Addressing the end-of-life actions in the National Safety and Quality Health Service Standards (2nd edn): a national survey
Elise Button A B * , Sara Baniahmadi A , Shirley Chambers A and Patsy Yates A CA Centre for Healthcare Transformation, Queensland University of Technology, Level 7, Q Block, Musk Avenue, Kelvin Grove, Qld 4059, Australia.
B Cancer Care Services, Royal Brisbane and Women’s Hospital, Qld, Australia.
C Faculty of Health, Queensland University of Technology, Qld, Australia.
Australian Health Review 47(5) 574-585 https://doi.org/10.1071/AH22136
Submitted: 27 May 2022 Accepted: 9 August 2023 Published: 14 September 2023
Abstract
To describe current and planned processes and outcome measures to address implementation of the six end-of-life actions in the National Safety and Quality Health Service (NSQHS) Standards (2nd edn) and explore associated barriers and enablers.
This study used an exploratory mixed methods national survey of acute healthcare facilities between September 2018 and March 2019. This study involved public and private facilities (N = 765) that provided end-of-life care, which are required to be accredited to the NSQHS Standards. Participants include those responsible for reporting implementation of end-of-life care actions at a facility providing end-of-life care. Participants were asked what processes and outcome measures were implemented or being planned to address the end-of-life care actions, and the associated barriers and enablers.
Fifty respondents (6.5% response rate) from across Australia contributed data, reporting greater confidence in addressing Actions 5.16: Clinicians have access to Specialist Palliative Care Services; 5.17: Advance care plans can be received from patients and stored in medical records; and 5.18: Supervision and support is available for workforce providing end-of-life care. Barriers associated with the actions that were the most challenging to address included: competing clinical priorities, and insufficient resources to provide best practice end-of-life care; and the burdensome nature of conducting audits. Enablers included: (1) local, jurisdictional, and national strategic plans and policies; (2) support from Specialist Palliative Care Services; (3) access to resources and data; (4) standardised approaches to implementation and measuring outcomes; and (5) clinician, consumer and community engagement and education on end-of-life care.
Enablers and barriers in implementing the six end-of-life care actions were identified. Respondents reported that high-level support and direction, system-wide approaches, practical clinical support, and widespread community and clinician engagement would enable their facility to better address the end-of-life actions.
Keywords: acute care, end‐of‐life care, health services research, mandatory standards, measuring outcomes, national survey, palliative care, quality and safety.
References
2 Assareh H, Stubbs JM, Trinh LTT, Muruganantham P, Jalaludin B, Achat HM. Variation in hospital use at the end of life among New South Wales residents who died in hospital or soon after discharge. J Aging Health 2020; 32(7–8): 708-23.
| Crossref | Google Scholar |
3 Claessen SJJ, Francke AL, Belarbi HE, Pasman HRW, van der Putten MJA, Deliens L. A new set of quality indicators for palliative care: process and results of the development trajectory. J Pain Symptom Manage 2011; 42(2): 169-82.
| Crossref | Google Scholar |
4 Levack PA. Palliation and the caring hospital – Filling the gap. J R Coll Physicians Edinb 2014; 44(2): 98-102.
| Crossref | Google Scholar |
5 Clark D, Armstrong M, Allan A, Graham F, Carnon A, Isles C. Imminence of death among hospital inpatients: prevalent cohort study. Palliative Med 2014; 28(6): 474-9.
| Crossref | Google Scholar |
9 Australian Commission on Safety and Quality in Health Care. Delivering and supporting comprehensive end-of-life care: a user guide. Sydney: ACSQHC; 2021. Available at https://www.safetyandquality.gov.au/publications-and-resources/resource-library/delivering-and-supporting-comprehensive-end-life-care-user-guide
10 Harris PA, Taylor R, Minor BL, Elliott V, Fernandez M, O’Neal L, et al. The REDCap consortium: Building an international community of software platform partners. J Biomed Inform 2019; 95: 103208.
| Crossref | Google Scholar |
11 Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap) – A metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform 2009; 42(2): 377-81.
| Crossref | Google Scholar |
12 AIHW. Hospital resources 2016–17: Australian hospital statistics. Australian Institute of Health and Welfare; 2018. Available at https://www.aihw.gov.au/reports/hospitals/ahs-2016-17-hospital-resources/contents/table-of-contents
13 Hoddinott SN, Bass MJ. The dillman total design survey method. Can Fam Physician 1986; 32: 2366-8.
| Google Scholar |
14 Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs 2008; 62(1): 107-15.
| Crossref | Google Scholar |
15 Urbaniak GC, Plous S. Generate Numbers: Research Randomizer. 2019. Available at https://www.randomizer.org/#randomize
16 Campbell JL, Quincy C, Osserman J, Pedersen OK. Coding in-depth semistructured interviews: Problems of unitization and intercoder reliability and agreement. Sociol Methods Res 2013; 42(3): 294-320.
| Crossref | Google Scholar |
17 Clark K, Byfieldt N, Green M, Saul P, Lack J, Philips JL. Dying in two acute hospitals: would usual care meet Australian national clinical standards? Aust Health Rev 2014; 38(2): 223-9.
| Crossref | Google Scholar |
18 Milnes S, Orford NR, Berkeley L, Lambert N, Simpson N, Elderkin T, et al. A prospective observational study of prevalence and outcomes of patients with Gold Standard Framework criteria in a tertiary regional Australian Hospital. BMJ Support Palliat Care 2019; 9(1): 92-9.
| Crossref | Google Scholar |
19 Bloomer MJ, Hutchinson AM, Botti M. End-of-life care in hospital: an audit of care against Australian national guidelines. Aust Health Rev 2019; 43(5): 578-84.
| Crossref | Google Scholar |
20 Dudgeon D. The impact of measuring patient-reported outcome measures on quality of and access to palliative care. J Palliat Med 2018; 21(S1): S-76-80.
| Crossref | Google Scholar |
21 Bainbridge D, Seow H. Measuring the quality of palliative care at end of life: An overview of data sources. Healthy Aging Clin Care Elderly 2016; 8: 9-15.
| Google Scholar |
22 Barbera L, Taylor C, Dudgeon D. Why do patients with cancer visit the emergency department near the end of life? CMAJ 2010; 182(6): 563-8.
| Crossref | Google Scholar |
23 Ivers N, Jamtvedt G, Flottorp S, Young JM, Odgaard-Jensen J, French SD, et al. Audit and feedback: effects on professional practice and healthcare outcomes. Cochrane Database Syst Rev [6] 2012; CD000259.
| Crossref | Google Scholar |
24 ACSQHC. End-of-Life care audit toolkit Australia. ACSQHS; 2019. Available at https://www.safetyandquality.gov.au/our-work/end-life-care/end-life-care-audit-toolkit