Provision of palliative and end-of-life care in New Zealand residential aged care facilities: general practitioners’ perspectives
Deborah Balmer A C , Rosemary Frey A , Merryn Gott A , Jackie Robinson A and Michal Boyd A BA School of Nursing, The University of Auckland, Private Bag 92019, Auckland 1142, New Zealand.
B Freemasons’ Department of Geriatric Medicine, The University of Auckland, Private Bag 92019, Auckland 1142, New Zealand.
C Corresponding author. Email: d.balmer@auckland.ac.nz
Australian Journal of Primary Health 26(2) 124-131 https://doi.org/10.1071/PY19081
Submitted: 17 April 2019 Accepted: 15 November 2019 Published: 14 February 2020
Abstract
This exploratory study examined general practitioners’ (GPs) perspectives on delivering end-of-life care in the New Zealand residential aged care context. A general inductive approach to the data collected from semi-structured interviews with 17 GPs from 15 different New Zealand general practices was taken. Findings examine: (1) GPs’ life experience; (2) the GP relationship with the facilities and provision of end-of-life care; (3) the GP interaction with families of dying residents; and (4) GP relationship with hospice. The nature of the GP relationship with the facility influenced GP involvement in end-of-life care in aged care facilities, with GPs not always able to direct a facility’s end-of-life care decisions for specific residents. GP participation in end-of-life care was constrained by GP time availability and the costs to the facilities for that time. GPs reported seldom using hospice services for residents, but did use the reputation (cachet) associated with hospice practices to provide an authoritative buffer for their end-of-life clinical decisions when talking with families and residents. GP training in end-of-life care, especially for those with dementia, was reported as ad hoc and done through informal mentoring between GPs.
Additional keywords: general practice, professional roles and responsibilities, qualitative research, relationships.
References
Adelman RD, Capello CF, LoFaso V, Greene MG, Konopasek L, Marzuk PM (2007) Introduction to the older patient: a ‘first exposure’ to geriatrics for medical students. Journal of the American Geriatrics Society 55, 1445–1450.| Introduction to the older patient: a ‘first exposure’ to geriatrics for medical students.Crossref | GoogleScholarGoogle Scholar | 17767689PubMed |
Annear MJ, Lea E, Lo A, Tierney L, Robinson A (2016) Encountering aged care: a mixed methods investigation of medical students’ clinical placement experiences. BMC Geriatrics 16, 38
| Encountering aged care: a mixed methods investigation of medical students’ clinical placement experiences.Crossref | GoogleScholarGoogle Scholar | 26846779PubMed |
Australian Medical Association (2018) 2017 AMA Aged Care Survey Report. (Australian Medical Association, Barton, ACT, Australia) Available at https://ama.com.au/system/tdf/documents/2017%20AMA%20Aged%20Care%20Survey%20Report.pdf?file=1&type=node&id=48948 [Verified 30 December 2019]
Banerjee A, James R, McGregor M, Lexchin J (2018) Nursing home physicians discuss caring for elderly residents: an exploratory study. Canadian Journal on Aging / La Revue Canadienne du Vieillissement 37, 133–144.
| Nursing home physicians discuss caring for elderly residents: an exploratory study.Crossref | GoogleScholarGoogle Scholar |
Boyd M, Broad J, Kerse N, Foster S, von Randow M, Lay-Yee R, Chelimo C, Whitehead N, Connolly M (2011) Twenty-year trends in dependency in residential aged care in Auckland, New Zealand: a descriptive study. Journal of the American Medical Directors Association 12, 535–540.
| Twenty-year trends in dependency in residential aged care in Auckland, New Zealand: a descriptive study.Crossref | GoogleScholarGoogle Scholar | 21450250PubMed |
Boyd M, Frey R, Balmer D, Robinson J, McLeod H, Foster S, Slark J, Gott M (2019) End of life care for long-term care residents with dementia, chronic illness and cancer: prospective staff survey. BMC Geriatrics 19, 137
| End of life care for long-term care residents with dementia, chronic illness and cancer: prospective staff survey.Crossref | GoogleScholarGoogle Scholar | 31117991PubMed |
Butler RN (1969) Age-ism: another form of bigotry. The Gerontologist 9, 243–246.
| Age-ism: another form of bigotry.Crossref | GoogleScholarGoogle Scholar | 5366225PubMed |
Connolly MJ, Broad JB, Boyd M, Kerse N, Gott M (2014) Residential aged care: the de facto hospice for New Zealand’s older people. Australasian Journal on Ageing 33, 114–120.
| Residential aged care: the de facto hospice for New Zealand’s older people.Crossref | GoogleScholarGoogle Scholar | 24521449PubMed |
Davis J, Morgans A, Birks M, Browning C (2016) The rhetoric and reality of nursing in aged care: views from the inside. Contemporary Nurse 52, 191–203.
| The rhetoric and reality of nursing in aged care: views from the inside.Crossref | GoogleScholarGoogle Scholar | 27556496PubMed |
de Waard CS, Poot AJ, den Elzen WPJ, Wind AW, Caljouw MAA, Gussekloo J (2018) Perceived doctor-patient relationship and satisfaction with general practitioner care in older persons in residential homes. Scandinavian Journal of Primary Health Care 36, 189–197.
| Perceived doctor-patient relationship and satisfaction with general practitioner care in older persons in residential homes.Crossref | GoogleScholarGoogle Scholar | 29644911PubMed |
Frey R, Boyd M, Foster S, Robinson J, Gott M (2016) What’s the diagnosis? Organisational culture and palliative care delivery in residential aged care in New Zealand. Health & Social Care in the Community 24, 450–462.
| What’s the diagnosis? Organisational culture and palliative care delivery in residential aged care in New Zealand.Crossref | GoogleScholarGoogle Scholar |
Gott M, Frey R, Robinson J, Boyd M, O’Callaghan A, Richards N, Snow B (2013) The nature of, and reasons for, ‘inappropriate’ hospitalisations among patients with palliative care needs: a qualitative exploration of the views of generalist palliative care providers. Palliative Medicine 27, 747–756.
| The nature of, and reasons for, ‘inappropriate’ hospitalisations among patients with palliative care needs: a qualitative exploration of the views of generalist palliative care providers.Crossref | GoogleScholarGoogle Scholar | 23295813PubMed |
Green P (2002) Naturalistic inquiry: a method for transforming curiosity into active inquiry. In ‘Slices of Life: Qualitative Research Snapshots’. (Ed P Green) pp. 3–17. (RMIT University Press: Melbourne, Vic., Australia)
Green E, Knight S, Gott M, Barclay S, White P (2018) Patients’ and carers’ perspectives of palliative care in general practice: a systematic review with narrative synthesis. Palliative Medicine 32, 838–850.
| Patients’ and carers’ perspectives of palliative care in general practice: a systematic review with narrative synthesis.Crossref | GoogleScholarGoogle Scholar | 29343169PubMed |
Higashi RT, Tillack AA, Steinman M, Harper M, Bree Johnston C (2012) Elder care as ‘frustrating’ and ‘boring’: understanding the persistence of negative attitudes toward older patients among physicians-in-training. Journal of Aging Studies 26, 476–483.
| Elder care as ‘frustrating’ and ‘boring’: understanding the persistence of negative attitudes toward older patients among physicians-in-training.Crossref | GoogleScholarGoogle Scholar | 22939544PubMed |
Intrator O, Miller EA, Gadbois E, Acquah JK, Makineni R, Tyler D (2015) Trends in nurse practitioner and physician assistant practice in nursing homes, 2000–2010. Health Services Research 50, 1772–1786.
| Trends in nurse practitioner and physician assistant practice in nursing homes, 2000–2010.Crossref | GoogleScholarGoogle Scholar | 26564816PubMed |
Koopmans RT, Pelegrom M, van der Geer ER (2017) The Dutch move beyond the concept of nursing home physician specialists. Journal of the American Medical Directors Association 18, 746–749.
| The Dutch move beyond the concept of nursing home physician specialists.Crossref | GoogleScholarGoogle Scholar | 28668662PubMed |
Lazonby (2007) ‘The Changing Face of the Aged Care Sector in New Zealand.’ (Retirement Policy and Research Centre: Auckland, New Zealand)
Leeson GW (2014) Future prospects for longevity. Post Reproductive Health 20, 11–15.
| Future prospects for longevity.Crossref | GoogleScholarGoogle Scholar | 24879774PubMed |
Leigh JP, Kravitz RL, Schembri M, Samuels SJ, Mobley S (2002) Physician career satisfaction across specialties. Archives of Internal Medicine 162, 1577–1584.
| Physician career satisfaction across specialties.Crossref | GoogleScholarGoogle Scholar | 12123400PubMed |
Levy C, Palat SIT, Kramer A (2007) Physician practice patterns in nursing homes. Journal of the American Medical Directors Association 8, 558–567.
Lewis GA, Pegram RW (2002) Residential aged care and general practice: workforce demographic trends, 1984–2000. The Medical Journal of Australia 177, 84–86.
| Residential aged care and general practice: workforce demographic trends, 1984–2000.Crossref | GoogleScholarGoogle Scholar | 12098345PubMed |
Magin P, Catzikiris N, Tapley A, Morgan S, Holliday EG, Ball J, Henderson K, Elliott T, Regan C, Spike N (2017) Home visits and nursing home visits by early-career GPs: a cross-sectional study. Family Practice 34, 77–82.
| Home visits and nursing home visits by early-career GPs: a cross-sectional study.Crossref | GoogleScholarGoogle Scholar | 27629569PubMed |
McGregor MJ (2017) Promising practices in long-term residential care: where do physicians fit in (or don’t they)? Journal of Canadian Studies / Revue d’Etudes Canadiennes 50, 299–320.
| Promising practices in long-term residential care: where do physicians fit in (or don’t they)?Crossref | GoogleScholarGoogle Scholar |
McLeod H (2016) The need for palliative care in New Zealand – technical report. (Technical Advisory Services: Wellington, New Zealand) Available at https://tas.health.nz/assets/Health-of-Older-People/Technical-Report-Need-for-Palliative-Care-vF2-June-2016-H-McLeod.pdf [Verified 30 December 2019]
Mebane EW, Oman RF, Kroonen LT, Goldstein MK (1999) The influence of physician race, age, and gender on physician attitudes toward advance care directives and preference for end-of-life decision-making. Journal of the American Geriatrics Society 47, 579–591.
| The influence of physician race, age, and gender on physician attitudes toward advance care directives and preference for end-of-life decision-making.Crossref | GoogleScholarGoogle Scholar | 10323652PubMed |
Pain T, Stainkey L, Chapman S (2014) AgedCare+GP: description and evaluation of an in-house model of general practice in a residential aged-care facility. Australian Journal of Primary Health 20, 224–227.
| AgedCare+GP: description and evaluation of an in-house model of general practice in a residential aged-care facility.Crossref | GoogleScholarGoogle Scholar | 24134857PubMed |
Pearson R, Mullan J, Ujvary E, Bonney A, Dijkmans-Hadley B (2018) Australian general practitioner attitudes to residential aged care facility visiting. Health & Social Care in the Community 26, e497–e504.
| Australian general practitioner attitudes to residential aged care facility visiting.Crossref | GoogleScholarGoogle Scholar |
Phillips J, Davidson PM, Willcock S (2009) An insight into the delivery of a palliative approach in residential aged care: the general practitioner perspective. Journal of Applied Gerontology 28, 395–405.
| An insight into the delivery of a palliative approach in residential aged care: the general practitioner perspective.Crossref | GoogleScholarGoogle Scholar |
Rhee JJ, Zwar N, Vagholkar S, Dennis S, Broadbent AM, Mitchell G (2008) Attitudes and barriers to involvement in palliative care by Australian urban general practitioners. Journal of Palliative Medicine 11, 980–985.
| Attitudes and barriers to involvement in palliative care by Australian urban general practitioners.Crossref | GoogleScholarGoogle Scholar | 18788958PubMed |
Robinson J, Boyd M, O’Callaghan A, Laking G, Frey R, Raphael D, Snow B, Gott M (2015) The extent and cost of potentially avoidable admissions in hospital inpatients with palliative care needs: a cross-sectional study. BMJ Supportive & Palliative Care 5, 266–272.
| The extent and cost of potentially avoidable admissions in hospital inpatients with palliative care needs: a cross-sectional study.Crossref | GoogleScholarGoogle Scholar |
Siu AL, Beck JC (1990) Physician satisfaction with career choices in geriatrics. The Gerontologist 30, 529–534.
| Physician satisfaction with career choices in geriatrics.Crossref | GoogleScholarGoogle Scholar | 2394389PubMed |
Slort W, Schweitzer BP, Blankenstein AH, Abarshi EA, Riphagen I, Echteld MA, Aaronson NK, van der Horst H, Deliens L (2011) Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review. Palliative Medicine 25, 613–629.
| Perceived barriers and facilitators for general practitioner-patient communication in palliative care: a systematic review.Crossref | GoogleScholarGoogle Scholar | 21273221PubMed |
Stokoe A, Hullick C, Higgins I, Hewitt J, Armitage D, O’Dea I (2016) Caring for acutely unwell older residents in residential aged-care facilities: perspectives of staff and general practitioners. Australasian Journal on Ageing 35, 127–132.
| Caring for acutely unwell older residents in residential aged-care facilities: perspectives of staff and general practitioners.Crossref | GoogleScholarGoogle Scholar | 26059684PubMed |
Thomas D (2006) A general inductive approach for analyzing qualitative evaluation data. American Journal of Evaluation 27, 237–246.
| A general inductive approach for analyzing qualitative evaluation data.Crossref | GoogleScholarGoogle Scholar |
Tuckett A, Parker D, Clifton K, Glaetzer K, Greeve K, Israel F, Jenkin P, Prior T, Reymond E, Walker H (2014) What general practitioners said about the palliative care case conference in residential aged care: an Australian perspective. Part 1. Progress in Palliative Care 22, 61–68.
| What general practitioners said about the palliative care case conference in residential aged care: an Australian perspective. Part 1.Crossref | GoogleScholarGoogle Scholar |