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Journal of the Australian Healthcare & Hospitals Association

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Obstacles in establishing a national disease registry in Australia: lessons from the development of the CHAANZ Congenital Heart Disease Registry

Larissa K. Lloyd A B C , Reeja Nasir B C , Calum Nicholson A B C , Geoff Strange A B C and David S. Celermajer A B C *
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A Clinical Research Group, Heart Research Institute, Sydney, NSW, Australia.

B Cardiology Department, Royal Prince Alfred Hospital, Camperdown, Sydney, NSW 2050, Australia.

C Faculty of Medicine and Health, The University of Sydney, Sydney, NSW, Australia.


Australian Health Review 47(4) 410-417 https://doi.org/10.1071/AH23063
Submitted: 14 March 2023  Accepted: 26 April 2023   Published: 16 May 2023



1 articles found in Crossref database.

The burdensome logistics of data linkage in Australia – the example of a national registry for congenital heart disease
Lloyd Larissa K., Nicholson Calum, Strange Geoff, Celermajer David S.
Australian Health Review. 2023 48(1). p.8

Committee on Publication Ethics

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