Best-practice recommendations to inform general practice nurses in the provision of dementia care: a Delphi study
Caroline Gibson A B * , Dianne Goeman A C , Mark Yates B D and Dimity Pond AA Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, NSW 2308, Australia.
B Grampians Health, Ballarat, Vic. 3350, Australia.
C Central Clinical School, Monash University, The Alfred Centre, Melbourne, Vic. 3004, Australia.
D Deakin University School of Medicine, Ballarat Clinical School, Ballarat, Vic. 3350, Australia.
Australian Journal of Primary Health - https://doi.org/10.1071/PY22276
Submitted: 26 July 2022 Accepted: 27 May 2023 Published online: 22 June 2023
© 2023 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of La Trobe University. This is an open access article distributed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND)
Abstract
Background: Worldwide, responsibility for dementia diagnosis and management is shifting to primary care, in particular to the general practitioner (GP). It has been acknowledged that primary care nurses, working collaboratively with GPs, have a role in dementia care by utilising their unique knowledge and skills. However, there are no best-practice guidelines or care pathways to inform nurses in general practice on what best-practice dementia care comprises and how to implement this into their practice. This study identified the recommendations in the Australian guidelines for dementia management most relevant to the role of the nurse working in general practice.
Methods: Seventeen experts active in clinical practice and/or research in primary care nursing in general practice participated in an online three-round Delphi study.
Results: All 17 participants were female with a nursing qualification and experienced in general practice clinical nursing and/or general practice nursing research. Five recommendations were identified as the most relevant to the role of the nurse in general practice. These recommendations all contained elements of person-centred care: the delivery of individualised information, ongoing support, including the carer in decision-making, and they also align with the areas where GPs want support in dementia care provision.
Conclusion: This novel study identified best-practice dementia care recommendations specific to nurses in general practice. These recommendations will inform a model of care for nurses in the provision of dementia care that supports GPs and better meets the needs of people living with dementia and their carer(s).
Keywords: health services: aged, nursing: assessment, nursing: process, patient care: management, patient-centred care, primary health care.
References
Beck AP, Jacobsohn GC, Hollander M, Gilmore-Bykovskyi A, Werner N, Shah MN (2021) Features of primary care practice influence emergency care-seeking behaviors by caregivers of persons with dementia: a multiple-perspective qualitative study. Dementia 20, 613–632.| Features of primary care practice influence emergency care-seeking behaviors by caregivers of persons with dementia: a multiple-perspective qualitative study.Crossref | GoogleScholarGoogle Scholar |
Birko S, Dove ES, Özdemir V (2015) Evaluation of nine consensus indices in Delphi foresight research and their dependency on Delphi survey characteristics: a simulation study and debate on Delphi design and interpretation. PLoS ONE 10, e0135162
| Evaluation of nine consensus indices in Delphi foresight research and their dependency on Delphi survey characteristics: a simulation study and debate on Delphi design and interpretation.Crossref | GoogleScholarGoogle Scholar |
Boel A, Navarro-Compán V, Landewé R, van der Heijde D (2021) Two different invitation approaches for consecutive rounds of a Delphi survey led to comparable final outcome. Journal of Clinical Epidemiology 129, 31–39.
| Two different invitation approaches for consecutive rounds of a Delphi survey led to comparable final outcome.Crossref | GoogleScholarGoogle Scholar |
Byrne A-L, Baldwin A, Harvey C (2020) Whose centre is it anyway? Defining person-centred care in nursing: an integrative review. PLoS ONE 15, e0229923
| Whose centre is it anyway? Defining person-centred care in nursing: an integrative review.Crossref | GoogleScholarGoogle Scholar |
Evripidou M, Charalambous A, Middleton N, Papastavrou E (2019) Nurses’ knowledge and attitudes about dementia care: systematic literature review. Perspectives in Psychiatric Care 55, 48–60.
| Nurses’ knowledge and attitudes about dementia care: systematic literature review.Crossref | GoogleScholarGoogle Scholar |
Fazio S, Pace D, Flinner J, Kallmyer B (2018) The fundamentals of person-centered care for individuals with dementia. The Gerontologist 58, S10–S19.
| The fundamentals of person-centered care for individuals with dementia.Crossref | GoogleScholarGoogle Scholar |
Frost R, Rait G, Aw S, Brunskill G, Wilcock J, Robinson L, Knapp M, Hogan N, Harrison Dening K, Allan L, Manthorpe J, Walters K, on behalf of the PriDem team (2020) Implementing post diagnostic dementia care in primary care: a mixed-methods systematic review. Aging & Mental Health 25, 1381–1394.
| Implementing post diagnostic dementia care in primary care: a mixed-methods systematic review.Crossref | GoogleScholarGoogle Scholar |
Gibson C, Goeman D, Pond D (2020) What is the role of the practice nurse in the care of people living with dementia, or cognitive impairment, and their support person(s)?: a systematic review. BMC Family Practice 21, 141
| What is the role of the practice nurse in the care of people living with dementia, or cognitive impairment, and their support person(s)?: a systematic review.Crossref | GoogleScholarGoogle Scholar |
Gibson C, Goeman D, Yates M, Pond D (2021a) Clinical practice guidelines and principles of care for people with dementia: a protocol for undertaking a Delphi technique to identify the recommendations relevant to primary care nurses in the delivery of person-centred dementia care. BMJ Open 11, e044843
| Clinical practice guidelines and principles of care for people with dementia: a protocol for undertaking a Delphi technique to identify the recommendations relevant to primary care nurses in the delivery of person-centred dementia care.Crossref | GoogleScholarGoogle Scholar |
Gibson C, Goeman D, Hutchinson A, Yates M, Pond D (2021b) The provision of dementia care in general practice: practice nurse perceptions of their role. BMC Family Practice 22, 110
| The provision of dementia care in general practice: practice nurse perceptions of their role.Crossref | GoogleScholarGoogle Scholar |
Graham ID, Logan J, Harrison MB, Straus SE, Tetroe J, Caswell W, Robinson N (2006) Lost in knowledge translation: time for a map? Journal of Continuing Education in the Health Professions 26, 13–24.
| Lost in knowledge translation: time for a map?Crossref | GoogleScholarGoogle Scholar |
Guidelines Adaptation Committee (2016) Clinical practice guidelines and principles of care for people with dementia. (NHMRC Partnership Centre for Dealing with Cognitive and Related Functional Decline in Older People: Sydney, Australia) Available at https://cdpc.sydney.edu.au/wp-content/uploads/2019/06/CDPC-Dementia-Guidelines_WEB.pdf
Halcomb EJ, Davidson PM, Salamonson Y, Ollerton R, Griffiths R (2008) Nurses in Australian general practice: implications for chronic disease management. Journal of Clinical Nursing 17, 6–15.
| Nurses in Australian general practice: implications for chronic disease management.Crossref | GoogleScholarGoogle Scholar |
Halcomb EJ, McInnes S, Patterson C, Moxham L (2019) Nurse-delivered interventions for mental health in primary care: a systematic review of randomized controlled trials. Family Practice 36, 64–71.
| Nurse-delivered interventions for mental health in primary care: a systematic review of randomized controlled trials.Crossref | GoogleScholarGoogle Scholar |
Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG (2009) Research electronic data capture (REDCap) – a metadata-driven methodology and workflow process for providing translational research informatics support. Journal of Biomedical Informatics 42, 377–381.
| Research electronic data capture (REDCap) – a metadata-driven methodology and workflow process for providing translational research informatics support.Crossref | GoogleScholarGoogle Scholar |
Heintz H, Monette P, Epstein-Lubow G, Smith L, Rowlett S, Forester BP (2020) Emerging collaborative care models for dementia care in the primary care setting: a narrative review. The American Journal of Geriatric Psychiatry 28, 320–330.
| Emerging collaborative care models for dementia care in the primary care setting: a narrative review.Crossref | GoogleScholarGoogle Scholar |
Islam MM, Parkinson A, Burns K, Woods M, Yen L (2020) A training program for primary health care nurses on timely diagnosis and management of dementia in general practice: an evaluation study. International Journal of Nursing Studies 105, 103550
| A training program for primary health care nurses on timely diagnosis and management of dementia in general practice: an evaluation study.Crossref | GoogleScholarGoogle Scholar |
Junger S, Payne SA, Brine J, Radbruch L, Brearley SG (2017) Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: recommendations based on a methodological systematic review. Palliative Medicine 31, 684–706.
| Guidance on Conducting and REporting DElphi Studies (CREDES) in palliative care: recommendations based on a methodological systematic review.Crossref | GoogleScholarGoogle Scholar |
Keeney S, Hasson F, McKenna H (2011) ‘The Delphi technique in nursing and health research.’ (Wiley Blackwell: United Kingdom)
Mazza D, McCarthy E, Camões-Costa V, Mansfield E, Bryant J, Waller A, Lin X, Piterman L (2021) Prioritising national dementia guidelines for general practice: a Delphi approach. Australasian Journal on Ageing 41, 247–257.
| Prioritising national dementia guidelines for general practice: a Delphi approach.Crossref | GoogleScholarGoogle Scholar |
McInnes S, Peters K, Bonney A, Halcomb E (2015) An integrative review of facilitators and barriers influencing collaboration and teamwork between general practitioners and nurses working in general practice. Journal of Advanced Nursing 71, 1973–1985.
| An integrative review of facilitators and barriers influencing collaboration and teamwork between general practitioners and nurses working in general practice.Crossref | GoogleScholarGoogle Scholar |
Ngo J, Holroyd-Leduc JM (2015) Systematic review of recent dementia practice guidelines. Age and Ageing 44, 25–33.
| Systematic review of recent dementia practice guidelines.Crossref | GoogleScholarGoogle Scholar |
Phillips J, Pond D, Goode SM (2011) Timely Diagnosis of Dementia: can we do better? A report for Alzheimer’s Australia. Paper 24. (Alzheimer’s Australia: Canberra, ACT, Australia) Available at https://www.dementia.org.au/sites/default/files/Timely_Diagnosis_Can_we_do_better.pdf
Spenceley SM, Sedgwick N, Keenan J (2015) Dementia care in the context of primary care reform: an integrative review. Aging & Mental Health 19, 107–120.
| Dementia care in the context of primary care reform: an integrative review.Crossref | GoogleScholarGoogle Scholar |
Swanson M, Wong ST, Martin-Misener R, Browne AJ (2020) The role of registered nurses in primary care and public health collaboration: a scoping review. Nursing Open 7, 1197–1207.
| The role of registered nurses in primary care and public health collaboration: a scoping review.Crossref | GoogleScholarGoogle Scholar |