‘It’s your problem, not mine’: does competence have anything to do with desire and aspiration to self-direct?
Michelle Crozier A B and Heidi Muenchberger A
+ Author Affiliations
- Author Affiliations
A Griffith Health Institute and CONROD, Griffith University, Meadowbrook, Qld 4131, Australia.
B Corresponding author. Email: m.crozier@griffith.edu.au
Australian Health Review 37(5) 621-623 https://doi.org/10.1071/AH13053
Submitted: 7 March 2013 Accepted: 14 July 2013 Published: 11 October 2013
Abstract
The current disability policy paradigm operating across all states in Australia is self-direction. This central movement is closely linked to preparations for a National Disability Insurance Scheme called DisabilityCare. We provide one perspective in relation to self-direction in Australia including assumptions about aspirations to self-direct and the limited research evidence base that is available even though anecdotally self-direction practices have been occurring for many years. We conclude that by developing a funding platform, such as DisabilityCare, that empowers people with a disability to make decisions about their own fundamental needs and the fulfilment of them, it will lead to a society that supports people to access and achieve a ‘typical’ and desired life.
References
[1] Adelman T, Kitchener M, Ng T, Harrington C. Change and inertia in the New York State Medicaid Personal Care Services program: an institutional case study. J Aging Soc Policy 2012; 24 309–27.| Change and inertia in the New York State Medicaid Personal Care Services program: an institutional case study.Crossref | GoogleScholarGoogle Scholar | 22720889PubMed |
[2] Adams JR, Drake RE. Shared decision-making and evidence-based practice. Community Ment Health J 2006; 42 87–105.
| Shared decision-making and evidence-based practice.Crossref | GoogleScholarGoogle Scholar | 16429248PubMed |
[3] Alakeson V. Self-directed care for adults with serious mental illness: the barriers to progress. Psychiatr Serv 2008; 59 792–4.
| Self-directed care for adults with serious mental illness: the barriers to progress.Crossref | GoogleScholarGoogle Scholar | 18586997PubMed |
[4] Alakeson V. International development in self-directed care. Issue Brief. 2010; 78 1–11.
| 20232527PubMed |
[5] Young HM, Sikma SK. Self-directed care: an evaluation. Policy Polit Nurs Pract 2003; 4 185–95.
| Self-directed care: an evaluation.Crossref | GoogleScholarGoogle Scholar |
[6] Matthias RE, Benjamin AE. Abuse and neglect of clients in agency-based and consumer-directed home care. Health Soc Work 2003; 28 174–84.
| Abuse and neglect of clients in agency-based and consumer-directed home care.Crossref | GoogleScholarGoogle Scholar | 12971281PubMed |
[7] Low LF, Chilko N, Gresham M, Barter S, Brodaty H. An update on the pilot trial of consumer-directed care for older persons in Australia. Australas J Ageing 2012; 31 47–51.
| An update on the pilot trial of consumer-directed care for older persons in Australia.Crossref | GoogleScholarGoogle Scholar | 22417154PubMed |
[8] Cook JA, Shore SE, Burke-Miller JK, Jonikas JA, Ferrara M, Colegrove S, et al Participatory action research to establish self-directed care for mental health. Psychiatr Rehabil J 2010; 34 137–44.
| Participatory action research to establish self-directed care for mental health.Crossref | GoogleScholarGoogle Scholar | 20952367PubMed |
[9] Gloag D. Severe disability 2: residential care and living in the community. Br Med J (Clin Res Ed) 1985; 290 368–72.
| Severe disability 2: residential care and living in the community.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DyaL2M%2FpvVKhsQ%3D%3D&md5=d7da036df345a03ec938560f260f86f8CAS |
[10] Nirje B. The basis and logic of the normalization principle. J Intellect Dev Disabil 1985; 11 65–8.
| The basis and logic of the normalization principle.Crossref | GoogleScholarGoogle Scholar |
[11] Wolfensberger W. A brief introduction to Social Role Valorization: A high-order concept for addressing the plight of societally devalued people, and for structuring human services. Syracuse: Syracuse University; 1998.
[12] Productivity Commission. Productivity Commission inquiry report: disability care and support. Melbourne: Commonwealth of Australia; 2011.
[13] Queensland Government. Your life your choice: self-directed support framework. Brisbane: Department of Communities, Child Safety and Disability Services; 2012.
[14] Department of Human Services. Self-directed planning information sheet. Melbourne: Department of Human Services. Available at http://www.cmag.org.au/assets/files/cis_self_directed_planning_info_sheet_pdf_290609.pdf [verified 23 March 2013]
[15] Pearson J, Hill S. Evaluation of phase one: self-managed funding initiative. Final Report. Adelaide: Jenny Pearson and Associates; 2012. Available at: http://www.sa.gov.au/upload/entity/1856/dac-documents/individualised-funding/selfmanaged-funding-phase-one-finalreport.doc [verified 23 March 2013]
[16] Western Australian Government. My life: my way. Self directed supports in Western Australia. Perth: Department of Premier and Cabinet WA; 2011. Available at: http://www.partnershipforum.dpc.wa.gov.au/CurrentProjects/Documents/2087_MY_LIFE_MY_WAY_discussion_paper.pdf [verified 23 March 2013]
[17] New South Wales Government. Stronger together: a new direction in disability services in New South Wales 2006−2016. Sydney: New South Wales Government; 2010.
[18] Department of Health and Ageing. Evaluation of the consumer-directed care initiative − appendices. KPMG; 2012.Available at: http://www.health.gov.au/internet/main/publishing.nsf/Content/659479336D383B53CA25784F00114B0E/$File/CDC-Eval-Final-Rep-App.pdf [verified 23 March 2013]
[19] Ottmann G, Laragy C, Haddon M. Experiences of disability consumer-directed care users in Australia: results from a longitudinal qualitative study. Health Soc Care Community 2009; 17 466–75.
| Experiences of disability consumer-directed care users in Australia: results from a longitudinal qualitative study.Crossref | GoogleScholarGoogle Scholar | 19689678PubMed |
[20] Ottmann GF, Laragy C. Developing consumer-directed care for people with a disability: 10 lessons for user participation in health and community care policy and program development. Aust Health Rev 2010; 34 390–4.
| Developing consumer-directed care for people with a disability: 10 lessons for user participation in health and community care policy and program development.Crossref | GoogleScholarGoogle Scholar | 21108897PubMed |
[21] Alakeson V. Direct dollars. Ment Health Today 2007; 16–8.
| 17387787PubMed |
[22] Duffy S. The economics of self-directed support. Journal of Integrated Care. 2007; 15 26–37.
| The economics of self-directed support.Crossref | GoogleScholarGoogle Scholar |
[23] Mahoney KJ, Desmond SM, Simon-Rusinowitz L, Loughlin DM, Squillace MR. Consumer preferences for a cash option versus traditional services: telephone survey results from New Jersey elders and adults. J Disabil Policy Stud 2002; 13 75–87.
| Consumer preferences for a cash option versus traditional services: telephone survey results from New Jersey elders and adults.Crossref | GoogleScholarGoogle Scholar |
[24] Olinzock BJ. A model for assessing learning readiness for self-direction of care in individuals with spinal cord injuries: a qualitative study. SCI Nurs 2004; 21 69–74.
| 15553076PubMed |
[25] Putnam M, Pickard JG, Rodriguez C, Shear E. Stakeholder perspectives on policies to support family caregivers of older adults with dementia. J Fam Soc Work 2010; 13 173–90.
| Stakeholder perspectives on policies to support family caregivers of older adults with dementia.Crossref | GoogleScholarGoogle Scholar |
[26] Sciegaj M, Capitman JA, Kyriacou CK. Consumer-directed community care: race/ethnicity and individual differences for control. Gerontologist 2004; 44 489–99.
| Consumer-directed community care: race/ethnicity and individual differences for control.Crossref | GoogleScholarGoogle Scholar | 15331806PubMed |
[27] Kodner DL. Consumer-directed services: lessons and implications for integrated systems of care. Int J Integr Care 2003; 3 e12
| 16896379PubMed |
