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Australian Health Review Australian Health Review Society
Journal of the Australian Healthcare & Hospitals Association
RESEARCH ARTICLE (Open Access)

Voluntary assisted dying: impacts on health professionals

Geetanjali (Tanji) Lamba A B * , Camille LaBrooy F , Sophie Lewis C , Ian Olver D , Alexander Holmes E , Cameron Stewart C and Paul Komesaroff A
+ Author Affiliations
- Author Affiliations

A Monash University Faculty of Medicine, Nursing and Health Sciences, School of Public Health and Preventive Medicine, Vic, Australia.

B Northern Territory Government, PO Box 40596, Casuarina, NT 0811, Australia.

C School of Health Sciences, University of Sydney, NSW, Australia.

D Sansom Institute for Health Research, University of South Australia, SA, Australia.

E Medicine, Dentistry and Health Sciences, University of Melbourne, Vic, Australia.

F School of Social and Political Sciences, University of Melbourne, Vic, Australia.

* Correspondence to: tanji.lamba@monash.edu

Australian Health Review 48(6) 720-728 https://doi.org/10.1071/AH24142
Submitted: 22 March 2024  Accepted: 12 September 2024  Published: 15 October 2024

© 2024 The Author(s) (or their employer(s)). Published by CSIRO Publishing on behalf of AHHA. This is an open access article distributed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND)

Abstract

Objective

The introduction and implementation of voluntary assisted dying (VAD) legislation represents a major shift in Australian health policy. Given potential repercussions for health professionals, understanding how they are being affected by this legislation is important to guide future policy and legislative changes. This study aims to explore the perspectives and experiences of Australian health professionals on VAD and compare impacts on those working under different state legislation in Victoria and WA.

Methods

Data were collected using a cross-sectional survey design, targeting health professionals nationally, primarily doctors and nurses. The survey had closed and open-ended response options, was informed by previous publications and was piloted prior to further roll-out. Recruitment was via professional networks and social media. Quantitative data were descriptively analysed and qualitative data were coded using NVivo and thematically analysed.

Results

There was a final sample size of 223. Impacts on clinicians identified include inadequate remuneration, a need for ongoing support and the recognition of barriers to mandatory training.

Conclusions

Impacts on health practitioners, if not addressed, have future implications for workforce sustainability. Increasing numbers of trained VAD practitioners may enable distribution of clinical load and prevent burnout. VAD practitioners are not being appropriately remunerated, which could be addressed by introducing dedicated Medicare Benefits Schedule items for VAD. Attention should also be given to incentivising training, including continuing professional development accreditation and appropriate funding. Strategies to support staff could include debriefing, mentoring, peer support and psychological consultations.

Keywords: attitude to death, bereavement, death, end-of-life, health care reform, health policy, implementation, voluntary assisted dying.

Introduction

New legislation allowing voluntary assisted dying (VAD) passed in each Australian state and the Australian Captial Territory (ACT) between 2017 and 2024, with the Northern Territory (NT) expected to follow.1 A range of clinical health professionals, including doctors, nurses, pharmacists, care navigators and other allied health professionals, are involved in VAD care. These professionals are facing challenges as they navigate this unfamiliar area of care.1

State-specific training is mandated under legislation for VAD practitioners and, at a minimum, this provides an overview of each state’s legal VAD requirements.2 VAD practitioners may serve in three roles: consulting and coordinating practitioners assess patient eligibility, while administering practitioners may administer VAD substances. Only doctors may fulfil coordinating and consulting roles in all states, however, the ACT allows one to be a nurse practitioner. Western Australia (WA), Tasmania, Queensland and New South Wales (NSW) permit trained nurse practitioners as administering practitioners, unlike Victoria. Training varies between states, with some focusing on legislative obligations rather than clinical communication or ethics.3 Training in Holland and Belgium includes communication skills and an ethical end-of-life framework respectively.4 Non-VAD clinicians, such as junior doctors and nurses, may also receive VAD training from health services or professional organisations, although this is not legislatively mandated.5

Statewide services, including care navigators and pharmacy, receive government funding, but VAD medical practitioners lack standardised remuneration.6 Salaried doctors, such as public hospital specialists, may include VAD in their duties. Most general practitioners (GPs), however, use a fee-for-service model. Without specific VAD item numbers in the Medicare Benefits Schedule (MBS), practitioners use alternatives. Administration of VAD is specifically excluded from receiving Medicare benefits.7 Some doctors provide VAD services for free or bill patients privately. Providing compassionate and well-informed care and completing compliance paperwork can take several hours, which literature demonstrates is unsustainable if unpaid.6,8 Some doctors have expressed reluctance to privately bill VAD, considering it insensitive, although private billing will likely increase as demand grows.2 In New Zealand, practitioners can claim for assisted dying services,1 and the Netherlands compensates assisted dying physicians through patients’ health insurance.4 Studies have proposed incorporating ‘fair’ remuneration for VAD practitioners, based on services provided and time required, into the MBS.2

Doctors have found VAD processes complex and difficult to navigate.6,9 Health professionals in Australia and globally have experienced diverse emotional impacts of VAD.5,6,9,10 The education and training of many health professionals has traditionally focused on supporting or extending life; the concept of VAD can challenge this.6 Some doctors and nurses find it ‘satisfying’6 to prioritise patient autonomy and find VAD professionally rewarding.11 However, some studies find VAD prompts doctors to reflect on their existential beliefs, which can be challenging.6,9,10,12 In Victoria, doctors, nurses and allied health staff have experienced fear of conflict when their personal views differ to others in the workplace and have reported moral distress around VAD, expressing a need for psychological and educational support as a result.5 Debriefing, mentoring and peer support is currently being sought from colleagues and peers, including from a recently established national VAD organisation, Voluntary Assisted Dying Australia and New Zealand (VADANZ).13,14

There is limited evidence around the adequacy of training, support and remuneration for Australian clinicians involved in VAD care. Research to date focuses on specific professional groups, such as doctors,1,6 with little information regarding the effect on nurses, allied health staff and pharmacists. Furthermore the impact on those not directly involved, including conscientious objectors, is unknown.

There has been calls for studies comparing different Australian regions on VAD,15 however, quantitative comparisons do not yet exist. To address this gap, this study aims to understand some impacts of VAD on health professionals, including doctors, nurses, pharmacists and other allied health professionals, focusing on and comparing Victoria and WA.

Methods

Survey design and study dates

This cross-sectional survey targeted clinicians nationally between April 2021 and June 2022. At this time, VAD legislation had become operational in Victoria (2019) and WA (2021), with other jurisdictions still planning implementation or legislation. An initial survey instrument was designed using previous research and validated demographic measures.1621 This was reviewed by the research team with expertise in research design, bioethics, palliative care, psychiatry, oncology, law, political science and qualitative methodology for face validity. The survey was then piloted with 12 clinicians working in hospitals, recruited via research team networks, for acceptability. Acceptability was measured through recruitment and completion rates (12 of 12). Feedback then guided survey refinement. Pilot data were excluded from final analysis. The final 30-min survey (Supplementary material file S1) used single-response multiple choice, multiple-response checklist and free-text questions. It was distributed using REDCap software.

Survey recruitment and study population

Participants were recruited via social media and mailing lists. Social media recruitment has previously been useful for health research.22 The survey link was posted on Facebook groups for Australian doctors and nurses. Additionally, the survey was posted on Victorian and Western Australian-specific Facebook health professional groups due to VAD being operational in only these two states at the time. The link was also shared via mailing lists of key professional groups in these states, such as VAD clinician communities and cancer and palliative care interest groups. The study included those self-identifying as medical, nursing, pharmacy and other allied health professionals. The study excluded those under 18 years of age or without consent.

Ethics

Monash University Human Research Ethics Committee approved this study (ID: 27235). Participants were provided with a Participant Information and Consent form and provided consent online via REDCap.

Quantitative data analysis

Following data cleaning, SPSS software was used to quantify demographics. Frequencies and percentages were calculated for single-response questions. For multiple-response questions, frequencies and percentages were calculated using the full sample size as the denominator. Likert-scale responses (1–100) were categorised into strongly agree (1–20); agree (21–40); neutral (41–60); disagree (61–80); and strongly disagree (81–100).

The full sample was split into subgroups for comparative analysis, focusing on groups with sufficient respondents for meaningful comparison: Victoria vs WA and doctors vs nurses. Descriptive statistics were used.

Survey qualitative data analysis

Free-text responses were imported into NVivo Plus 12 (QSR International) and coded using a framework developed by the broader research team and detailed by Lewis et al.23 To develop this broader framework, three team members coded qualitative interview transcripts line-by line, extracting key themes and analysing these across transcripts. Pertinent literature was used to further refine themes.24 Free-text survey data were analysed by extracting data under each element of this framework. Key survey themes were then discussed between authors and refined until consensus was reached. GL then manually re-coded the data to align with consensus themes, and triangulated these with quantitative data.

Reflexivity

A reflexive approach to qualitative analysis was used, acknowledging that our interpretations reflect our perspectives.25 GL maintained a reflective journal during data analysis. The diverse research team, with backgrounds in clinical medicine, public health, political science, bioethics and research, did not work clinically with VAD patients.

Sociodemographic characteristics

Out of 263 survey responses, 223 were included in the analysis. Responses less than 90% complete were excluded; as the final 10% of questions were open-ended, this maintained a consistent denominator for quantitative analysis. The completion rate was 85%.

Table 1 summarises participants’ demographics: 130 from Victoria, 59 from WA, 119 doctors, 70 nurses. Other states and professions are represented in smaller numbers. Most (84.7%) dealt with end-of-life patients monthly and 85.7% had cared for VAD patients. Not all involved in VAD care are VAD practitioners; respondents included ward nurses, care navigators and junior doctors. A total of 79.8% supported VAD access for eligible patients and 14% disagreed; aligning with wider Australian sentiment.21

Table 1.Sociodemographic characteristics of survey respondents (n = 223).

CharacteristicNumber of survey respondentsPercent of survey respondents
Age (years)
 20–29114.9
 30–394721.1
 40–495022.4
 50–595424.2
 60+6127.4
Sex
 Female15067.3
 Male7131.8
 Prefer not to say20.9
State or territory
 ACT20.9
 NSW83.6
 NT20.9
 Queensland125.4
 South Australia104.5
 Tasmania62.7
 Victoria13058.3
 WA5926.5
Role
 Care navigator31.3
 Clinical psychologist10.4
 Doctor11953.4
 Nurse7031.4
 Other health professional146.3
 Pharmacist94.0
 Social work73.1
Years of experience in role
 Less than 56026.9
  5–10 3515.7
 Between 11 and 204620.6
 More than 208236.8
Frequency of care of dying people
 Daily10044.8
 Weekly4922.0
 Monthly4017.9
 Yearly188.1
 Never167.2
Frequency of care of VAD patients
 Daily125.4
 Weekly4319.3
 Monthly6529.1
 Yearly3716.6
 Never3214.3
Response to ‘Eligible patients should be able to access VAD’
 Strongly agree15770.4
 Agree219.4
 Neutral135.8
 Disagree125.4
 Strongly disagree209.0

Results

Table 2 summarises three key themes related to impacts on health professionals identified from data analysis: costs, training and emotional impacts, with illustrative quotes. They are identified separately for clarity, however, they are inter-related and may influence each other. Table 2 also presents several subthemes.

Table 2.Impacts on clinicians presented by theme and subtheme.

ThemeSubthemeParticipantIllustrative quotes from participants
CostsInadequate remunerationParticipant 226, WA, doctor‘90% of the work for VAD is done by practitioners who do not get reimbursed and have to do it in their own time.’
CostsInadequate remuneration a barrier to sustainabilityParticipant 154, WA, doctor‘My main concern is financial. This is a process that needs to be done really well, building a rapport, finding the information, considering a lot of serious issues, and spending a considerable amount of time …. As a busy GP, I can see that taking the time to be involved in VAD may become prohibitively expensive. I cannot bill the equivalent earnings of a busy afternoon surgery to one patient …. Medicare rebates are inadequate …. I’m seeing how it goes. I can’t afford to subsidise it out of my own pocket.’
CostsPotential mechanisms of remunerationParticipant 232, WA, doctor‘[It’s] not sustainable currently with poor remuneration … New Zealand is leading the way. Medicare needs to determine a reasonable fee schedule for VAD.’
TrainingBarriers to mandatory trainingParticipant 169, Victoria, social worker‘… it is not very user friendly, doctors struggle a lot to understand many of the questions and it can discourage their involvement.’
Participant 154, WA, doctor‘We don’t even get CME [Continuing Medical Education] points, yet it took hours over several weekends to complete.’
Participant 220, Victoria, doctor‘Great access to training but I don’t have time and also would take time away from my primary duties.’
TrainingImpacts of barriers to mandatory trainingParticipant 106, Victoria, doctor‘There was not enough … encouraging/assisting doctors to do the mandatory VAD online training. This has left the ongoing problem of inadequate numbers of doctors (especially specialists) trained to provide VAD.’
TrainingMandatory training is only for certain groupsParticipant 89, Victoria, doctor‘Education of general medical community not undergoing formal VAD training was poor, and remains so.’
Participant 40, Victoria, doctor‘As a junior medical staff member, I also had no training on how to respond and escalate a request.’
TrainingSupplementary training usefulParticipant 271, WA, doctor‘Formal training on these conversations would alleviate stress for the clinician to enable a more comfortable conversation for the patient.’
Participant 210, Victoria, nurse‘Training has allowed staff to have empathetic, open conversations.’
Emotional impactsDistress experienced by participantsParticipant 135, Victoria, nurse‘VAD has had a significant impact in my place of work. Staff have been emotionally impacted and have not had substantial follow up and support.’
Participant 60, Victoria, clinical psychologist‘[VAD] can be heavy emotionally.’
Emotional impactsDistress experienced by conscientious objectorsParticipant 138, Victoria, nurse‘I’ve found the introduction of VAD stressful and at times isolating when surrounded by staff whose views differ to mine.’
Emotional impactsThe need to manage workforce distressParticipant 81, WA, nurse‘I am the manager of a team that are experienced palliative care nurses, and their support needs around this are constant in the lead up and following the VAD death.’
Emotional impactsVAD workload mostly falling on a small groupParticipant 87, Victoria, doctor‘VAD [is provided] by a limited group of clinicians, which, with the growing number of requests, is putting strain on that group.’
Participant 232, WA, doctor‘If there were more providers I could … have some respite from providing VAD.’

Costs

Respondents describe VAD service provision as financially costly, with inadequate practitioner remuneration hindering sustainability. Participant 226 reported 90% of VAD workload is unremunerated (Table 2). Funding affected GPs disproportionately, as described by Participant 154.

Participant 154 highlighted the opportunity costs of providing VAD services, including significant lost patient appointments and personal weekend time (Table 2).

Participant 232 noted the lack of MBS codes for VAD and emphasised that relying on volunteers is unsustainable, recommending sustainable funding (Table 2).

Training

Mandatory training

Among surveyed doctors, 51% completed mandatory VAD training. Fig. 1 presents sources of training offered to doctors and nurses in Victoria and Western Australia (Fig. 1).

Fig. 1.

Sources of training offered in WA and Victoria to doctors and nurses.


AH24142_F1.gif
Barriers to mandatory training

Barriers included an unfriendly online system, lack of remuneration, lack of professional development points, time constraints and clinical opportunity costs. Participants 169, 154 and 220 (Table 2) provide details. Doctors indicated that funding and allocating non-clinical time to training would likely increase participation in training (Table 3).

Table 3.I would be more likely to complete mandatory training (required to assess patient eligibility) if:

Strategy to overcome barriersNational %
It was funded by my organisation/clinic55.7
It was eligible for Continuing Medical Education43.0
My organisation/clinic allocated non-clinical time55.1
No opportunity cost for my patient load34.8
Delivered face-to-face22.8
I would not complete the training irrespective25.3
Impacts of barriers to training

Participants reported training barriers contribute to the limited numbers of VAD practitioners, particularly in specific specialties and regions (Participant 106, Table 2).

Mandatory training is only required for certain groups

Mandatory training is generally limited to VAD practitioner trainees, although some jurisdictions are expanding access to training to promote awareness.26 Consequently, nurses and junior doctors such as Participant 40 may feel undertrained. Participant 89 describes knowledge of VAD among the general medical community as ‘poor’.

Supplementary training

A total of 52% of respondents were offered training by their organisation or clinic. More nurses (66%) were offered training than doctors (38%). More Western Australians were offered training from a state-funded service compared to Victorians, who were more frequently offered training from their organisation or clinic.

Participant 271 sought additional communication skills training. Participant 210 found their institution’s communication training ‘useful’ highlighting training variability between institutions.

Need for support

In Victoria and WA, clinicians reported various emotional impacts of VAD. This paper focuses on distressing impacts and support availability, with positive impacts out of scope. Table 2 indicates four sub-themes. Participants 135 and 60 report an emotional burden on clinicians. Additionally, Participant 138 found conflicting views on VAD in the workplace can be distressing. Managers needed to manage workforce distress (Participant 81).

Participant 87 highlights VAD-related workload pressure and Participant 232 sought ‘respite’. Both describe that the majority of the burden fell on the few practitioners handling most cases.

Fig. 2 illustrates that 65% of respondents received no psychological support, with doctors (33%) receiving less than nurses (52%). Support mechanisms include employee assistance programs, VAD communities of practice and organisation-led debriefs.

Fig. 2.

Sources of support offered in WA and Victoria to doctors and nurses.


AH24142_F2.gif

Discussion

Inadequate remuneration, a need for support and training barriers impact health professionals, increasing burnout risk and threatening workforce sustainability if unresolved.

Findings highlight inadequate remuneration for VAD practitioners, disproportionately affecting fee-for-service practitioners, which is consistent with international literature.6,810,27 Literature suggests the lack of remuneration may disincentivise doctors from providing VAD services, impacting sustainability. Haining et al. argue that without MBS item numbers, practitioners may resort to privately billing VAD patients,2 raising ethical issues. Developing specific MBS item numbers for VAD services, akin to New Zealand’s model,23 could address these challenges. With VAD legislation expanding across Australia, national harmonisation of VAD funding through Medicare reforms could be considered.

Barriers to completing mandatory training included it often being unpaid and unrecognised for Continuing Medical Education (CME),15 discouraging potential practitioners. There are small numbers of VAD practitioners handling most VAD requests, risking burnout. Spreading the workload between more trained clinicians may benefit individuals and support sustainable service delivery. Incentives could include offering CME, allocating non-clinical training time and providing funding. Tasmanian training is accredited by both the Australian College of Rural and Remote Medicine (ACCRM) and the Royal Australian College of General Practitioners (RACGP).26 VAD Awareness units, available in NSW and Tasmania, have been developed for an intended audience of any health professional, regardless of their involvement in VAD.26,28 Evaluation of these initiatives could be beneficial.

Current mandatory training focuses more on governance and legal issues, rather than communication skills, consistent with the literature.15 Australian clinicians are seeking guidance on novel and challenging issues. Sandham et al. have shown that communication training is necessary for nurses,29 and in the Netherlands, actors for communication skills training have been beneficial.4 Communication training may also help Australian clinicians.

VAD has both rewarding and distressing impacts on clinicians, consistent with Victorian and international research.6,10,30 Support for VAD practitioners and conscientious objectors is often inadequate.6 Some peer support strategies, such as VAD communities of practice, were in place during data collection for this study,13 and centralised organisations, such as VADANZ, established after data collection, offer promising avenues for support.14 Internationally, peer-support has been valuable31 and strategies such as debriefing sessions and mentoring, implemented in specific Australian institutions, are suggested by Oczkowski et al.12

International literature shows conscientious objectors can experience strained workplace relationships.10 Support mechanisms include staff education programs and fostering safe, non-coercive workplace cultures.5,32 Creating respectful pathways for conscientious objectors while meeting patient needs is essential.12

Remuneration, training and workforce support are interconnected. Improving remuneration may influence clinicians’ willingness to undertake training, which may expand the VAD practitioner workforce and reduce pressure on the current cohort, thereby improving sustainability.

Study limitations

A key limitation is potential bias due to voluntary participation. The study likely attracted respondents with strong interest in and positions on VAD. Social media recruitment prevented response rate calculation.

The study had a modest sample size (n = 223), and only 32 survey respondents disagreed with VAD provision, a small sample from which to draw conclusions. While findings should be generalised cautiously, the sample reflects broader Australian attitudes to VAD, with 79.8% of respondents supporting VAD access and 14.4% opposing it.33

WA and Victoria are over-represented, likely due to timing of the survey during the operational phase of VAD and targeted recruitment. This complicates interpretation of findings, such as the finding that 51% of doctors had completed mandatory VAD training, without knowing how many were in jurisdictions where training was available. Future research should include other jurisdictions.

The survey, created by Victorians, reflected the local context where nurse practitioners were not involved in VAD. A key limitation of survey design was that only medical practitioners were asked about mandatory training, excluding nurse practitioners.

This was the first Australian survey on VAD impact on practitioners with inclusion from different states and professional groups, ensuring reasonable demographic diversity. It offers valuable learnings despite these limitations.

Conclusion

With VAD now legal in most Australian jurisdictions, understanding and addressing impacts on clinicians is crucial. Financial reimbursement for VAD practitioners remains inadequate and inconsistent. National harmonisation and Medicare reform may become a realistic priority. Encouraging CME-accredited and adequately funded training and including communication skills development is essential to increase the number of trained practitioners. Improved support for staff through government, institutional and individual strategies may include debriefing, mentoring, peer support and psychological consultation. Strategies addressing these impacts may help to distribute clinical workload and prevent burnout, positively influencing service sustainability.

Supplementary material

Supplementary material is available online.

Data availability

The data that support this study cannot be publicly shared due to ethical or privacy reasons and may be shared upon reasonable request to the corresponding author if appropriate.

Conflicts of interest

Dr Geetanjali Lamba is a member of the Expert Advisory Panel to the Chief Minister on VAD in the Northern Territory. Other authors have no conflicts of interest to declare.

Declaration of funding

The project has been funded through the NHMRC.

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