Register      Login
Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH ARTICLE

Establishment of the first Australian public and health-professional palliative care advice service: exploring caller needs and gaps in care

David J. T. Marco https://orcid.org/0000-0001-8634-3036 A B * , Esther McMillan-Drendel C , Jennifer A. M. Philip https://orcid.org/0000-0002-3312-0645 B D , Theresa Williamson E and Brian Le C F
+ Author Affiliations
- Author Affiliations

A Centre for Palliative Care, St. Vincent’s Hospital Melbourne, Fitzroy, Vic., Australia.

B Department of Medicine, University of Melbourne, Parkville, Vic., Australia.

C Palliative Care, The Royal Melbourne Hospital, Parkville, Vic., Australia.

D Palliative Care, Victorian Comprehensive Cancer Centre, Melbourne, Vic., Australia.

E Palliative Care, Department of Health and Human Services, Melbourne, Vic., Australia.

F Palliative Care, Peter MacCallum Cancer Centre, Melbourne, Vic., Australia.

* Correspondence to: david.marco@svha.org.au

Australian Health Review 47(5) 569-573 https://doi.org/10.1071/AH23108
Submitted: 23 May 2023  Accepted: 26 June 2023   Published: 30 July 2023

© 2023 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of AHHA.

Abstract

This study explores and describes the state-wide needs of the first 1000 calls to the newly established Victorian Palliative Care Advice Service (PCAS). A retrospective analysis investigated calls from the Victorian general public (n = 618 calls) and healthcare professionals (n = 382 calls) to PCAS between 26 May 2020 and 24 October 2022. Caller demographics, disease type, reason for call, and perceived utility of service were described. Most calls were from members of the public (62%) and related to malignant conditions (41%). Regional/rural clients comprised 45% of all calls to the service, of which half (50%) were health professionals seeking advice on symptom management and medication. One-third (29.3%) of all calls from health professionals were escalated to a palliative care medical consultant. PCAS prevented calls to emergency services in 10% of cases, and 82% of callers reported their issue was ‘very much’ or ‘completely’ addressed by PCAS. PCAS was shown to be frequently used by the public and healthcare professionals supporting patients with advanced, life-limiting illnesses. The service provided a solution without requiring complex technology, delivering a rapid connection for consumers with specialist palliative care expertise that might otherwise be unavailable, particularly in regional areas.

Keywords: advice, health professional, health services research, needs, palliative care, population health, telehealth.

References

Davis MP, Temel JS, Balboni T, Glare P. A review of the trials which examine early integration of outpatient and home palliative care for patients with serious illnesses. Ann Palliat Med 2015; 4(3): 99-121.
| Crossref | Google Scholar |

Roberts B, Robertson M, Ojukwu EI, Wu DS. Home Based Palliative Care: Known Benefits and Future Directions. Curr Geriatr Rep 2021; 10(4): 141-7.
| Crossref | Google Scholar |

Australian Bureau of Statistics. Location: Census; 2021. Available at https://www.abs.gov.au/statistics/people/people-and-communities/location-census/latest-release [cited 11 October 2022].

Lynch S. Hospice and Palliative Care Access Issues in Rural Areas. Am J Hosp Palliat Med 2013; 30(2): 172-7.
| Crossref | Google Scholar |

Fink RM, Oman KS, Youngwerth J, Bryant LL. A Palliative Care Needs Assessment of Rural Hospitals. J Palliat Med 2013; 16(6): 638-44.
| Crossref | Google Scholar |

Sutradhar R, Barbera L, Seow HY. Palliative homecare is associated with reduced high- and low-acuity emergency department visits at the end of life: A population-based cohort study of cancer decedents. Palliat Med 2017; 31(5): 448-55.
| Crossref | Google Scholar |

Ziegler LE, Craigs CL, West RM, Carder P, Hurlow A, Millares-Martin P, et al. Is palliative care support associated with better quality end-of-life care indicators for patients with advanced cancer? A retrospective cohort study. BMJ Open 2018; 8(1): e018284.
| Crossref | Google Scholar |

Allen Watts K, Malone E, Dionne‐Odom JN, McCammon S, Currie E, Hicks J, et al. Can you hear me now?: Improving palliative care access through telehealth. Res Nurs Health 2021; 44(1): 226-37.
| Crossref | Google Scholar |

Jefford M, Black C, Grogan S, Yeoman G, White V, Akkerman D. Information and support needs of callers to the Cancer Helpline, The Cancer Council Victoria. Eur J Cancer Care (Engl) 2005; 14(2): 113-23.
| Crossref | Google Scholar |

10  Matthewson J, Tiplady A, Gerakios F, Foley A, Murphy E. Implementation and analysis of a telephone support service during COVID-19. Occup Med 2020; 70(5): 375-81.
| Crossref | Google Scholar |

11  Matkin W, Ordóñez-Mena JM, Hartmann-Boyce J. Telephone counselling for smoking cessation. Cochrane Database Syst Rev [5] 2019; CD002850.
| Crossref | Google Scholar |

12  Le B, Rosens E, McMillan-Drendel E, Marco D, Williamson T, Philip J. State-wide telephone support: enhanced palliative care service delivery. BMJ Support Palliat Care 2021; bmjspcare-2021-003264.
| Crossref | Google Scholar |

13  Team R Core. R: A language and environment for statistical computing. Vienna, Austria; 2013.

14  Marco DJT, Thomas K, Ivynian S, Wilding H, Parker D, Tieman J, et al. Family carer needs in advanced disease: systematic review of reviews. BMJ Support Palliat Care 2022; 12(2): 132-41.
| Crossref | Google Scholar |

15  Carr SM, Lhussier M, Wilcockson J. Transferring palliative care knowledge, evaluating the use of a telephone advice line. Int J Palliat Nurs 2008; 14(6): 303-8.
| Crossref | Google Scholar |