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Australian Journal of Primary Health Australian Journal of Primary Health Society
The issues influencing community health services and primary health care
RESEARCH ARTICLE

Identifying palliative care needs in residential care

Thilini Liyanage A , Geoffrey Mitchell A and Hugh Senior A B C
+ Author Affiliations
- Author Affiliations

A School of Medicine, The University of Queensland, 288 Herston Road, Herston, Brisbane, Qld 4006, Australia.

B College of Health, Oteha Rohe, Albany Highway, Massey University, Auckland 0632, New Zealand.

C Corresponding author. Email: h.senior@massey.ac.nz

Australian Journal of Primary Health 24(6) 524-529 https://doi.org/10.1071/PY17168
Submitted: 29 November 2017  Accepted: 19 August 2018   Published: 14 November 2018

Abstract

The aim of this study is to determine the accuracy, feasibility and acceptability of the surprise question (SQ) in combination with a clinical prediction tool (Supportive and Palliative Care Indicator Tool (SPICT)) in identifying residents who have palliative care needs in residential aged care facilities (RACFs) in Australia. A prospective cohort study in two RACFs containing both high-level care (including dementia) and low-level care beds. Directors of Nursing screened 187 residents at risk of dying by 12 months using first the SQ, and if positive, then the SPICT. At 12-months follow-up, deaths, hospitalisations, use of palliative care services, end-of-life care and clinical indicators were recorded. The SQ had a sensitivity of 70%, a specificity of 69.6%, a positive predictive value of 40.6% and a negative predictive value of 88.7% for death. All residents identified by the SQ had at least two general indicators of deterioration, while 98.8% had at least one disease-specific indicator on the SPICT. The SPICT marginally increased the ability to identify residents in need of proactive end-of-life planning. A combination of the SQ and the SPICT is effective in predicting palliative care needs in residents of aged care facilities, and may trigger timely care planning.


References

Abernethy AP, Currow DC, Shelby-James T, Rowett D, May F, Samsa GP, Hunt R, Williams H, Esterman A, Phillips PA (2013) Delivery strategies to optimize resource utilization and performance status for patients with advanced life-limiting illness: results from the “palliative care trial” [ISRCTN 81117481]. Journal of Pain and Symptom Management 45, 488–505.
Delivery strategies to optimize resource utilization and performance status for patients with advanced life-limiting illness: results from the “palliative care trial” [ISRCTN 81117481].Crossref | GoogleScholarGoogle Scholar |

Australian Institute of Health and Welfare (2012) ‘Residential Aged Care in Australia 2010–11: A Statistical Overview.’ (AIHW, Canberra, ACT, Australia)

Badger F, Clifford C, Hewison A, Thomas K (2009) An evaluation of the implementation of a programme to improve end-of-life care in nursing homes. Palliative Medicine 23, 502–511.
An evaluation of the implementation of a programme to improve end-of-life care in nursing homes.Crossref | GoogleScholarGoogle Scholar |

Boyd K, Murray SA (2010) Recognising and managing key transitions in end of life care. BMJ (Clinical Research Ed.) 341, c4863
Recognising and managing key transitions in end of life care.Crossref | GoogleScholarGoogle Scholar |

Christakis NA, Lamont EB (2000) Extent and determinants of error in doctors’ prognoses in terminally ill patients: prospective cohort study. BMJ (Clinical Research Ed.) 320, 469–473.
Extent and determinants of error in doctors’ prognoses in terminally ill patients: prospective cohort study.Crossref | GoogleScholarGoogle Scholar |

Ersek M, Carpenter JG (2013) Geriatric palliative care in long-term care settings with a focus on nursing homes. Journal of Palliative Medicine 16, 1180–1187.
Geriatric palliative care in long-term care settings with a focus on nursing homes.Crossref | GoogleScholarGoogle Scholar |

Gómez-Batiste X, Martinez-Munoz M, Blay C, Amblas J, Vila L, Costa X, Villanueva A, Espaulella J, Espinosa J, Figuerola M, Constante C (2013) Identifying patients with chronic conditions in need of palliative care in the general population: development of the NECPAL tool and preliminary prevalence rates in Catalonia. BMJ Supportive & Palliative Care 3, 300–308.
Identifying patients with chronic conditions in need of palliative care in the general population: development of the NECPAL tool and preliminary prevalence rates in Catalonia.Crossref | GoogleScholarGoogle Scholar |

Haga K, Murray S, Reid J, Ness A, O’Donnell M, Yellowlees D, Denvir MA (2012) Identifying community based chronic heart failure patients in the last year of life: a comparison of the Gold Standards Framework Prognostic Indicator Guide and the Seattle Heart Failure Model. Heart (British Cardiac Society) 98, 579–583.
Identifying community based chronic heart failure patients in the last year of life: a comparison of the Gold Standards Framework Prognostic Indicator Guide and the Seattle Heart Failure Model.Crossref | GoogleScholarGoogle Scholar |

Harrison N, Cavers D, Campbell C, Murray SA (2012) Are UK primary care teams formally identifying patients for palliative care before they die? The British Journal of General Practice 62, e344–e352.
Are UK primary care teams formally identifying patients for palliative care before they die?Crossref | GoogleScholarGoogle Scholar |

Higginson IJ, Hart S, Koffman J, Selman L, Harding R (2007) Needs assessments in palliative care: an appraisal of definitions and approaches used. Journal of Pain and Symptom Management 33, 500–505.
Needs assessments in palliative care: an appraisal of definitions and approaches used.Crossref | GoogleScholarGoogle Scholar |

Highet G, Crawford D, Murray SA, Boyd K (2014) Development and evaluation of the Supportive and Palliative Care Indicators Tool (SPICT): a mixed-methods study. BMJ Supportive & Palliative Care 4, 285–290.
Development and evaluation of the Supportive and Palliative Care Indicators Tool (SPICT): a mixed-methods study.Crossref | GoogleScholarGoogle Scholar |

Maas EA, Murray SA, Engels Y, Campbell C (2013) What tools are available to identify patients with palliative care needs in primary care: a systematic literature review and survey of European practice. BMJ Supportive & Palliative Care 3, 444–451.
What tools are available to identify patients with palliative care needs in primary care: a systematic literature review and survey of European practice.Crossref | GoogleScholarGoogle Scholar |

Mitchell GK, Del Mar CB, O’Rourke PK, Clavarino AM (2008) Do case conferences between general practitioners and specialist palliative care services improve quality of life? A randomised controlled trial (ISRCTN 52269003). Palliative Medicine 22, 904–912.
Do case conferences between general practitioners and specialist palliative care services improve quality of life? A randomised controlled trial (ISRCTN 52269003).Crossref | GoogleScholarGoogle Scholar |

Mitchell GK, Johnson CE, Thomas K, Murray SA (2010) Palliative care beyond that for cancer in Australia. The Medical Journal of Australia 193, 124–126.

Mitchell G, Zhang J, Burridge L, Senior H, Miller E, Young S, Donald M, Jackson C (2014) Case conferences between general practitioners and specialist teams to plan end of life care of people with end stage heart failure and lung disease: an exploratory pilot study. BMC Palliative Care 13, 24
Case conferences between general practitioners and specialist teams to plan end of life care of people with end stage heart failure and lung disease: an exploratory pilot study.Crossref | GoogleScholarGoogle Scholar |

Mitchell GK, Senior HE, Rhee JJ, Ware RS, Young S, Teo PC, Murray S, Boyd K, Clayton JM (2018) Using intuition or a formal palliative care needs assessment screening process in general practice to predict death within 12 months: a randomised controlled trial. Palliative Medicine 32, 384–394.
Using intuition or a formal palliative care needs assessment screening process in general practice to predict death within 12 months: a randomised controlled trial.Crossref | GoogleScholarGoogle Scholar |

Moroni M, Zocchi D, Bolognesi D, Abernethy A, Rondelli R, Savorani G, Salera M, Dall’Olio FG, Galli G, Biasco G, on behalf of the SUQ-P group (2014) The ‘surprise’ question in advanced cancer patients: a prospective study among general practitioners. Palliative Medicine 28, 959–964.
The ‘surprise’ question in advanced cancer patients: a prospective study among general practitioners.Crossref | GoogleScholarGoogle Scholar |

Murray S, Boyd K (2011) Using the ‘surprise question’ can identify people with advanced heart failure and COPD who would benefit from a palliative care approach. Palliative Medicine 25, 382
Using the ‘surprise question’ can identify people with advanced heart failure and COPD who would benefit from a palliative care approach.Crossref | GoogleScholarGoogle Scholar |

National Aged Care Alliance (2012) Aged care reform series - palliative care. (National Aged Care Alliance: Canberra) Available at http://www.naca.asn.au/Age_Well/Palliative%20care.pdf [Verified 12 November 2017]

Palliative Care Australia (2003) Palliative care service provision in Australia: A Planning Guide, 2nd edn. (Palliative Care Australia: Griffith) Available at http://palliativecare.org.au/wp-content/uploads/2015/07/Palliative-Care-Service-Provision-in-Australia-a-planning-guide.pdf [Verified 14 November 2017]