Self-discharge by adult Aboriginal patients at Alice Springs Hospital, Central Australia: insights from a prospective cohort study
Lloyd J. Einsiedel A C , Eileen van Iersel B , Robert Macnamara A , Tim Spelman A , Malcolm Heffernan B , Linda Bray B , Hamilton Morris B , Brenda Porter B , Anthony Davis B andA Flinders University Northern Territory Rural Clinical School, Alice Springs Hospital, Gap Rd, Alice Springs, NT 0870, Australia. Email: robert.macnamara@flinders.edu.au
B Aboriginal Liaison Unit, Alice Springs Hospital, Gap Rd, Alice Springs, NT 0870, Australia. Email: eileen.vaniersel@nt.gov.au, malcolm.heffernan@nt.gov.au, malcolm.heffernan@nt.gov.au, linda.bray@nt.gov.au, hamilton.morris@nt.gov.au, brenda.porter@nt.gov.au, anthony.davis@nt.gov.au
C Corresponding author. Email: lloyd.einsiedel@health.sa.gov.au
Australian Health Review 37(2) 239-245 https://doi.org/10.1071/AH11087
Submitted: 12 September 2011 Accepted: 2 August 2012 Published: 21 December 2012
Abstract
Objective. To determine rates and risk factors for self-discharge by Aboriginal medical inpatients at Alice Springs Hospital.
Methods. Prospective cohort study. Interviews were conducted in primary language by Aboriginal Liaison Officers, from July 2006 to August 2007. Topics included understanding of diagnosis, satisfaction with services and perceptions of staff and environment. Risk factors for self-discharge were then determined prospectively.
Results. During the study period 202 (14.7%) of 1380 patients admitted to general medical units at Alice Springs Hospital, were interviewed. Self-discharge rates for all admissions were significantly lower during the study period than they had been previously (pre-study, mean 22.9 ± standard error 0.3%; study, 17.0 ± 0.2%) (P < 0.001). Most interviewees (73.4%) did not know their reason for admission (73.4%) or estimated length of stay (82.3%). Forty interviewees (19.8%) self-discharged. Mean monthly self-discharge rates differed between the three medical units (Unit A, 13.9 ± 0.3%; Unit B, 17.3 ± 1.37%; Unit C, 20.0 ± 0.4%) (P = 0.005). Multivariable predictors of self-discharge included male sex (hazard ratio (HR) 2.4; 95% confidence interval (CI) 1.1, 5.2), a past history of self-discharge (HR 3.2; 95%CI 1.5, 6), planned transfer to a tertiary referral centre (HR 3.8; 95%CI 1.3–7.4) and a desire to drink alcohol (HR 4.5; 95%CI 1.8–10.2).
Conclusions. Physician, institutional and patient factors all contribute to self-discharge. Improving cultural safety may be the key to lowering self-discharge rates.
What is known about the topic? Rates of self-discharge by Aboriginal adults in Central Australia are the highest reported worldwide. Previous studies have been retrospective and focussed on patient demographics without addressing the environmental and cultural contexts in which self-discharge occurs.
What does this paper add? In this acute care setting, we found a pervasive failure to communicate effectively with Aboriginal patients. Consequently, most patients were unaware of their diagnosis or length of stay. Self-discharge was a common practice; nearly half of all previously admitted patients had self-discharged in the past. We demonstrate that physician, hospital and patient factors all contribute to this practice. Prospectively determined risk factors included the treating medical team, the need for transfer outside Central Australia, and patient factors such as male gender and alcohol dependence. Self-discharge rates fell significantly with Aboriginal Liaison involvement.
What are the implications for practitioners? Cross-cultural communication skills must be markedly improved among medical staff caring for this marginalised population. Critical to reducing rates of self-discharge are improvements in institutional cultural safety by involving Aboriginal Liaison Officers and family members. However, persistently high self-discharge rates suggest a need to redirect medical services to a more culturally appropriate community-based model of care.
Additional keywords: cultural safety, discharge against medical advice, Indigenous health.
References
[1] Australian Bureau of Statistics and Australian Institute of Health and Welfare. Health and welfare of Australia’s Aboriginal and Torres Straight Islander Peoples . Cat. No. 4704.0 Commonwealth of Australia. Canberra, 2008.[2] Westwood B, Westwood G. Aboriginal cultural awareness training: policy v. accountability-failure in reality. Aust Health Rev 2010; 34 423–9.
| Aboriginal cultural awareness training: policy v. accountability-failure in reality.Crossref | GoogleScholarGoogle Scholar | 21108902PubMed |
[3] Reid J. Curing not caring: why Aboriginal patients ‘abscond’. New Doctor. 1978; 8 27–32.
[4] Beckmann K, Franks C, Martin K, Flicker L, Thompson S. Taking own leave: exploring issues around patient self-discharge from Alice Springs Hospital . Darwin: Territory Health Services unpublished report; 1999.
[5] Henry B, Dunbar T, Barclay L, Thompson R. Self discharge against medical advice from Northern Territory hospitals . Darwin: Charles Darwin University; 2007.
[6] O’Hara D, Hart W, McDonald I. Leaving hospital against medical advice. J Qual Clin Pract 1996; 16 157–64.
| 1:STN:280:DyaK2s%2Fkt1Kmuw%3D%3D&md5=75acbb8c11a7077c9451a183d47076b3CAS | 8887859PubMed |
[7] Weingart SN, Davis RB, Phillips RS. Patients discharged against medical advice from a general medical service. J Gen Intern Med 1998; 13 568–71.
| Patients discharged against medical advice from a general medical service.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DyaK1cvgtlyltg%3D%3D&md5=319b99d49f01b88939899f0ba9694012CAS | 9734795PubMed |
[8] Anis AH, Sun H, Guh DP, Palepu A, Schechter MT, O’Shaunessy MV. Leaving hospital against medical advice among HIV-positive patients. CMAJ 2002; 167 633–7.
| 12358196PubMed |
[9] Hewagama S, Spelman T, Einsiedel L. Staphylococcus aureus bacteraemia at Alice Springs Hospital, 2003-2006. Intern Med J 2012; 42 505–15.
| 1:STN:280:DC%2BC38zjs1OlsQ%3D%3D&md5=b70da073267b72e0696f541957c9359dCAS | 21309994PubMed |
[10] Amery H. They don’t give us the full story. Attitudes to hospitalisation amongst Yolnu people of North-East Arnhem – a comparative study . Darwin: Territory Health Services; 1999.
[11] Anderson K, Devitt J, Cunningham J, Preece C, Cass A. ‘All they said was my kidneys were dead’: Indigenous Australian patients understanding of their chronic kidney disease. Med J Aust 2008; 189 499–503.
| 18976191PubMed |
[12] Cass A, Lowell A, Christie M, Snellen PL, Flack M, Marrnganyin B, Brown I. Sharing the true stories: improving communication between Aboriginal patients and healthcare workers. Med J Aust 2002; 176 466–70.
| 12065009PubMed |
[13] Ashton CM, Haidet P, Paterniti DA, Collins TC, Gordon HS, O’Malley K, et al Racial and ethnic disparities in the use of health services. Bias, preferences or poor communication? J Gen Intern Med 2003; 18 146–52.
| Racial and ethnic disparities in the use of health services. Bias, preferences or poor communication?Crossref | GoogleScholarGoogle Scholar | 12542590PubMed |
[14] Reid J, Mununggurr D. We are losing our brothers. Sorcery and alcohol in an Aboriginal community. Med J Aust 1977; 2 1–5.
| 1:STN:280:DyaE1c7lsFyksg%3D%3D&md5=a3ae4d3b61409af49635a43f2aa403d1CAS | 611391PubMed |
[15] Mobbs R. In sickness and health: the sociocultural context of Aboriginal well being, illness and healing. In: Reid JTP, editor. The health of Aboriginal Australians. Canberra: Harcourt, Brace and Company; 1991. pp. 292-325.
[16] Devitt J, McMaster A. Living on medicine. Alice Springs: IAD Press; 1998.
[17] Barker AF. Bronchiectasis. N Engl J Med 2002; 346 1383–93.
| Bronchiectasis.Crossref | GoogleScholarGoogle Scholar | 11986413PubMed |
[18] Jeremiah J, O’Sullivan P, Stein M. Who leaves against medical advice? J Gen Intern Med 1995; 10 403–5.
| Who leaves against medical advice?Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DyaK28%2Fms1Sksg%3D%3D&md5=fb5b0d156bcc13cafb8db09ca410e12cCAS | 7472691PubMed |
[19] Saitz R, Ghali W, Moskowitz MA. Characteristics of patients with pneumonia who are discharged from hospital against medical advice. Am J Med 1999; 107 507–9.
| Characteristics of patients with pneumonia who are discharged from hospital against medical advice.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DC%2BD3c%2FjsVGqtg%3D%3D&md5=8e396e0806fd4ae4c4141477a38c8156CAS | 10569306PubMed |
[20] Franks P, Meldrum S, Fiscella K. Discharges against medical advice: are race/ethnicity predictive? J Gen Intern Med 2006; 21 955–60.
| Discharges against medical advice: are race/ethnicity predictive?Crossref | GoogleScholarGoogle Scholar | 16918741PubMed |
[21] Hwang SW, Li J, Gupta R, Chien V, Martin RE. What happens to patients who leave hospital against medical advice? Can Med Assoc J 2003; 168 417–20.
[22] Smith DB, Telles JL. Discharges against medical advice at regional acute care hospitals. Am J Public Health 1991; 81 212–5.
| Discharges against medical advice at regional acute care hospitals.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DyaK3M7hvFSgtw%3D%3D&md5=5a2ead7b9611d6517bf3054d187f5c43CAS | 1899322PubMed |
[23] Kagawa-Singer M, Kassim-Lakha S. A strategy to reduce cross-cultural miscommunication and increase the likelihood of improving health outcomes. Acad Med 2003; 78 577–87.
| A strategy to reduce cross-cultural miscommunication and increase the likelihood of improving health outcomes.Crossref | GoogleScholarGoogle Scholar | 12805036PubMed |
[24] Franks C, Beckmann K. A qualitatitive analysis of patients taking their own leave from Alice Springs Hospital in 1998. Aborig Isl Health Work J 2002; 26 3–8.
[25] Trudgen R. Why warriors lie down and die. 1st ed. Darwin: Aboriginal Resources and Development Services Inc.; 2000.
[26] Harrington Z, Thames D, Currie BJ, Bulkanhawuy J. Challenging perceptions of non-compliance with rheumatic fever prophylaxis in a remote Aboriginal community. Med J Aust 2006; 184 514–7.
| 16719752PubMed |
[27] Taylor K, Guerin P. Health care and Indigenous Australians. Cultural safety in practice. South Yarra: Pelgrave Macmillan; 2010.
[28] McGrath P. ‘I don’t want to be in that big city: this is my country here’: research findings on Aboriginal peoples preferences to die at home. Aust J Rural Health 2007; 15 264–8.
| ‘I don’t want to be in that big city: this is my country here’: research findings on Aboriginal peoples preferences to die at home.Crossref | GoogleScholarGoogle Scholar | 17617091PubMed |
[29] Tanner L, Kendall A, Darbyshire P. ‘Sometime they run away, that’s how scared they feel’: the paediatric hospitalisation experiences of Indigenous families from remote areas of Australia. Contemp Nurse 2005; 18 3–17.
| ‘Sometime they run away, that’s how scared they feel’: the paediatric hospitalisation experiences of Indigenous families from remote areas of Australia.Crossref | GoogleScholarGoogle Scholar |
[30] Watson J, Hodson K, Johnson R. Developing strategies to gather information about the maternity experiences of Indigenous women in an acute care setting. Aust J Rural Health 2002; 10 147–53.
| Developing strategies to gather information about the maternity experiences of Indigenous women in an acute care setting.Crossref | GoogleScholarGoogle Scholar | 12081507PubMed |
[31] NSW Department of Health (DoH). The last report: report of the NSW task force on Aboriginal health. Sydney: Department of Health. 1990.
[32] Commonwealth Department of Health and Aged Care. National Aboriginal Health Strategy . Canberra: Department of Health and Aged Care. 1989.