Health care support following miscarriage in Australia: a qualitative study. How can we do better?
Alice Y. Yu A , Meredith J. Temple-Smith A C * and Jade E. Bilardi A B C D *A Department of General Practice, The University of Melbourne, 780 Elizabeth Street, Carlton, Vic. 3010, Australia.
B Central Clinical School, Monash University, 99 Commercial Road, Melbourne, Vic. 3004, Australia.
C Melbourne Sexual Health Centre, Alfred Health, 580 Swanston Street, Carlton, Vic. 3053, Australia.
D Corresponding author. Email: jade.bilardi@monash.edu
Australian Journal of Primary Health 28(2) 172-178 https://doi.org/10.1071/PY21090
Submitted: 28 May 2021 Accepted: 11 October 2021 Published: 2 February 2022
Abstract
Miscarriage occurs in one in four pregnancies in Australia and commonly results in adverse psychosocial sequelae, such as clinically significant levels of depression and anxiety. Women also commonly report a lack of support, understanding and acknowledgement of their loss. Research has shown that poor health care support experiences serve to exacerbate adverse psychosocial outcomes. This study explored the support experiences of women affected by miscarriage and their views on what support is needed, when it is needed and who should provide it, as well as their recommendations for improvement. Sixteen Australian women were purposively sampled to participate in qualitative semi-structured interviews. Interview data was analysed using content analysis. Approximately half the women reported positive experiences with healthcare providers, but, despite this, almost all pointed to areas where support was lacking. Insensitive comments and lack of emotional awareness were common. Participants suggested areas for increased clinician support, including mentioning the possibility of miscarriage earlier in routine pregnancies, offering more information before and at the time of miscarriage, providing emotionally sensitive care and offering follow up and psychological support. Women wanted healthcare providers to be proactive in offering support, information and emotionally sensitive care at the time of miscarriage, rather than having to seek it out themselves. Suggestions to improve support after miscarriage included mentioning the possibility of miscarriage earlier, offering more information about miscarriage and psychological support options.
Keywords: early pregnancy loss, emotional, healthcare providers, professionals, psychosocial.
References
Bellhouse C, Temple-Smith MJ, Bilardi JE (2018) “It’s just one of those things people don’t seem to talk about…” women’s experiences of social support following miscarriage: a qualitative study. BMC Women’s Health 18, 176| “It’s just one of those things people don’t seem to talk about…” women’s experiences of social support following miscarriage: a qualitative study.Crossref | GoogleScholarGoogle Scholar | 30373583PubMed |
Bellhouse C, Temple-Smith M, Watson S, Bilardi J (2019) “The loss was traumatic… some healthcare providers added to that”: women’s experiences of miscarriage. Women and Birth; Journal of the Australian College of Midwives 32, 137–146.
| “The loss was traumatic… some healthcare providers added to that”: women’s experiences of miscarriage.Crossref | GoogleScholarGoogle Scholar | 30153984PubMed |
Borys S (2021) New law validates pregnancy loss by granting compassionate leave for grieving parents. ABC News 24 June 2021. Available at https://www.abc.net.au/news/2021-06-24/bereavement-allowance-for-pregnancy-loss/100236932 [Verified 1 October 2021]
Brier N (1999) Understanding and managing the emotional reactions to a miscarriage. Obstetrics and Gynecology 93, 151–155.
Brier N (2008) Grief following miscarriage: a comprehensive review of the literature. Journal of Women’s Health 17, 451–464.
| Grief following miscarriage: a comprehensive review of the literature.Crossref | GoogleScholarGoogle Scholar | 18345996PubMed |
Conway K, Russell G (2000) Couples’ grief and experience of support in the aftermath of miscarriage. The British Journal of Medical Psychology 73, 531–545.
| Couples’ grief and experience of support in the aftermath of miscarriage.Crossref | GoogleScholarGoogle Scholar | 11140793PubMed |
Department of Health (2020) Pregnancy support counselling. (Department of Health, Commonwealth of Australia) Available at https://www1.health.gov.au/internet/main/publishing.nsf/Content/health-pcd-pregnancy-support.htm [Verified 6 March 2021]
Evans R (2012) Emotional care for women who experience miscarriage. Nurs Stand R Coll Nurs 26, 35–41.
| Emotional care for women who experience miscarriage.Crossref | GoogleScholarGoogle Scholar |
Farren J, Mitchell-Jones N, Verbakel JY, Timmerman D, Jalmbrant M, Bourne T (2018) The psychological impact of early pregnancy loss. Human Reproduction Update 24, 731–749.
| The psychological impact of early pregnancy loss.Crossref | GoogleScholarGoogle Scholar | 30204882PubMed |
Guest G, Bunce A, Johnson L (2006) How many interviews are enough? Field Methods 18, 59–82.
| How many interviews are enough?Crossref | GoogleScholarGoogle Scholar |
Herbert D, Lucke J, Dobson A (2009) Pregnancy losses in young Australian women: findings from the Australian longitudinal study on women’s health. Women’s Health Issues 19, 21–29.
| Pregnancy losses in young Australian women: findings from the Australian longitudinal study on women’s health.Crossref | GoogleScholarGoogle Scholar | 19111784PubMed |
Jensen KLB, Temple-Smith MJ, Bilardi JE (2019) Health professionals’ roles and practices in supporting women experiencing miscarriage: a qualitative study. Australian and New Zealand Journal of Obstetrics and Gynaecology 59, 508–513.
| Health professionals’ roles and practices in supporting women experiencing miscarriage: a qualitative study.Crossref | GoogleScholarGoogle Scholar | 30338853PubMed |
Kong GW, Chung TK, Lok IH (2014) The impact of supportive counselling on women’s psychological wellbeing after miscarriage–a randomised controlled trial. BJOG Int J Obstet Gynaecol. 121, 1253–1262.
| The impact of supportive counselling on women’s psychological wellbeing after miscarriage–a randomised controlled trial.Crossref | GoogleScholarGoogle Scholar |
Lok IH, Neugebauer R (2007) Psychological morbidity following miscarriage. Best Practice & Research. Clinical Obstetrics & Gynaecology 21, 229–247.
| Psychological morbidity following miscarriage.Crossref | GoogleScholarGoogle Scholar |
Miller EJ, Temple-Smith MJ, Bilardi JE (2019) “There was just no-one there to acknowledge that it happened to me as well”: a qualitative study of male partner’s experience of miscarriage. PLoS One 14, e0217395
| “There was just no-one there to acknowledge that it happened to me as well”: a qualitative study of male partner’s experience of miscarriage.Crossref | GoogleScholarGoogle Scholar | 31136597PubMed |
Murphy FA, Lipp A, Powles DL (2012) Follow-up for improving psychological well being for women after a miscarriage. Cochrane Database Syst Rev 3, CD008679
| Follow-up for improving psychological well being for women after a miscarriage.Crossref | GoogleScholarGoogle Scholar |
Musters AM, Koot YEM, Van Den Boogaard NM, Kaaijk E, MacKlon NS, Van Der Veen F, Nieuwkerk PT, Goddijn M (2013) Supportive care for women with recurrent miscarriage: a survey to quantify women’s preferences. Human Reproduction (Oxford, England) 28, 398–405.
| Supportive care for women with recurrent miscarriage: a survey to quantify women’s preferences.Crossref | GoogleScholarGoogle Scholar |
Neergaard MA, Olesen F, Anderson RS, Sondergaard J (2009) Qualitative description – the poor cousin of health research? BMC Medical Research Methodology 9, 52
| Qualitative description – the poor cousin of health research?Crossref | GoogleScholarGoogle Scholar | 19607668PubMed |
Rowlands IJ, Lee C (2010) ‘The silence was deafening’: social and health service support after miscarriage. Journal of Reproductive and Infant Psychology 28, 274–286.
| ‘The silence was deafening’: social and health service support after miscarriage.Crossref | GoogleScholarGoogle Scholar |
Robinson J (2014) Provision of information and support to women who have suffered an early miscarriage. British Journal of Midwifery 22, 175–180.
| Provision of information and support to women who have suffered an early miscarriage.Crossref | GoogleScholarGoogle Scholar |
Séjourné N, Callahan S, Chabrol H (2010) Support following miscarriage: what women want. Journal of Reproductive and Infant Psychology 28, 403–411.
| Support following miscarriage: what women want.Crossref | GoogleScholarGoogle Scholar |
Sturges J, Hanrahan K (2014) Comparing telephone and face-to-face qualitative interviewing: a research note. Qual Res 4, 107–18.
| Comparing telephone and face-to-face qualitative interviewing: a research note.Crossref | GoogleScholarGoogle Scholar |
Stratton K, Lloyd L (2008) Hospital-based interventions at and following miscarriage: literature to inform a research-practice initiative. Australian and New Zealand Journal of Obstetrics and Gynaecology 48, 5–11.
| Hospital-based interventions at and following miscarriage: literature to inform a research-practice initiative.Crossref | GoogleScholarGoogle Scholar | 18275565PubMed |
Sumarno V, Temple-Smith M, Bilardi JE (2020) Whose role is it? Primary care and the provision of emotional support for women experiencing miscarriage: a pilot qualitative Australian study. Australian Journal of Primary Health 26, 388–395.
| Whose role is it? Primary care and the provision of emotional support for women experiencing miscarriage: a pilot qualitative Australian study.Crossref | GoogleScholarGoogle Scholar | 32972509PubMed |
The Royal Australian and New Zealand College of Obstetricians and Gynaecologists (RANZCOG) (2019). Pregnancy loss. RANZCOG, Melbourne, Vic., Australia.
Tsartsara E, Johnson MP (2002) Women’s experience of care at a specialised miscarriage unit: an interpretative phenomenological study. Clinical Effectiveness in Nursing 6, 55–65.
| Women’s experience of care at a specialised miscarriage unit: an interpretative phenomenological study.Crossref | GoogleScholarGoogle Scholar |
Vaismoradi M, Turunen H, Bondas T (2013) Content analysis and thematic analysis: implications for conducting a qualitative descriptive study. Nursing & Health Sciences 15, 398–405.
| Content analysis and thematic analysis: implications for conducting a qualitative descriptive study.Crossref | GoogleScholarGoogle Scholar |
World Health Organization (2020) Abortive outcome of pregnancy. ICD-11 for Mortality and Morbidity Statistics. Available at https://icd.who.int/browse11/l-m/en#/http%3a%2f%2fid.who.int%2ficd%2fentity%2f877352786