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Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH ARTICLE

Partnering with consumers and practising clinicians to establish research priorities for public hospital maternity services

Roni Cole https://orcid.org/0000-0001-5881-0311 A * , Lauren Kearney https://orcid.org/0000-0003-0299-6537 B C , Bec Jenkinson https://orcid.org/0000-0001-6723-8898 D , Imogen Kettle A , Beng Ng A , Leonie Callaway https://orcid.org/0000-0002-0137-9935 B and Rachael Nugent https://orcid.org/0000-0001-7366-042X A
+ Author Affiliations
- Author Affiliations

A Women’s and Children’s Services, Sunshine Coast Hospital and Health Service, Qld, Australia.

B Women’s and Newborn Services, Metro North Health, Qld, Australia.

C School of Nursing, Midwifery and Social Work, The University of Queensland, Qld, Australia.

D School of Public Health, The University of Queensland, Qld, Australia.

* Correspondence to: roni.cole@health.qld.gov.au

Australian Health Review 48(3) 321-331 https://doi.org/10.1071/AH23222
Submitted: 29 August 2023  Accepted: 7 April 2024  Published: 6 May 2024

© 2024 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of AHHA.

Abstract

Objective

An innovative approach by two Queensland health services was taken to establish a shared maternity services’ research agenda by partnering with consumers and clinicians. The objective was to set the top five research priorities to ensure that the future direction of maternity research was relevant to end-user and organisational needs.

Methods

A modified James Lind Alliance (JLA) methodology was applied between August 2022 and February 2023 across two south-east Queensland Health Services which included five participating maternity units and involved partnership with consumers, healthcare professionals and clinician researchers. The reporting guideline for priority setting of health research (REPRISE) was followed.

Results

There were 192 respondents to the initial harvesting survey, generating 461 research suggestions. These were aggregated into 122 unique questions and further summarised into a list of 44 research questions. The 157 eligible interim prioritisation survey respondents short-listed 27 questions ready for ranking at a final consensus workshop. The top five question themes were: (1) maternity care experience, engagement and outcomes of priority populations; (2) increasing spontaneous vaginal birth; (3) experiences and perceptions of woman/person-centred care; (4) best practice care during the ‘fourth’ trimester; and (5) antibiotic use during labour and birth.

Conclusion

Applying an adapted JLA framework can successfully shape and establish a research agenda within Australian health services, through partnership with consumers and practicing clinicians. This is a transparent process that strengthens the legitimacy and credibility of research agendas, and it can form a replicable framework for other settings.

Keywords: consensus workshop, consumer, decision making, health service, James Lind Alliance, maternity care, research agenda, research prioritisation.

References

Scott IA, Glasziou PP. Improving the effectiveness of clinical medicine: the need for better science. Med J Aust 2012; 196: 304-8.
| Crossref | Google Scholar | PubMed |

Graham L, Illingworth BJG, Showell M, et al. Research priority setting in women’s health: a systematic review. BJOG 2020; 127: 694-700.
| Crossref | Google Scholar | PubMed |

Ioannidis JP. Why most clinical research is not useful. PLoS Med 2016; 13: e1002049.
| Crossref | Google Scholar | PubMed |

Wager E, Williams P. “Hardly worth the effort”? Medical journals’ policies and their editors’ and publishers’ views on trial registration and publication bias: quantitative and qualitative study. BMJ 2013; 347: f5248.
| Crossref | Google Scholar | PubMed |

Symons T, Bowden J, McKenzie A, et al. Development of the Consumer Involvement & Engagement Toolkit: a digital resource to build capacity for undertaking patient-centred clinical trials in Australia. Public Health Res Pract 2023; 33: e32122209.
| Crossref | Google Scholar | PubMed |

Bryant J, Sanson-Fisher R, Walsh J, et al. Health research priority setting in selected high income countries: a narrative review of methods used and recommendations for future practice. Cost Eff Resour Alloc 2014; 12: 23.
| Crossref | Google Scholar | PubMed |

Australian Commission on Safety and Quality in Health Care. National Clinical Trials Governance Framework and User Guide. Sydney: ACSQHC; 2022. Available at https://www.safetyandquality.gov.au/sites/default/files/2022-05/final_design_-_national_clinical_trials_governance_framework_and_user_guide_-_30_may_2022.pdf [accessed April 2023].

Consumers Health Forum of Australia. Statement on Consumer and Community Involvement in Health and Medical Research. In: Consumers Health Forum of Australia, editor. National Health and Medical Research Council; 2016.

Anderst A, Conroy K, Fairbrother G, Hallam L, McPhail A, Taylor V. Engaging consumers in health research: a narrative review. Aust Health Rev 2020; 44(5): 806-13.
| Crossref | Google Scholar | PubMed |

10  Cheyne H, McCourt C, Semple K. Mother knows best: developing a consumer led, evidence informed, research agenda for maternity care. Midwifery 2013; 29(6): 705-12.
| Crossref | Google Scholar | PubMed |

11  James Lind Alliance. The James Lind Alliance guidebook. Southampton: JLA; 2021. Available at https://www.jla.nihr.ac.uk/jla-guidebook/downloads/JLA-Guidebook-Version-10-March-2021.pdf [accessed July 2022].

12  Tong A, Synnot A, Crowe S, et al. Reporting guideline for priority setting of health research (REPRISE). BMC Med Res Methodol 2019; 19: 243.
| Crossref | Google Scholar | PubMed |

13  Centre of Research Excellence in Stillbirth. Research. Available at https://stillbirthcre.org.au/researchers-clinicians/research-program-areas/ [accessed March 2023].