Enhancing palliative care in rural Australia: the residential aged care setting
Geoffrey Mitchell A D , Caroline Nicholson B , Keith McDonald C and Anne Bucetti AA Room 407, Building 12, University of Queensland Ipswich Campus, Salisbury Road, Ipswich, Queensland 4035, Australia.
B Mater Health Services, Level 2, JP Kelly Building, Raymond Terrace, South Brisbane, Queensland 4101, Australia.
C Murrumbidgee General Practice Network, Level 1, 13–15 Kurrajong Avenue, Leeton, NSW 2705, Australia.
D Corresponding author. Email: g.mitchell@uq.edu.au
Australian Journal of Primary Health 17(1) 95-101 https://doi.org/10.1071/PY10054
Submitted: 31 August 2010 Accepted: 10 February 2011 Published: 16 March 2011
Abstract
The delivery of palliative care in residential aged care communities is challenging, even more so in rural areas due to workforce ageing and shortages. The objectives of the present study were to: (i) assess the needs of, and quality of palliative care delivered to residents of 16 residential aged care facilities in rural southern Australia; and (ii) identify the needs of care staff to facilitate the delivery of quality palliative care. A cross-sectional survey of all residents, assessing the degree of functional limitation, stage of palliative care, and the presence of several quality indicators was conducted. Separate focus groups of care staff and relatives of residents sought information on the quality of care delivered, perceived strengths and weaknesses of the care delivered, and education and training needs. Quality palliative care in residential aged care facilities (RACFs) is hampered by workforce shortages, with low ratios of registered nurses, limited access to general practitioners after hours, and some communication difficulties. Some staff reported low confidence in technical and psychosocial aspects of care, especially for relatives. Relatives described mostly appropriate care, while acknowledging workload constraints. Most residents whose condition was unstable, deteriorating or terminal received advance care planning, though family expectations and unwillingness to discuss end-of-life care did tend to delay planning. Unstable residents with a reasonable prognosis were more likely to be transferred to hospital than terminally ill residents. Palliative care in participating RACFs appears to be adequate. Provision of targeted education for health care providers and implementation of protocols for advance care planning and end-of life care pathways will enhance this care.
Additional keywords: advance care planning, end of life care pathway.
References
Abernethy AP, Shelby-James T, Fazekas BS, Woods D, Currow DC (2005) The Australia-modified Karnofsky Performance Status (AKPS) scale: a revised scale for contemporary palliative care clinical practice [ISRCTN81117481]. BMC Palliat Care 4, 7| The Australia-modified Karnofsky Performance Status (AKPS) scale: a revised scale for contemporary palliative care clinical practice [ISRCTN81117481].Crossref | GoogleScholarGoogle Scholar | 16283937PubMed |
Access Economics (2009) ‘Nurses in residential aged care.’ (Access Economics: Canberra)
Allen S, O?tm)Connor M, Chapman Y, Francis K (2008) The implications of policy on delivering a palliative approach in residential aged care: rhetoric or reality? Contemporary Nurse: A Journal for the Australian Nursing Profession 29, 174–183.
Andrews S, McInerney F, Robinson A (2009) Realizing a palliative approach in dementia care: strategies to facilitate aged care staff engagement in evidence-based practice. International Psychogeriatrics 21, S64–S68.
| Realizing a palliative approach in dementia care: strategies to facilitate aged care staff engagement in evidence-based practice.Crossref | GoogleScholarGoogle Scholar | 19288969PubMed |
Australian Bureau of Statistics (2010) Australian Standard Geographical Classification – Remoteness Area. (Commonwealth of Australia: Canberra)
Australian Government Department of Health and Ageing (2004) ‘Guidelines for a palliative approach in residential aged care.’ 1st edn. (Commonwealth of Australia: Canberra)
Australian Government Department of Health and Ageing (2006) ‘Guidelines for a palliative approach in residential aged care.’ Enhanced edn. (Commonwealth of Australia: Canberra)
Australian Government Department of Health and Ageing (2007) National aged care workforce census and survey – who cares for older Australians? A picture of the residential and community based aged care workforce – final report. Chapter 3, The residential care workforce. Commonwealth of Australia, Canberra.
Australian Institute of Health and Welfare (2002) ‘Aged care assessment program data dictionary version 1.0.’ (AIHW: Canberra)
Australian Institute of Health and Welfare (2007) ‘Older Australia at a glance.’ 4th edn. Cat. no. AGE52. (AIH: Canberra)
Brown M, Grbich C, Maddocks I, Parker D, Roe Connellan P, Willis E (2005) Documenting end of life decisions in residential aged care facilities in South Australia. Australian and New Zealand Journal of Public Health 29, 85–90.
| Documenting end of life decisions in residential aged care facilities in South Australia.Crossref | GoogleScholarGoogle Scholar | 15782878PubMed |
Froggatt K, Payne S (2006) A survey of end-of-life care in care homes: issues of definition and practice. Health & Social Care in the Community 14, 341–348.
| A survey of end-of-life care in care homes: issues of definition and practice.Crossref | GoogleScholarGoogle Scholar | 16787485PubMed |
Kortes-Miller K, Habjan S, Kelley ML, Fortier M (2007) Development of a palliative care education program in rural long-term care facilities. Journal of Palliative Care 23, 154–162.
Nair B, Kerridgey I, Dobson A, McPhee J, Saul P (2000) Advance care planning in residential care. Australian and New Zealand Journal of Medicine 30, 339–343.
| Advance care planning in residential care.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DC%2BD3M%2FisFSrtQ%3D%3D&md5=3db616878afede08c9d014f343534546CAS | 10914751PubMed |
Palliative Care Australia (2005) ‘Standards for providing palliative care for all Australians.’ (Palliative Care Australia: Canberra)
Palliative Care Outcomes Collaboration (2007) ‘Palliative care clinical assessment tools.’ 2nd edn. (University of Wollongong, Centre for Health Service Development: Wollongong)
Phillips J, Davidson M, Jackson D, Kristjanson L, Daly J, Curran J (2006) Residential aged care: the last frontier for palliative care. Journal of Advanced Nursing 55, 416–424.
| Residential aged care: the last frontier for palliative care.Crossref | GoogleScholarGoogle Scholar | 16866837PubMed |
Reymond L, Mitchell G, McGrath B, Welch D, Treston P, Israel F, Read T (2003) ‘Research study into the educational, training and support needs of general practitioners in palliative care.’ The National Palliative Care Program. (Department of Health and Ageing, Australian Government: Brisbane)
World Health Organization (2004) ‘WHO definition of palliative care.’ Available at http://www.who.int/cancer/palliative/definition/en/ [Verified October 2004]
Wowchuk SM, McClement S, Bond J (2006) The challenge of providing palliative care in the nursing home: part 1 external factors. International Journal of Palliative Nursing 12, 260–267.
Wowchuk SM, McClement S, Bond J (2007) The challenge of providing palliative care in the nursing home part II: internal factors. International Journal of Palliative Nursing 13, 345–350.