The development and implementation of the Northern Health lung cancer digital care pathway: a case study in service change
Rachel L. Duckham A B C * , Tracey Webster A and Katharine See A DA
B
C
D
Abstract
This case study details the approach utilised to establish an easy to use, accessible and sustainable method for routine collection of Patient Reported Outcome Measures for patients newly diagnosed with lung cancer. We sought to enhance communication with patients and their families, particularly around shared decision making, their quality of life and symptoms, as well as the impacts of their care or treatment. We detail the co-design methodology utilised with consumers and healthcare providers to develop and implement a multi-lingual, fully automated digital care pathway which has been proven to be highly impactful and powerful for both healthcare providers working within the service and consumers enrolled within the digital pathway. This innovative initiative has changed the practice of the lung cancer service across a health service. Furthermore, its success has evolved the organisational strategy, to embed ‘Outcomes for Impact’ across the health service.
Keywords: care, co-design, consumer, digital care pathway, lung cancer, patient centred, patient reported outcomes, value-based healthcare.
References
1 Australian Government Cancer Australia. Lung Cancer in Australia Statisitics. 2022. Available at https://www.canceraustralia.gov.au/cancer-types/lung-cancer/statistics
2 Australian Institute of Health and Welfare. Cancer data in Australia. Canberra: AIHW; 2023. Available at https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia/contents/about
3 Wah W, Stirling RG, Ahern S, Earnest A. Forecasting of Lung Cancer Incident Cases at the Small-Area Level in Victoria, Australia. Int J Environ Res Public Health 2021; 18(10): 5069.
| Crossref | Google Scholar | PubMed |
4 Rankin NM, Collett GK, Brown CM, Shaw TJ, White KM, Beale PJ. Implementation of a lung cancer multidisciplinary team standardised template for reporting to general practitioners: a mixed-method study. BMJ Open 2017; 7(12): e018629.
| Crossref | Google Scholar |
5 Kutikova L, Bowman L, Chang S, Long SR, Obasaju C, Crown WH. The economic burden of lung cancer and the associated costs of treatment failure in the United States. Lung Cancer 2005; 50(2): 143-54.
| Crossref | Google Scholar | PubMed |
6 Goldsbury DE, Weber MF, Yap S, Rankin NM, Ngo P, Veerman L, et al. Health services costs for lung cancer care in Australia: Estimates from the 45 and Up Study. PLoS One 2020; 15(8): e0238018.
| Crossref | Google Scholar | PubMed |
7 Brocken P, Prins JB, Dekhuijzen PNR, Van der Heijden HFM. The faster the better?—A systematic review on distress in the diagnostic phase of suspected cancer, and the influence of rapid diagnostic pathways. Psychooncology 2012; 21(1): 1-10.
| Crossref | Google Scholar | PubMed |
8 Aapro M, Bossi P, Dasari A, Fallowfield L, Gascón P, Geller M, et al. Digital health for optimal supportive care in oncology: benefits, limits, and future perspectives. Support Care Cancer 2020; 28: 4589-612.
| Crossref | Google Scholar | PubMed |
9 Stoumpos AI, Kitsios F, Talias MA. Digital Transformation in Healthcare: Technology Acceptance and Its Applications. Int J Environ Res Public Health 2023; 20: 3407.
| Crossref | Google Scholar | PubMed |
10 Gjellebæk C, Svensson A, Bjørkquist C, Fladeby N, Grundén K. Management challenges for future digitalization of healthcare services. Futures 2020; 124: 102636.
| Crossref | Google Scholar |
11 Eden R, Burton-Jones A, Grant J, Collins R, Staib A, Sullivan C. Digitising an Australian university hospital: Qualitative analysis of staff-reported impacts. Aust Health Rev 2019; 44: 677-89.
| Crossref | Google Scholar |
12 Shaffer KM, Turner KL, Siwik C, Gonzalez BD, Upasani R, Glazer JV, et al. Digital health and telehealth in cancer care: a scoping review of reviews. Lancet Digit Health 2023; 5: e316-27.
| Crossref | Google Scholar | PubMed |
13 Davis SW, Oakley-Girvan I. mHealth Education Applications Along the Cancer Continuum. J Cancer Educ 2015; 30(2): 388-94.
| Crossref | Google Scholar | PubMed |
14 Denton E, Conron M. Improving outcomes in lung cancer: the value of the multidisciplinary health care team. J Multidisplinary Healthcare 2016; 9: 137-44.
| Crossref | Google Scholar | PubMed |
15 Australian Bureau of Statistics. Regional Population. 2021-2022. Available at www.abs.gov.au/statistics/people/population/regional-population/latest-release
16 Nasa P, Jain R, Juneja D. Delphi methodology in healthcare research: How to decide its appropriateness. World J Methodol 2021; 11(4): 116-29.
| Crossref | Google Scholar | PubMed |
17 Mak KS, Van Bommel AC, Stowell C, Abrahm JL, Baker M, Baldotto CS, et al. Defining a standard set of patient-centred outcomes for lung cancer. Eur Respir J 2016; 48(3): 852-60.
| Crossref | Google Scholar | PubMed |