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Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH ARTICLE

Chronic condition management and self-management in Aboriginal communities in South Australia: outcomes of a longitudinal study

Peter W. Harvey A E , John Petkov B , Inge Kowanko C , Yvonne Helps D and Malcolm Battersby A
+ Author Affiliations
- Author Affiliations

A Margaret Tobin Centre, Flinders University, Flinders Drive, Bedford Park, SA 5042, Australia. Email: Malcolm.battersby@flinders.edu.au

B University of South Australia, Mount Gambier, SA 5290, Australia. Email: john.petkov@unisa.edu.au

C Flinders University, Flinders Drive, Bedford Park, SA 5042, Australia. Email: inge.kowanko@flinders.edu.au

D Aboriginal Health Council of SA, King William Road, Adelaide, SA 5000, Australia. Email: yvonne.helps@ahcsa.org.au

E Corresponding author. Email: peter.harvey@flinders.edu.au

Australian Health Review 37(2) 246-250 https://doi.org/10.1071/AH12165
Submitted: 3 April 2012  Accepted: 30 August 2012   Published: 1 February 2013

Abstract

Objectives. This paper describes the longitudinal component of a larger mixed methods study into the processes and outcomes of chronic condition management and self-management strategies implemented in three Aboriginal communities in South Australia. The study was designed to document the connection between the application of structured systems of care for Aboriginal people and their longer-term health status.

Methods. The study concentrated on three diverse Aboriginal communities in South Australia; the Port Lincoln Aboriginal Health Service, the Riverland community, and Nunkuwarrin Yunti Aboriginal Health Service in the Adelaide metropolitan area. Repeated-measure clinical data were collected for individual participants using a range of clinical indicators for diabetes (type 1 and 2) and related chronic conditions. Clinical data were analysed using random effects modelling techniques with changes in key clinical indicators being modelled at both the individual and group levels.

Results. Where care planning has been in place longer than in other sites overall improvements were noted in BMI, cholesterol (high density and low density lipids) and HbA1c. These results indicate that for Aboriginal patients with complex chronic conditions, participation in and adherence to structured care planning and self-management strategies can contribute to improved overall health status and health outcomes.

Conclusions. The outcomes reported here represent an initial and important step in quantifying the health benefits that can accrue for Aboriginal people living with complex chronic conditions such as diabetes, heart disease and respiratory disease. The study highlights the benefits of developing long-term working relationships with Aboriginal communities as a basis for conducting effective collaborative health research programs.

What is known about the topic? Chronic condition management and self-management programs have been available to Aboriginal people in a range of forms for some time. We know that some groups of patients are keen to engage with care planning and self-management protocols and we have anecdotal evidence of this engagement leading to improved quality of life and health outcomes for Aboriginal people.

What does this paper add? This paper provides early evidence of sustained improvement over time for a cohort of Aboriginal people who are learning to deal with a range of chronic illnesses through accessing structured systems of support and care.

What are the implications for practitioners? This longitudinal evidence of improved outcomes for Aboriginal people is encouraging and should lead on to more definitive studies of outcomes accruing for people engaged in structured systems of care. Not only does this finding have implications for the overall management of chronic illness in Aboriginal communities, but it points the way to how health services might best invest their resources and efforts to improve the health status of people with chronic conditions and, in the process, close the gap between the life expectancy of Aboriginal people and that of other community groups in Australia.


References

[1]  Battersby MW. Health reform through coordinated care: SA HealthPlus. BMJ 2005; 330 662–5.
Health reform through coordinated care: SA HealthPlus.Crossref | GoogleScholarGoogle Scholar | 15775001PubMed |

[2]  Battersby MW, Harvey PW, Mills PD, Kalucy E, Pols RG, Frith PA, et al SA HealthPlus: a controlled trial of a statewide application of a generic model of chronic illness care. Milbank Quarterly 2007; 85 37–67.
SA HealthPlus: a controlled trial of a statewide application of a generic model of chronic illness care.Crossref | GoogleScholarGoogle Scholar |

[3]  Harvey PW. The impact of coordinated care: Eyre Region, South Australia. Aust J Rural Health 2001; 9 70–4.
The impact of coordinated care: Eyre Region, South Australia.Crossref | GoogleScholarGoogle Scholar |

[4]  Harvey PW. Eyre regional health service needs analysis report. Port Lincoln, SA: ERHS Board, Eyre Peninsula South Australia; 1996.

[5]  Ah Kit J, Prideaux C, Harvey PW, Collins JP, Battersby MW, Mills PD. Chronic disease self-management in Aboriginal communities: towards a sustainable program of care in rural communities. Aust J Prim Health 2003; 9 168–76.
Chronic disease self-management in Aboriginal communities: towards a sustainable program of care in rural communities.Crossref | GoogleScholarGoogle Scholar |

[6]  Battersby MW, Ah Kit J, Prideaux C, Harvey PW, Collins JP, Mills PD. Implementing the Flinders Model of self-management support with Aboriginal people who have diabetes: findings from a pilot study. Aust J Prim Health 2008; 14 66–74.
Implementing the Flinders Model of self-management support with Aboriginal people who have diabetes: findings from a pilot study.Crossref | GoogleScholarGoogle Scholar |

[7]  Fuller J, Harvey PW, Misan G. Is client centred care planning for chronic disease sustainable? Experience from rural South Australia. Health Soc Care Community 2004; 12 318–26.
Is client centred care planning for chronic disease sustainable? Experience from rural South Australia.Crossref | GoogleScholarGoogle Scholar | 15272887PubMed |

[8]  Harvey PW, Petkov J, Misan G, Warren K, Fuller J, Battersby MW, et al Self-management support and training for patients with chronic and complex conditions improves health related behaviour and health outcomes. Aust Health Rev 2008; 32 330–8.
Self-management support and training for patients with chronic and complex conditions improves health related behaviour and health outcomes.Crossref | GoogleScholarGoogle Scholar | 18447824PubMed |

[9]  PricewaterhouseCoopers. National evaluation of the Sharing Health Care initiative – final report & executive summary. Sydney: Australian Government Department of Health and Ageing; 2005.

[10]  Francis C, Feyer A, Smith BJ. Implementing chronic disease self-management in community settings: lessons from Australian demonstration projects. Aust Health Rev 2007; 31 499–509.
Implementing chronic disease self-management in community settings: lessons from Australian demonstration projects.Crossref | GoogleScholarGoogle Scholar | 17973606PubMed |

[11]  Lorig K, Sobel D, Stewart A, Brown B, Bandura A, Ritter P, et al Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care 1999; 37 5–14.
Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DyaK1MzjvFOgsA%3D%3D&md5=425f19af7a4cea7e8302797965bf65d9CAS | 10413387PubMed |

[12]  Lorig K, Holman H, Sobel D, Laurent D, Gonzales V, Minor M. Living a healthy life with chronic conditions. Palo Alto California: Bull Publishing Company; 2000.

[13]  Battersby M, Reece M, Markwick M. Partners in Health Programme. Adelaide: Flinders University; 1999.

[14]  Battersby M, Ask A, Reece M, Markwick M, Collins J. A case study using the “Problems and Goals Approach” in a Coordinated Care Trial: SA HealthPlus. Aust J Prim Health 2001; 7 45–8.
A case study using the “Problems and Goals Approach” in a Coordinated Care Trial: SA HealthPlus.Crossref | GoogleScholarGoogle Scholar |

[15]  Giles G, Malin M, Harvey PW. The Centre of Clinical Research Excellence in Aboriginal and Torres Strait Islander Health: an operational rationale and summary of early achievements. Aust J Prim Health 2006; 12 97–104.
The Centre of Clinical Research Excellence in Aboriginal and Torres Strait Islander Health: an operational rationale and summary of early achievements.Crossref | GoogleScholarGoogle Scholar |

[16]  Giles G, ed. The Centre of Clinical Research Excellence (CCRE) in Aboriginal and Torres Strait Islander Health: achievements and milestones. Adelaide: AHCSA and CRCAH; 2008.

[17]  Giles G, editor. CCRE – mapping the journey. Adelaide: Aboriginal Health Council of South Australia; 2009.

[18]  Harvey PW. Science, research and social change in Indigenous health – evolving ways of knowing. Aust Health Rev 2009; 33 628–36.
Science, research and social change in Indigenous health – evolving ways of knowing.Crossref | GoogleScholarGoogle Scholar | 20166912PubMed |

[19]  Harvey PW. Reading doctors’ writing. The International Electronic Journal of Rural and Remote Health 2004; 4 333

[20]  Smith LT. Decolonising methodologies: researching and Indigenous people. Dunedin: University of Otago Press; 1999.

[21]  Warren K, Lorig K, Coulthard F. LIFE: living improvements for everyone – a course in chronic condition self-management for Aboriginal people. 3rd ed. Whyalla: Spencer Gulf Rural Health School & Pika Wiya Health Service; 2006.

[22]  Kowanko I, Helps Y, Harvey PW, Battersby MW, McCurry B, Carbine R, et al. Chronic condition management strategies in Aboriginal communities: final report. Adelaide: Flinders University; 2012.

[23]  NHMRC. The NHMRC Road Map: a strategic framework for improving Aboriginal and Torres Strait Islander health through research. Canberra:NHMRC; 2002. Available at www.nhmrc.gov.au

[24]  NHMRC. NHMRC Road Map II: a strategic framework for improving the health of Aboriginal and Torres Strait Islander people through research. Canberra: NHMRC; 2010. Available at www.nhmrc.gov.au.

[25]  Hedeker D. A mixed-effects multinomial logistic regression model. Stat Med 2003; 22 1433–46.
A mixed-effects multinomial logistic regression model.Crossref | GoogleScholarGoogle Scholar | 12704607PubMed |

[26]  Hedeker D, Gibbons RD. Longitudinal data analysis. New Jersey: John Wiley & Sons Inc.; 2006.

[27]  Weiss R. Modeling longitudinal data. New York: Springer; 2010.

[28]  StataCorp. Stata Statistical Software. College Station, TX: Stata Corporation; 2008.

[29]  Sabia S, Elbaz A, Dugravot A, Head J, Shipley M, Hagger-Johnson G, et al Impact of smoking on cognitive decline in early old age: the Whitehall II Cohort Study. Arch Gen Psychiatry 2012;
| 22309970PubMed |

[30]  Hedeker D, Mermelstein R. Application of random-effects regression models in relapse research. Addiction 1996; 91 S211–29.
Application of random-effects regression models in relapse research.Crossref | GoogleScholarGoogle Scholar | 8997794PubMed |

[31]  Panel on Handling Missing Data in Clinical Trials. The prevention and treatment of missing data in clinical trials. Washington DC: National Academies Press; 2010.

[32]  Hojat M, Xu G. A visitor’s guide to effect sizes – statistical significance versus practical (clinical) importance of research findings. Adv Health Sci Educ Theory Pract 2004; 9 241–9.
A visitor’s guide to effect sizes – statistical significance versus practical (clinical) importance of research findings.Crossref | GoogleScholarGoogle Scholar | 15316274PubMed |

[33]  Kraemer HC, Kupfer D. Size of treatment effects and their importance to clinical research and practice. Biol Psychiatry 2006; 59 990–6.
Size of treatment effects and their importance to clinical research and practice.Crossref | GoogleScholarGoogle Scholar | 16368078PubMed |