Carers of older Australians: unmet support needs and carer well-being
Jeromey Temple
A C , Briony Dow A B and Leona Kosowicz B
+ Author Affiliations
- Author Affiliations
A Demography and Ageing Unit, Melbourne School of Population and Global Health, The University of Melbourne, 207 Bouverie Street, Carlton, Vic. 3053, Australia.
B National Ageing Research Institute, 34–54 Poplar Road, Parkville, Vic. 3052, Australia.
C Corresponding author. Email: Jeromey.Temple@unimelb.edu.au
Australian Journal of Primary Health 27(3) 178-185 https://doi.org/10.1071/PY20161
Submitted: 2 July 2020 Accepted: 12 December 2020 Published: 17 May 2021
Abstract
Primary carers play an important role in supporting the Australian Government’s policy of ‘ageing in place’ or encouraging people to receive care in their own homes or communities rather than in institutions. Supporting carers in their role is therefore an important aspect of the policy’s success. Despite numerous programs in place, this study finds that among carers of older Australians, a relatively high proportion (39%) cite unmet needs in their carer role, including a need for financial support, physical assistance, emotional support, improvement in carer health and more respite care. Concerningly, unmet support needs were shown to be strongly associated with markers of poor carer well-being, including an almost 2-fold increase in odds of poor carer satisfaction (odds ratio (OR) 1.77, 95% confidence interval (CI) 1.24–2.51), a 4- to 5-fold increase in the odds of changes to physical and emotional well-being (OR 5.29, 95% CI 3.83–7.31), deterioration in financial situation (OR 4.60, 95% CI 3.26–6.48) and strained carer–recipient relationship (OR 3.79, 95% CI 2.39–6.01).
Keywords: aged care, caregivers, informal care, unmet needs.
References
Australian Bureau of Statistics (ABS) (2019a) Disability, ageing and carers, Australia: summary of findings, 2018. ABS, Canberra, Australia.Australian Bureau of Statistics (ABS) (2019b) Microdata: disability, ageing and carers, Australia, 2018. ABS, Canberra, Australia.
Bom J, Bakx P, Schut F, van Doorslaer E (2019) The impact of informal caregiving for older adults on the health of various types of caregivers: a systematic review. The Gerontologist 59, e629–e642.
Brijnath B (2012) Why does institutionalised care not appeal to Indian families? Legislative and social answers from urban India. Ageing and Society 32, 697–717.
| Why does institutionalised care not appeal to Indian families? Legislative and social answers from urban India.Crossref | GoogleScholarGoogle Scholar |
Chiao C-Y, Wu H-S, Hsiao C-Y (2015) Caregiver burden for informal caregivers of patients with dementia: a systematic review. International Nursing Review 62, 340–350.
| Caregiver burden for informal caregivers of patients with dementia: a systematic review.Crossref | GoogleScholarGoogle Scholar | 26058542PubMed |
Daniels D (2011) Social security payments for the aged, people with disabilities and carers 1901 to 2010. (Parliament of Australia: Canberra, ACT, Australia) Available at https://www.aph.gov.au/About_Parliament/Parliamentary_Departments/Parliamentary_Library/pubs/BN/1011/SSPayments1 [Verified 20 June 2020]
Deloitte Access Economics (2015) The economic value of informal care in 2015: report for Carers Australia. Deloitte Access Economics, Canberra, ACT, Australia.
Essue BM (2010) Informal care and the self-management partnership: implications for Australian health policy and practice. Australian Health Review 34, 414–422.
| Informal care and the self-management partnership: implications for Australian health policy and practice.Crossref | GoogleScholarGoogle Scholar | 21108901PubMed |
FlagPost (2014) Pension indexation: a brief history. (Parliament of Australia: Canberra, ACT, Australia) Available at https://www.aph.gov.au/About_Parliament/Parliamentary_Departments/Parliamentary_Library/FlagPost/2014/April/Pension-indexation [Verified 20 June 2020]
Gaugler JE, Anderson KA, Leach CR, Smith CD, Schmitt FA, Mendiondo M (2004) The emotional ramifications of unmet need in dementia caregiving. American Journal of Alzheimer’s Disease and Other Dementias 19, 369–380.
| The emotional ramifications of unmet need in dementia caregiving.Crossref | GoogleScholarGoogle Scholar | 15633946PubMed |
Gaugler JE, Yu F, Krichbaum K, Wyman J (2009) Predictors of nursing home admission for persons with dementia. Medical Care 47, 191–198.
| Predictors of nursing home admission for persons with dementia.Crossref | GoogleScholarGoogle Scholar | 19169120PubMed |
Greenwood N, Smith R (2016) The oldest carers: a narrative review and synthesis of the experiences of carers aged over 75 years. Maturitas 94, 161–172.
| The oldest carers: a narrative review and synthesis of the experiences of carers aged over 75 years.Crossref | GoogleScholarGoogle Scholar | 27823738PubMed |
Hill T, Thomson C, Raven M, Wong M, Cass B, Yeandle S, Buckner L (2016) Carers and social inclusion. Social Policy Research Centre, Sydney, Australia.
Larkin M, Henwood M, Milne A (2019) Carer‐related research and knowledge: findings from a scoping review. Health & Social Care in the Community 27, 55–67.
| Carer‐related research and knowledge: findings from a scoping review.Crossref | GoogleScholarGoogle Scholar |
Longacre ML, Valdmanis VG, Handorf EA, Fang CY (2017) Work impact and emotional stress among informal caregivers for older adults. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences 72, 522–531.
Moussa M (2019) The relationship between elder care-giving and labour force participation in the context of policies addressing population ageing: a review of empirical studies published between 2006 and 2016. Ageing and Society 39, 1281–1310.
| The relationship between elder care-giving and labour force participation in the context of policies addressing population ageing: a review of empirical studies published between 2006 and 2016.Crossref | GoogleScholarGoogle Scholar |
Neville C, Beattie E, Fielding E, MacAndrew M (2015) Literature review: use of respite by carers of people with dementia. Health & Social Care in the Community 23, 51–63.
| Literature review: use of respite by carers of people with dementia.Crossref | GoogleScholarGoogle Scholar |
Polacsek M, Goh A, Malta S, Hallam B, Gahan L, Cooper C, Low LF, Livingston G, Panayiotou A, Loi S, Omori M, Savvas S, Batchelor F, Ames D, Doyle C, Scherer S, Dow B (2020) ‘I know they are not trained in dementia’: addressing the need for specialist dementia training for home care workers. Health & Social Care in the Community 28, 475–484.
| ‘I know they are not trained in dementia’: addressing the need for specialist dementia training for home care workers.Crossref | GoogleScholarGoogle Scholar |
Principi A, Lamura G, Sirolla C, Mestheneos L, Bien B, Brown J, Krevers B, Malchiorre M, Doehner H (2014) Work restrictions experienced by midlife family care-givers of older people: evidence from six European countries. Ageing and Society 34, 209–231.
| Work restrictions experienced by midlife family care-givers of older people: evidence from six European countries.Crossref | GoogleScholarGoogle Scholar |
Shanley C, Boughtwood D, Adams J, Santalucia Y, Kyriazopoulos H, Pond D, Rowland J (2012) A qualitative study into the use of formal services for dementia by carers from culturally and linguistically diverse (CALD) communities. BMC Health Services Research 12, 354
| A qualitative study into the use of formal services for dementia by carers from culturally and linguistically diverse (CALD) communities.Crossref | GoogleScholarGoogle Scholar | 23043332PubMed |
Steering Committee for the Review of Government Service Provision (SCRGSP) (2018) Interventions to support carers of people with dementia. Productivity Commission, Canberra, Australia.
Sury L, Burns K, Brodaty H (2013) Moving In adjustment of people living with dementia going into a nursing home and their families. International Psychogeriatrics 25, 867–876.
| Moving In adjustment of people living with dementia going into a nursing home and their families.Crossref | GoogleScholarGoogle Scholar | 23425369PubMed |
Temple JB, Dow B (2018) The unmet support needs of carers of older Australians: prevalence and mental health. International Psychogeriatrics 30, 1849–1860.
| The unmet support needs of carers of older Australians: prevalence and mental health.Crossref | GoogleScholarGoogle Scholar | 29798735PubMed |
Temple JB, Wilson T, Taylor A, Kelaher M, Eades S (2020) Ageing of the Aboriginal and Torres Strait Islander population: numerical, structural, timing and spatial aspects. Australian and New Zealand Journal of Public Health 44, 271–278.
| Ageing of the Aboriginal and Torres Strait Islander population: numerical, structural, timing and spatial aspects.Crossref | GoogleScholarGoogle Scholar | 32510736PubMed |
Vecchio N (2008) The use of support systems by informal caregivers: an Australian experience. Australian Journal of Primary Health 14, 27–34.
| The use of support systems by informal caregivers: an Australian experience.Crossref | GoogleScholarGoogle Scholar |
Wilson T, McDonald P, Temple J, Brijnath B, Utomo B (2020) Past and projected growth of Australia’s older migrant populations Genus 76, 20
| Past and projected growth of Australia’s older migrant populationsCrossref | GoogleScholarGoogle Scholar | 32834077PubMed |
