Free Standard AU & NZ Shipping For All Book Orders Over $80!
Register      Login
Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH ARTICLE (Open Access)

Younger people with dementia registered to public mental health services in Victoria, Australia

Samantha M. Loi https://orcid.org/0000-0002-4953-4500 A B * , Dhamidhu Eratne A B C and Dennis Velakoulis A B
+ Author Affiliations
- Author Affiliations

A Neuropsychiatry Centre, Royal Melbourne Hospital, John Cade Level 2, Parkville, Vic. 3050, Australia.

B Department of Psychiatry, The University of Melbourne, Grattan Street, Parkville, 3052, Australia.

C Florey Institute of Neuroscience and Mental Health, Parkville, 3052, Australia.

* Correspondence to: Samantha.loi@unimelb.edu.au

Australian Health Review 48(4) 351-357 https://doi.org/10.1071/AH23253
Submitted: 28 November 2023  Accepted: 13 March 2024  Published: 4 April 2024

© 2024 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of AHHA. This is an open access article distributed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND)

Abstract

Objectives

Individuals living with young-onset dementia fall through the gaps of adult and geriatric services. Given that non-cognitive symptoms of dementia in younger people are often psychiatric and behavioural in nature, these people may contact mental health services. There is sparse information investigating the frequency of people with young-onset dementia who contact mental health triage in Victoria.

Methods

Triage data were obtained from the Victorian Agency for Health Information. The data contained demographics for people registered with Victorian mental health services. Consumers who had an International Classification for Diseases code for dementia and were aged less than 65 years were identified as people with young-onset dementia. Using information of the frequency of people with young-onset dementia who were registered with each area-based mental health service, population census statistics were used to make estimates of the frequency of young-onset dementia.

Results

Of the 6172 people who had a dementia diagnosis, 1020 of them were aged less than 65 years and had young-onset dementia. There were proportionally more men who had young-onset dementia compared to women. There were more people with young-onset dementia registered to rural mental health services compared to metropolitan services.

Conclusion

Findings provide important information for service planning in Victoria. Recommendations include upskilling and education for the assessment of dementia for those clinicians who work in mental health services, particularly in rural regions.

Keywords: early-onset dementia, epidemiology, mental health services, psychiatry, service provision, young-onset dementia.

References

Rossor MN, Fox NC, Mummery CJ, et al. The diagnosis of young-onset dementia. Lancet Neurol 2010; 9(8): 793-806.
| Crossref | Google Scholar | PubMed |

van de Veen D, Bakker C, Peetoom K, et al. Provisional consensus on the nomenclature and operational definition of dementia at a young age, a Delphi study. Int J Geriatr Psychiatry 2022; 37(3): 1-11.
| Crossref | Google Scholar | PubMed |

Sansoni J, Duncan C, Grootemaat P, et al. Younger Onset Dementia. Am J Alzheimers Dis Other Demen 2016; 31(8): 693-705.
| Crossref | Google Scholar | PubMed |

Cations M, Withall A, Horsfall R, et al. Why aren’t people with young onset dementia and their supporters using formal services? Results from the INSPIRED study. PLoS One 2017; 12(7): e0180935.
| Crossref | Google Scholar | PubMed |

Ducharme S, Dols A, Laforce R, et al. Recommendations to distinguish behavioural variant frontotemporal dementia from psychiatric disorders. Brain 2020; 143(6): 1632-50.
| Crossref | Google Scholar | PubMed |

Tsoukra P, Velakoulis D, Wibawa P, et al. The Diagnostic Challenge of Young-Onset Dementia Syndromes and Primary Psychiatric Diseases: Results From a Retrospective 20-Year Cross-Sectional Study. J Neuropsychiatry Clin Neurosci 2022; 34(1): 44-52.
| Crossref | Google Scholar | PubMed |

Woolley JD, Khan BK, Murthy NK, et al. The diagnostic challenge of psychiatric symptoms in neurodegenerative disease: rates of and risk factors for prior psychiatric diagnosis in patients with early neurodegenerative disease. J Clin Psychiatry 2011; 72(2): 126-33.
| Crossref | Google Scholar | PubMed |

Department of Health. Area-based services. 2021. Available at https://www.health.vic.gov.au/mental-health-services/area-based-services.

Department of Health. Client management interface/Operational Data Store (CMI/ODS). 2023. Available at https://www.health.vic.gov.au/research-and-reporting/cmiods

10  Australian Bureau of Statistics. Regional population by age and sex. Australian Bureau of Statistics; 2021.

11  Dementia Australia. Dementia prevalence data 2018-2058. Canberrra: University of Canberra; 2018.

12  Australian Institute of Health and Welfare. Younger onset dementia: new insights using linked data. Canberra: Australian Institute of Health and Welfare; 2022.

13  Carcaillon-Bentata L, Quintin C, Boussac-Zarebska M, et al. Prevalence and incidence of young onset dementia and associations with comorbidities: A study of data from the French national health data system. PLoS Med 2021; 18(9): e1003801.
| Crossref | Google Scholar | PubMed |

14  Radhamony R, Cross WM, Townsin L, et al. Perspectives of culturally and linguistically diverse (CALD) community members regarding mental health services: A qualitative analysis. J Psychiatr Ment Health Nurs 2023; 30(4): 850-64.
| Crossref | Google Scholar | PubMed |

15  Yeung M, MacFarland K, Mlilo V, et al. Patients with young-onset dementia in an older people’s mental health service. BJPsych Bull 2021; 45(2): 81-6.
| Crossref | Google Scholar | PubMed |

16  Loi SM, Walterfang M, Kelso W, et al. A description of the components of a specialist younger-onset dementia service: a potential model for a dementia-specific service for younger people. Australas Psychiatry 2021; 30: 37-40.
| Crossref | Google Scholar |