousis-Harris 1 , B. Arroll 1 , P. J. W. Saxton 21
2
Abstract
Sexual orientation minorities have worse health outcomes than the heterosexual majority. In 2023, Aotearoa New Zealand (NZ) added sexual and gender identity items to the Census, offering actionable data for improving sexual identity and gender identity (SOGI) community health. However, this also raises questions about individuals’ willingness to provide such information to Government and their comfort with data privacy and governance.
Using data from gay, bisexual, and other men who have sex with men (GBM) participants of the Gay Auckland Periodic Sex Survey and Gay Men’s Online Sex Survey 2014 cross-sectional surveys, the study question examined comfort having their sexual orientation recorded in official databases. A logistic regression model was used to identify independent predictors of comfort, including sociodemographic and behavioural variables.
Of 3173 participants who completed the question, 63.1% were comfortable with recording sexual orientation. Adjusted odds ratios showed less comfort among those identifying with an ‘Other’ ethnicity (AOR: 0.64, 95% CI: 0.43–0.96), identifying as bisexual (AOR: 0.45, 95% CI: 0.35–0.56), and those who did not believe their GP to be aware of their sexuality (AOR: 0.32, 95% CI: 0.26–0.40). No sexual behaviours were independently associated with comfort.
The majority of GBM participants reported comfort with having their sexual orientation recorded on official databases, but some are not, and this is patterned by sociodemographic variables. Officials should improve the safety and perceived relevance of sexual orientation data collection efforts to increase their representativeness and utility for sexual minority populations.
Keywords: data collection, disclosure, electronic health record, health disparities, sexual and gender minorities, sexual behaviour, sexual orientation, SOGI data.
References
1 Balsam KF, Beadnell B, Riggs KR. Understanding sexual orientation health disparities in smoking: a population-based analysis. Am J Orthopsychiatry 2012; 82(4): 482-93.
| Crossref | Google Scholar | PubMed |
2 Cochran SD, Mays VM. Physical health complaints among lesbians, gay men, and bisexual and homosexually experienced heterosexual individuals: results from the California quality of life survey. Am J Public Health 2007; 97(11): 2048-55.
| Crossref | Google Scholar | PubMed |
3 Dean L, Meyer IH, Robinson K, et al. Lesbian, gay, bisexual, and transgender health: findings and concerns. J Gay Lesbian Med Assoc 2000; 4(3): 102-51.
| Crossref | Google Scholar |
4 Dilley JA, Simmons KW, Boysun MJ, et al. Demonstrating the importance and feasibility of including sexual orientation in public health surveys: health disparities in the Pacific Northwest. Am J Public Health 2010; 100(3): 460-7.
| Crossref | Google Scholar | PubMed |
5 King M, Semlyen J, Tai SS, et al. A systematic review of mental disorder, suicide, and deliberate self harm in lesbian, gay and bisexual people. BMC Psychiatry 2008; 8(1): 70.
| Crossref | Google Scholar | PubMed |
7 Plöderl M, Tremblay P. Mental health of sexual minorities. A systematic review. Int Rev Psychiatry 2015; 27(5): 367-85.
| Crossref | Google Scholar | PubMed |
8 Bränström R, Hatzenbuehler ML, Pachankis JE, et al. Sexual orientation disparities in preventable disease: a fundamental cause perspective. Am J Public Health 2016; 106(6): 1109-15.
| Crossref | Google Scholar | PubMed |
9 World Health Organization Violence Prevention Unit: Approach, Objectives and Activities, 2022-2026. Geneva, Switzerland: WHO; 2022. Available at https://cdn.who.int/media/docs/default‐source/documents/social‐determinants‐of‐health/who_2022_plv_strategy_2022‐2026_finalfile.pdf?sfvrsn=c819ff54_3&download=true
12 Protection against discrimination on grounds of sexual orientation, gender identity and sex characteristics in the EU: Comparative legal analysis - Update 2015. Luxembourg: European Union Agency for Fundamental Rights; 2015. Available at http://fra.europa.eu/en/publication/2015/protection‐against‐discrimination‐grounds‐sexual‐orientation‐gender‐identity‐and
17 2023 Census: Final content report. Wellington, New Zealand: Stats NZ Tatauranga Aotearoa; 2021. Available at https://www.stats.govt.nz/assets/Uploads/Reports/2023‐Census‐Final‐content‐report/2023‐Census‐Final‐content‐report.pdf
19 Ludlam AH, Saxton PJ, Dickson NP, et al. General practitioner awareness of sexual orientation among a community and internet sample of gay and bisexual men in New Zealand. J Prim Health Care 2015; 7(3): 204-12.
| Google Scholar | PubMed |
20 Saxton P, Dickson N, Hughes A. Who is omitted from repeated offline HIV behavioural surveillance among MSM? Implications for interpreting trends. AIDS Behav 2013; 17(9): 3133-44.
| Crossref | Google Scholar | PubMed |
21 Guidelines for Second Generation HIV Surveillance: An Update: Know Your Epidemic. Geneva: World Health Organization; 2013. Available at https://pubmed.ncbi.nlm.nih.gov/24049865/
22 Hong Y-R, Tauscher J, Cardel M. Distrust in health care and cultural factors are associated with uptake of colorectal cancer screening in Hispanic and Asian Americans. Cancer 2018; 124(2): 335-45.
| Crossref | Google Scholar | PubMed |
23 Braksmajer A, Fedor TM, Chen S-R, et al. Willingness to take PrEP for HIV prevention: the combined effects of race/ethnicity and provider trust. AIDS Educ Prev 2018; 30(1): 1-12.
| Crossref | Google Scholar | PubMed |
24 Came HA, Herbert S, McCreanor T. Representations of Māori in colonial health policy in Aotearoa from 2006-2016: a barrier to the pursuit of health equity. Crit Public Health 2021; 31: 338-48.
| Crossref | Google Scholar |
25 Goodyear-Smith F, Ashton T. New Zealand health system: universalism struggles with persisting inequities. Lancet 2019; 394(10196): 432-42.
| Crossref | Google Scholar | PubMed |
26 Bjarnadottir RI, Bockting W, Dowding DW. Patient perspectives on answering questions about sexual orientation and gender identity: an integrative review. Journal of Clinical Nursing 2017; 26(13–14): 1814-33.
| Crossref | Google Scholar | PubMed |
27 Henrickson M, Neville S, Jordan C, et al. Lavender islands. J Homosex 2007; 53(4): 223-48.
| Crossref | Google Scholar | PubMed |
28 Cahill S, Makadon H. Sexual orientation and gender identity data collection in clinical settings and in electronic health records: a key to ending LGBT health disparities. LGBT Health 2014; 1(1): 34-41.
| Crossref | Google Scholar | PubMed |
29 Haider AH, Schneider EB, Kodadek LM, et al. Emergency Department query for patient-centered approaches to sexual orientation and gender identity: the EQUALITY study. JAMA Intern Med 2017; 177(6): 819-28.
| Crossref | Google Scholar | PubMed |
30 Durso LE, Meyer IH. Patterns and predictors of disclosure of sexual orientation to healthcare providers among lesbians, gay men, and bisexuals. Sex Res Social Policy 2013; 10(1): 35-42.
| Crossref | Google Scholar | PubMed |
31 Tang W, Mao J, Tang S, et al. Disclosure of sexual orientation to health professionals in China: results from an online cross‐sectional study. J Int AIDS Soc 2017; 20(1): 21416.
| Crossref | Google Scholar | PubMed |
32 Qiao S, Zhou G, Li X. Disclosure of same-sex behaviors to health-care providers and uptake of HIV testing for men who have sex with men: a systematic review. Am J Mens Health 2018; 12(5): 1197-214.
| Crossref | Google Scholar | PubMed |
33 Cahill S, Singal R, Grasso C, et al. Do ask, do tell: high levels of acceptability by patients of routine collection of sexual orientation and gender identity data in four diverse American community health centers. PLoS One 2014; 9(9): e107104.
| Crossref | Google Scholar | PubMed |
34 PRISM: Human Rights issues relating to Sexual Orientation, Gender Identity and Expression, and Sex Characteristics (SOGIESC) in Aotearoa New Zealand - A report with recommendations. Wellington, NZ: New Zealand Human Rights Commission; 2020. Available at https://natlib‐primo.hosted.exlibrisgroup.com/permalink/f/1s57t7d/NLNZ_ALMA11348927820002836
35 Fenaughty J, Tan K, Ker A, et al. Sexual orientation and gender identity change efforts for young people in New Zealand: demographics, types of suggesters, and associations with mental health. J Youth Adolesc 2023; 52(1): 149-64.
| Crossref | Google Scholar | PubMed |
38 Logie CH, van der Merwe LLA, Scheim A. Measuring sex, gender, and sexual orientation: one step to health equity. Lancet 2022; 400(10354): 715-7.
| Crossref | Google Scholar | PubMed |