Achieving Control over Sleepiness in Narcolepsy

Abstract

Using unstructured interviews, and informed by a grounded theory approach, this qualitative study sought to conceptualise adaptive processes that people with narcolepsy use in coping with their daytime sleepiness. From the interview data of 20 informants, two conceptual frameworks were developed. The core category that emerged was control. One conceptual framework considered factors that affect success in controlling sleep-wake behaviour in narcolepsy, while another focused on behavioural strategies. A descriptive narrative illustrated these frameworks and included quotes indicative of features relevant to coping with sleepiness. This article provides a more positive, person-orientated dimension than may be found in quantitative studies of the implications of this disorder. The findings are potentially an important resource from which professionals can draw in providing therapy to people with a disorder of daytime sleepiness.