Self-management of chronic conditions in a rural and remote context
Adem Sav A F , Michelle A. King B , Fiona Kelly C , Sara S. McMillan A , Elizabeth Kendall A , Jennifer A. Whitty A D and Amanda J. Wheeler A EA Population and Social Health Research Program, School of Human Services and Social Work, Griffith Health Institute, Griffith University, University Drive, Meadowbrook, Qld 4131, Australia.
B School of Pharmacy, Griffith University, Gold Coast Campus, Parklands Drive, Southport, Qld 4215, Australia.
C School of Human Services and Social Work, Griffith University, Logan Campus, University Drive, Meadowbrook, Qld 4131, Australia.
D Centre for Applied Health Economics, Griffith Health Institute, Griffith University, Logan Campus, University Drive, Meadowbrook, Qld 4131, Australia.
E School of Pharmacy, Faculty of Medical and Health Sciences, University of Auckland, Private Bag 92019, Auckland 1142, New Zealand.
F Corresponding author. Email: a.sav@griffith.edu.au
Australian Journal of Primary Health 21(1) 90-95 https://doi.org/10.1071/PY13084
Submitted: 19 June 2013 Accepted: 23 August 2013 Published: 18 October 2013
Abstract
Living in a rural or remote environment presents unique challenges for people with chronic conditions, mainly those created by limited health-care services and the physical and emotional isolation. Yet, research on how people self-manage their chronic conditions in such locations is limited. This study aims to contribute to research and clinical practice by describing the ways in which a diverse group of rural and remote people with a range of chronic conditions, and their unpaid carers, self-manage their conditions. Using semi-structured in-depth interviews, data was collected from a sample of 32 participants, residing in one of two regions of Australia: Mount Isa/North West region of Queensland and the Northern Rivers area of New South Wales. Our findings suggest that although self-managing in a rural and remote context requires many of the lifestyle changes necessary in urban areas, the uniqueness of the rural lifestyle and the limited availability of health care results in, at times, creative forms of self-management. Health-care professionals and policy makers need to be cognisant of the ways in which rural and remote residents modify self-management strategies to suit their needs, and help them develop self-management plans tailored to the realities of their rural environment.
References
Ah Kit J, Prideaux C, Harvey PW, Collins JP, Battersby M, Mills PD, Dansie S (2003) Chronic disease self-management in Aboriginal communities: towards a sustainable program of care in rural communities. Australian Journal of Primary Health 9, 168–176.| Chronic disease self-management in Aboriginal communities: towards a sustainable program of care in rural communities.Crossref | GoogleScholarGoogle Scholar |
Alwan A, Armstrong T, Cowan M, Riley L (2011) ‘Noncommunicable diseases country profiles 2011.’ (World Health Organization: Geneva)
Australian Bureau of Statistics (2013) Australian standard geographical classification – remoteness area (ASGC-RA). (Doctor Connect: Canberra) Available at http://www.health.gov.au/internet/otd/Publishing.nsf/Content/RA-intro [Verified 4 June 2013]
Australian Institute of Health and Welfare (2012) Chronic disease. (Australian Government Publications: Canberra) Available at http://www.health.gov.au/internet/main/publishing.nsf/content/chronic [Verified 25 November 2012]
Barlow J, Wright C, Sheasby J, Turner A, Hainsworth J (2002) Self-management approaches for people with chronic conditions: a review. Patient Education and Counseling 48, 177–187.
| Self-management approaches for people with chronic conditions: a review.Crossref | GoogleScholarGoogle Scholar | 12401421PubMed |
Battersby M, Ah Kit J, Prideaux C, Harvey PW, Collins JP, Mills PD (2008) Research implementing the Flinders Model of Self-management Support with Aboriginal people who have diabetes: findings from a pilot study. Australian Journal of Primary Health 14, 66–74.
| Research implementing the Flinders Model of Self-management Support with Aboriginal people who have diabetes: findings from a pilot study.Crossref | GoogleScholarGoogle Scholar |
Bowen GA (2008) Naturalistic inquiry and the saturation concept: a research note. Qualitative Research 8, 137–152.
| Naturalistic inquiry and the saturation concept: a research note.Crossref | GoogleScholarGoogle Scholar |
Cudney S, Sullivan T, Winters CA, Paul L, Oriet P (2005) Chronically ill rural women: self-identified management problems and solutions. Chronic Illness 1, 49–60.
Fry M, Bates G (2012) The tasks of self-managing hepatitis C: the significance of disclosure. Psychology & Health 27, 460–474.
| The tasks of self-managing hepatitis C: the significance of disclosure.Crossref | GoogleScholarGoogle Scholar |
Furler J, Walker C, Blackberry I, Dunning T, Sulaiman N, Dunbar J, Best J, Young D (2008) The emotional context of self-management in chronic illness: a qualitative study of the role of health professional support in the self-management of type 2 diabetes. BMC Health Services Research 8, 214
| The emotional context of self-management in chronic illness: a qualitative study of the role of health professional support in the self-management of type 2 diabetes.Crossref | GoogleScholarGoogle Scholar | 18928555PubMed |
Gallant MP (2003) The influence of social support on chronic illness self-management: a review and directions for research. Health Education & Behavior 30, 170–195.
| The influence of social support on chronic illness self-management: a review and directions for research.Crossref | GoogleScholarGoogle Scholar |
Gorman D, Buikstra E, Hegney D, Pearce S, Rogers-Clark C, Weir J, Mccullagh B (2007) Rural men and mental health: their experiences and how they managed. International Journal of Mental Health Nursing 16, 298–306.
| Rural men and mental health: their experiences and how they managed.Crossref | GoogleScholarGoogle Scholar | 17845549PubMed |
Kerr A (2005) A national framework for service change in the NHS in Scotland. (National Health Service for Scotland: Edinburgh) Available at http://www.scotland.gov.uk/Resource/Doc/924/0012113.pdf [Verified 24 March 2013]
Lorig KR, Holman HR (2003) Self-management education: history, definition, outcomes, and mechanisms. Annals of Behavioral Medicine 26, 1–7.
| Self-management education: history, definition, outcomes, and mechanisms.Crossref | GoogleScholarGoogle Scholar | 12867348PubMed |
Mobbs R, Nguyen HT, Bell A (2003) The chronic disease self-management project at Katherine West Health Board Aboriginal Corporation in the Northern Territory: a report of the first year. Australian Journal of Primary Health 9, 160–167.
| The chronic disease self-management project at Katherine West Health Board Aboriginal Corporation in the Northern Territory: a report of the first year.Crossref | GoogleScholarGoogle Scholar |
Morden A, Jinks C, Ong BN (2011) Lay models of self-management: how do people manage knee osteoarthritis in context? Chronic Illness 7, 185–200.
| Lay models of self-management: how do people manage knee osteoarthritis in context?Crossref | GoogleScholarGoogle Scholar | 21343222PubMed |
Neuman WL (2010) ‘Social research methods: qualitative and quantitative approaches.’ (Pearson Education: Boston)
Paterson BL, Charlton P, Richard S (2010) Non-attendance in chronic disease clinics: a matter of non-compliance? Journal of Nursing and Healthcare of Chronic Illness 2, 63–74.
| Non-attendance in chronic disease clinics: a matter of non-compliance?Crossref | GoogleScholarGoogle Scholar |
Phillips A (2009) Health status differentials across rural and remote Australia. The Australian Journal of Rural Health 17, 2–9.
| Health status differentials across rural and remote Australia.Crossref | GoogleScholarGoogle Scholar | 19161493PubMed |
Phillips RL, Short A, Dugdale P, Nugus P, Greenfield D (2013) Supporting patients to self-manage chronic disease: clinicians’ perspectives and current practices. Australian Journal of Primary Health
| Supporting patients to self-manage chronic disease: clinicians’ perspectives and current practices.Crossref | GoogleScholarGoogle Scholar | 23697387PubMed |
Purtzer MA, Hermansen-Kobulnicky CJ (2013) ‘Being a part of treatment’: the meaning of self-monitoring for rural cancer patients. Cancer Nursing 36, 93–103.
| ‘Being a part of treatment’: the meaning of self-monitoring for rural cancer patients.Crossref | GoogleScholarGoogle Scholar | 22964865PubMed |
QSR International Pty Ltd (2012) QNVivo qualitative data analysis software. QSR International Pty Ltd, Version 10.
Richard AA, Shea K (2011) Delineation of self-care and associated concepts. Journal of Nursing Scholarship 43, 255–264.
Sav A, King MA, Whitty JA, Kendall E, Mcmillan SS, Kelly F, Beth H, Wheeler AJ (2013) Burden of treatment for chronic illness: a concept analysis and review of the literature. Health Expectations
| Burden of treatment for chronic illness: a concept analysis and review of the literature.Crossref | GoogleScholarGoogle Scholar | 23363080PubMed |
Schlegel RJ, Talley AE, Molix LA, Bettencourt BA (2009) Rural breast cancer patients, coping and depressive symptoms: a prospective comparison study. Psychology & Health 24, 933–948.
| Rural breast cancer patients, coping and depressive symptoms: a prospective comparison study.Crossref | GoogleScholarGoogle Scholar |
Schulman-Green D, Jaser S, Martin F, Alonzo A, Grey M, Mccorkle R, Redeker NS, Reynolds N, Whittemore R (2012) Processes of self-management in chronic illness. Journal of Nursing Scholarship 44, 136–144.
| Processes of self-management in chronic illness.Crossref | GoogleScholarGoogle Scholar | 22551013PubMed |
Siegloff S, Aroni R (2003) Mental illness and ‘self’-management in rural Australia: caregivers’ perspectives. Australian Journal of Primary Health 9, 90–100.
| Mental illness and ‘self’-management in rural Australia: caregivers’ perspectives.Crossref | GoogleScholarGoogle Scholar |
Tollefson J, Usher K (2006) Chronic pain in the rural arena. The Australian Journal of Rural Health 14, 134–135.
| Chronic pain in the rural arena.Crossref | GoogleScholarGoogle Scholar | 16706885PubMed |
Winters CA, Cudney SA, Sullivan T, Thuesen A (2006) The rural context and women’s self-management of chronic health conditions. Chronic Illness 2, 273–289.
Zucca A, Boyes A, Girgis A, Hall A, Newling G (2011) Travelling all over the countryside: travel-related burden and financial difficulties reported by cancer patients in New South Wales and Victoria. The Australian Journal of Rural Health 19, 298–305.
| Travelling all over the countryside: travel-related burden and financial difficulties reported by cancer patients in New South Wales and Victoria.Crossref | GoogleScholarGoogle Scholar | 22098213PubMed |