Incorporating an advance care planning screening tool into routine health assessments with older people
Abigail E. Franklin A , Joel Rhee B , Bronwyn Raymond C and Josephine M. Clayton A C D EA Palliative and Supportive Care Service, HammondCare, Greenwich Hospital, Sydney, NSW 2065, Australia.
B School of Medicine, University of Wollongong, Australia and General Practitioner, Centre for Positive Ageing and Care, HammondCare, Hammondville, Sydney, NSW 2170, Australia.
C Centre for Learning and Research in Palliative Care, HammondCare, Greenwich Hospital, Sydney, NSW 2065, Australia.
D Northern Clinical School and Kolling Institute, The University of Sydney, Sydney, NSW 2065, Australia.
E Corresponding author. Email: josephine.clayton@sydney.edu.au
Australian Journal of Primary Health 26(3) 240-246 https://doi.org/10.1071/PY19195
Submitted: 9 October 2019 Accepted: 16 January 2020 Published: 24 April 2020
Journal Compilation © La Trobe University 2020 Open Access CC BY-NC-ND
Abstract
General practice is arguably the ideal setting to initiate advance care planning (ACP), but there are many barriers. This pilot study was designed to assess the feasibility, acceptability and perceived utility of a nurse-facilitated screening interview to initiate ACP with older patients in general practice. Patients were recruited from four general practices in Sydney, Australia. General practice nurses administered the ACP screening interview during routine health assessments. Patients and nurses completed a follow-up questionnaire consisting of questions with Likert responses, as well as open-ended questions. Descriptive statistics and content analysis were used to analyse the data. Twenty-four patients participated; 17 completed the follow-up questionnaire. All patients found the ACP screening interview useful and most felt it would encourage them to discuss their wishes further with their family and general practitioner. Several patients were prompted to consider legally appointing their preferred substitute decision-maker. All six participating nurses found the screening interview tool useful for initiating discussions about ACP and substitute decision-making. This nurse facilitated screening tool provides a simple, acceptable and feasible approach to introducing ACP to older general practice patients during routine health assessments.
Additional keywords: aged, general practice, health assessment, primary health care, screening tool.
References
Abel J, Pring A, Rich A, Maliq T, Verne J (2013) The impact of advance care planning on place of death, a hospice retrospective cohort study. BMJ Supportive & Palliative Care 3, 168–173.| The impact of advance care planning on place of death, a hospice retrospective cohort study.Crossref | GoogleScholarGoogle Scholar |
Bergman-Evans B, Kuhnel L, McNitt D, Myers S (2008) Uncovering beliefs and barriers: staff attitudes related to advance directives. American Journal of Hospice and Palliative Medicine 25, 347–353.
| Uncovering beliefs and barriers: staff attitudes related to advance directives.Crossref | GoogleScholarGoogle Scholar | 18812620PubMed |
Blackford J, Street A (2012) Is an advance care planning model feasible in community palliative care? A multi-site action research approach. Journal of Advanced Nursing 68, 2021–2033.
| Is an advance care planning model feasible in community palliative care? A multi-site action research approach.Crossref | GoogleScholarGoogle Scholar | 22117569PubMed |
Boddy J, Chenoweth L, McLennan V, Daly M (2013) It’s just too hard! Australian health care practitioner perspectives on barriers to advanced care planning. Australian Journal of Primary Health 19, 38–45.
| It’s just too hard! Australian health care practitioner perspectives on barriers to advanced care planning.Crossref | GoogleScholarGoogle Scholar | 22951247PubMed |
Brinkman-Stoppelenburg A, Rietjiens JAC, van der Heide A (2014) The effects of advance care planning on end-of-life care: a systematic review. Palliative Medicine 28, 1000–1025.
| The effects of advance care planning on end-of-life care: a systematic review.Crossref | GoogleScholarGoogle Scholar | 24651708PubMed |
Cartwright CM, Parker MH (2004) Advance care planning and end of life decision making. Australian Family Physician 33, 815–819.
Cheang F, Finnegan T, Hession A, Clayton JM (2014) A single-centre cross-sectional analysis of advance care planning among elderly inpatients. Internal Medicine Journal 44, 967–974.
| A single-centre cross-sectional analysis of advance care planning among elderly inpatients.Crossref | GoogleScholarGoogle Scholar | 25109312PubMed |
De Vleminck A, Pardon K, Beernaert K, Deschepper R, Houttekier D, Van Audenhove C, Deliens L, Vander Stichele R (2014) Barriers to advance care planning in cancer, heart failure and dementia patients: a focus study group on general practitioners’ views and experiences. PLoS One 9, e84905
| Barriers to advance care planning in cancer, heart failure and dementia patients: a focus study group on general practitioners’ views and experiences.Crossref | GoogleScholarGoogle Scholar | 24465450PubMed |
Detering KM, Hancock AD, Reade MC, Silvester W (2010) The impact of advance care planning on end-of-life care in elderly patients: randomised control trial. BMJ (Clinical Research Ed.) 340, c1345
| The impact of advance care planning on end-of-life care in elderly patients: randomised control trial.Crossref | GoogleScholarGoogle Scholar |
Hinders D (2012) Advance directives, limitations to completion. The American Journal of Hospice & Palliative Care 29, 286–289.
| Advance directives, limitations to completion.Crossref | GoogleScholarGoogle Scholar |
Houben CHM, Spruit MA, Groene MTJ, Wouters EFM, Janssen DJA (2014) Efficacy of advance care planning: a systematic review and meta-analysis. Journal of the American Medical Directors Association 15, 477–489.
Lund S, Richarson A, May C (2015) Barriers to advance care planning at the end of life: an explanatory systematic review of implementation studies. PLoS One 10, e0116629
| Barriers to advance care planning at the end of life: an explanatory systematic review of implementation studies.Crossref | GoogleScholarGoogle Scholar | 26379126PubMed |
Royal Australian College of General Practitioners (RACGP) (2012) Position Statement: Advance care planning should be incorporated into routine general practice. Melbourne: RACGP; September 2012.
Rhee JJ, Zwar NA, Kemp LA (2012) Uptake and implementation of Advance Care Planning in Australia: findings of key informant interviews. Australian Health Review 36, 98–104.
| Uptake and implementation of Advance Care Planning in Australia: findings of key informant interviews.Crossref | GoogleScholarGoogle Scholar | 22513028PubMed |
Rhee JJ, Zwar NA, Kemp LA (2013) Why are advance care planning decisions not implemented? Insights from interviews with Australian general practitioners. Journal of Palliative Medicine 16, 1197–1204.
| Why are advance care planning decisions not implemented? Insights from interviews with Australian general practitioners.Crossref | GoogleScholarGoogle Scholar | 23964638PubMed |
Schonfeld TL, Stevens EA, Lampman MA, Lyons WL (2012) Assessing challenges in End-of-Life conversations with elderly patients with multiple comorbidities. The American Journal of Hospice & Palliative Care 29, 260–267.
| Assessing challenges in End-of-Life conversations with elderly patients with multiple comorbidities.Crossref | GoogleScholarGoogle Scholar |
Silvester W, Parslow RA, Lewis VJ, Fullam RS, Sjanta R, Jackson L, White V, Hudson R (2013) Development and evaluation of an aged care specific advance care plan. BMJ Supportive & Palliative Care 3, 188–195.
| Development and evaluation of an aged care specific advance care plan.Crossref | GoogleScholarGoogle Scholar |
The Advance Project (2018) Initiating advance care planning and palliative care through training and resources for primary care clinicians. Toolkit and multicomponent training program for primary care clinicians. (The Advance Project: Sydney, NSW, Australia) Available at www.theadvanceproject.com.au [Verified 27 March 2020]
Tierney WM, Dexter PR, Gramelspacher GP, Perkins AJ, Zhou X-H, Wolinsky FD (2001) The effect of discussions about advance directives on patients’ satisfaction with primary care. Journal of General Internal Medicine 16, 32–40.
Working Group of the Clinical, Technical and Ethical Principal Committee of the Australian Health Ministers’ Advisory Council (2011) A National Framework for Advance Care Directives. Australian Health Ministers’ Advisory Council, Canberra, ACT, Australia.