Free Standard AU & NZ Shipping For All Book Orders Over $80!
Register      Login
Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH ARTICLE

A collaborative approach to support people with a disability living in Australian group homes during the COVID-19 pandemic: a case study

James Everingham A * , Sarah Todd A , Sarita Y. Lo B and Vasi Naganathan B
+ Author Affiliations
- Author Affiliations

A Aged Health, Chronic Care and Rehabilitation Services, Concord Repatriation General Hospital, Hospital Road, Concord, NSW, Australia.

B Centre for Education and Research on Ageing, Concord Repatriation General Hospital and Concord Clinical School, Faculty of Medicine and Health, University of Sydney, Sydney, NSW, Australia.


Australian Health Review 48(5) 585-591 https://doi.org/10.1071/AH24070
Submitted: 23 February 2024  Accepted: 22 August 2024  Published: 16 September 2024

© 2024 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of AHHA.

Abstract

In this case study we describe how Sydney Local Health District (SLHD) Disability Inclusion and Advice Service (DIAS) provided support to disability group homes during the COVID-19 Delta and Omicron waves. The study provides insights into group home providers’ experience of supports implemented by SLHD and other stakeholders. A mixed method approach was undertaken that included analysing data from a database and electronic medical records and a survey of disability group home managers. DIAS developed a range of processes to support prevention, outbreak preparedness and response. This included developing a Disability Shared Living COVID-19 Pathway, engaging with group home providers through a fortnightly Community of Practice, assisting with improving vaccination status and procuring personal protective equipment. During an outbreak DIAS provided a 24 h, 7 days per week on call support, coordinated outbreak management team meetings and collaborated with several internal and external stakeholders. SLHD infection prevention and control nurses were recruited to undertake a process of reviewing outbreak management plans and providing support during an outbreak. Most disability providers (86%) reported that they felt very prepared to manage outbreaks at the time of the survey (August 2022) compared with the pre-Delta wave, for which 36% reported feeling ‘not prepared’. The proportion who rated the support from the stakeholders as very supportive/supportive was as follows: SLHD (100%), NSW Health (64%), National Disability Insurance Agency (50%) and National Disability Insurance Scheme Quality & Safeguards Commission (37%). Our case study provides insights into the support that LHDs can provide to disability homes in response to future outbreaks.

Keywords: collaborative approach, COVID-19, disability, disease outbreak, group home, intellectual disability, local health district, NDIS, pandemic.

References

Cuypers M, Koks-Leensen MCJ, Schalk BWM, Bakker-van Gijssel EJ, Leusink GL, Naaldenberg J. All-cause and cause-specific mortality among people with and without intellectual disabilities during the COVID-19 pandemic in the Netherlands: a population-based cohort study. Lancet Public Health 2023; 8(5): e356-e363.
| Crossref | Google Scholar | PubMed |

Gleason J, Ross W, Fossi A, Blonsky H, Tobias J, Stephens M. The devastating impact of COVID-19 on individuals with intellectual disabilities in the United States. NEJM Catalyst 2021; 2(2): 1-12.
| Crossref | Google Scholar |

Turk MA, Landes SD, Formica MK, Goss KD. Intellectual and developmental disability and COVID-19 case-fatality trends: TriNetX analysis. Disabil Health J 2020; 13(3): 100942.
| Crossref | Google Scholar | PubMed |

McAllister A, Dickinson H, Huska M, Devine A, Dimov S, Kavanagh A. ‘That was all over the shop’: Exploring the COVID-19 response in disability residential settings. Aust J Public Adm 2023; 1-17.
| Crossref | Google Scholar |

Australian Government Department of Health and Aged Care. Weekly COVID-19 reporting. Canberra: Commonwealth of Australia; 2023. Available at https://www.health.gov.au/health-alerts/covid-19/weekly-reporting?language=und#cases-in-ndis-services [verified 17 August 2023].

Australian Bureau of Statistics (ABS). COVID-19 Mortality in Australia: Deaths registered until 30 September 2023. Provisional deaths data for measuring changes in patterns of mortality during the COVID-19 pandemic in Australia. Canberra: ABS; 2023. Available at https://www.abs.gov.au/articles/covid-19-mortality-australia-deaths-registered-until-30-september-2023 [verified 24 May 2024].

Kavanagh AM, Dimov S, Shield M, McAllister A, Dickinson H, Kavenagh M. Disability Support Workers: The Forgotten Workforce in COVID-19. Melbourne: University of Melbourne; 2020. 10.26188/12756428 Available at https://mspgh.unimelb.edu.au/centres-institutes/centre-for-health-equity/about-us/forgotten-workforce-in-covid-19 [verified 17 August 2023].

Royal Commission into Violence, Abuse, Neglect and Exploitation of People With Disability. The impact of and responses to the Omicron wave of the COVID-19 pandemic for people with disability Issues paper. Canberra: Commonwealth of Australia; 25 March 2022. Available at https://disability.royalcommission.gov.au/publications/impact-and-responses-omicron-wave-covid-19-pandemic-people-disability-issues-paper [verified 17 August 2023].

McCambridge J, Witton J, Elbourne DR. Systematic review of the Hawthorne effect: New concepts are needed to study research participation effects. Clin Epidemiol 2014; 67(3): 267-77.
| Crossref | Google Scholar | PubMed |