‘Lost and confused’: parent representative groups’ perspectives on child and family health services in Australia
Amiee Hesson A , Cathrine Fowler B , Chris Rossiter B C and Virginia Schmied AA School of Nursing and Midwifery, Western Sydney University, Locked Bag 1797, Penrith South, NSW 2751, Australia.
B Centre for Midwifery, Child and Family Health, Faculty of Health, University of Technology Sydney, PO Box 123, Broadway, NSW 2007, Australia.
C Corresponding author. Email: christine.rossiter@uts.edu.au
Australian Journal of Primary Health 23(6) 560-566 https://doi.org/10.1071/PY17072
Submitted: 18 May 2017 Accepted: 9 September 2017 Published: 29 November 2017
Abstract
Consumer involvement in health care is widely accepted in policy and service delivery. Australia offers universal health services for families with children aged 0 to 5 years, provided by child and family health nurses and general practitioners. Services include, but are not limited to, monitoring and promoting child health and development, and supporting parents. This paper reports consumer representatives’ perspectives on Australian parents’ needs and experiences of child and family health services, identifying facilitators and barriers to service utilisation. Twenty-six representatives from consumer organisations explored families’ experiences through focus groups. Qualitative data were analysed thematically. Consumer representatives identified several key implications for families using primary health services: feeling ‘lost and confused’ on the parenting journey; seeking continuity and partnership; feeling judged; and deciding to discontinue services. Participants highlighted accessible, timely, non-judgmental and appropriate interactions with healthcare professionals as vital to positive consumer experiences and optimal health and developmental outcomes. Representatives indicated that families value the fundamentals of well-designed health services: trust, accessibility, continuity, knowledge and approachability. However, both consumers and service providers face barriers to effective ongoing engagement in universally provided services.
Additional keywords: children, child health services, consumers, nurses, parents.
References
Appleton J, Fowler C, Brown N (2014) Friend or foe? An exploratory study of Australian parents’ use of asynchronous discussion boards in childhood obesity. 21, 151–158.Australian Health Ministers Advisory Council (2011) National framework for universal child and family health services. Department of Health and Ageing, Canberra, ACT, Australia.
Balkhi AM, Olsen B, Lazaroe L, Silverstein J, Geffken GR (2015) Paging Dr Google: parents’ report of internet use for type 1 diabetes management. Diabetes Care 38, e18–e19.
| Paging Dr Google: parents’ report of internet use for type 1 diabetes management.Crossref | GoogleScholarGoogle Scholar |
Braun V, Clarke V (2013) ‘Successful Qualitative Research: a Practical Guide for Beginners.’ (Sage: London, UK)
Burns E, Schmied V, Fenwick J, Sheehan A (2012) Liquid gold from the milk bar: constructions of breastmilk and breastfeeding women in the language and practices of midwives. Social Science & Medicine 75, 1737–1745.
| Liquid gold from the milk bar: constructions of breastmilk and breastfeeding women in the language and practices of midwives.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DC%2BC38fptlaruw%3D%3D&md5=884fd94116c5aad68c4be7556c3baffeCAS |
Butt ML, Pinelli J, Hunsberger M (2010) Parents’ perceptions of ambulatory neonatal follow-up programs. Journal of Neonatal Nursing 16, 126–137.
| Parents’ perceptions of ambulatory neonatal follow-up programs.Crossref | GoogleScholarGoogle Scholar |
Center on the Developing Child (2010) The foundations of lifelong health are built in early childhood. (Harvard University: Cambridge, MA, USA) Available at https://developingchild.harvard.edu/resources/the-foundations-of-lifelong-health-are-built-in-early-childhood/ [Verified 16 October 2017]
Donetto S, Malone M, Hughes J, Morrow E, Cowley S, Maben J (2013) Health visiting: the voice of service users – learning from service users’ experiences to inform the development of UK health visiting practice and services. Department of Health Policy Research Programme, ref. 016 0058. National Nursing Research Unit, King’s College, London, UK.
Entwistle V, Calnan M, Dieppe P (2008) Consumer involvement in setting the health services research agenda: persistent questions of value. Journal of Health Services Research & Policy 13, 76–81.
| Consumer involvement in setting the health services research agenda: persistent questions of value.Crossref | GoogleScholarGoogle Scholar |
Eronen R, Calabretto H, Pincombe J (2011) Improving the professional support for parents of young infants. Australian Journal of Primary Health 17, 186–194.
| Improving the professional support for parents of young infants.Crossref | GoogleScholarGoogle Scholar |
Fereday J, Oster C, Darbyshire P (2010) Partnership in practice: what parents of a disabled child want from a generic health professional in Australia. Health & Social Care in the Community 18, 624–632.
| Partnership in practice: what parents of a disabled child want from a generic health professional in Australia.Crossref | GoogleScholarGoogle Scholar |
Harvey S, Schmied V, Nicholls D, Dahlen H (2015) Hope amidst judgement: the meaning mothers accessing opioid treatment programmes ascribe to interactions with health services in the perinatal period. Journal of Family Studies 21, 282–304.
| Hope amidst judgement: the meaning mothers accessing opioid treatment programmes ascribe to interactions with health services in the perinatal period.Crossref | GoogleScholarGoogle Scholar |
Jack SM, DiCenso A, Lohfeld L (2005) A theory of maternal engagement with public health nurses and family visitors. Journal of Advanced Nursing 49, 182–190.
| A theory of maternal engagement with public health nurses and family visitors.Crossref | GoogleScholarGoogle Scholar |
Johnson SA (2015) ‘Intimate mothering publics’: comparing face-to-face support groups and Internet use for women seeking information and advice in the transition to first-time motherhood. Culture, Health & Sexuality 17, 237–251.
| ‘Intimate mothering publics’: comparing face-to-face support groups and Internet use for women seeking information and advice in the transition to first-time motherhood.Crossref | GoogleScholarGoogle Scholar |
Keatinge D (2006) Parents’ preferred child health information sources: implications for nursing practice. The Australian Journal of Advanced Nursing 23, 13–18.
Kraschnewski JL, Chuang CH, Poole ES, Peyton T, Blubaugh I, Pauli J, Feher A, Reddy M (2014) Paging ‘Dr Google’: does technology fill the gap created by the prenatal care visit structure? Qualitative focus group study with pregnant women. Journal of Medical Internet Research 16, e147
| Paging ‘Dr Google’: does technology fill the gap created by the prenatal care visit structure? Qualitative focus group study with pregnant women.Crossref | GoogleScholarGoogle Scholar |
Liamputtong P (2013) ‘Qualitative Research Methods.’ (Oxford University Press: Melbourne, Vic., Australia)
Myors KA, Schmied V, White E (2014) Child and family health nurses working with families of preschool-aged children. Journal of Clinical Nursing 23, 181–190.
| Child and family health nurses working with families of preschool-aged children.Crossref | GoogleScholarGoogle Scholar |
Oberklaid F, Baird G, Blair M, Melhuish E, Hall D (2013) Children’s health and development: approaches to early identification and intervention. Archives of Disease in Childhood 98, 1008–1011.
| Children’s health and development: approaches to early identification and intervention.Crossref | GoogleScholarGoogle Scholar |
Peavey F (2000) Strategic question manual. Available at http://pnodn.pbworks.com/f/Peavey+strategic+questioning+manual.pdf [Verified 11 July 2016]
Psaila K, Schmied V, Fowler C, Kruske S (2014a) Discontinuities between maternity and child and family health services: health professional’s perceptions. BMC Health Services Research 14, 4
| Discontinuities between maternity and child and family health services: health professional’s perceptions.Crossref | GoogleScholarGoogle Scholar |
Psaila K, Kruske S, Fowler C, Homer C, Schmied V (2014b) Smoothing out the transition of care between maternity and child and family health services: perspectives of child and family health nurses and midwives. BMC Pregnancy and Childbirth 14, 151
| Smoothing out the transition of care between maternity and child and family health services: perspectives of child and family health nurses and midwives.Crossref | GoogleScholarGoogle Scholar |
Reay R, Matthey S, Ellwood D, Scott M (2011) Long-term outcomes of participants in a perinatal depression early detection program. Journal of Affective Disorders 129, 94–103.
| Long-term outcomes of participants in a perinatal depression early detection program.Crossref | GoogleScholarGoogle Scholar |
Rollans M, Schmied V, Kemp L, Meade T (2013) Digging over that old ground: an Australian perspective of women’s experience of psychosocial assessment and depression screening in pregnancy and following birth. BMC Women’s Health 13, 18
| Digging over that old ground: an Australian perspective of women’s experience of psychosocial assessment and depression screening in pregnancy and following birth.Crossref | GoogleScholarGoogle Scholar |
Rowe HJ, Holton S, Fisher JRW (2013) Postpartum emotional support: a qualitative study of women’s and men’s anticipated needs and preferred sources. Australian Journal of Primary Health 19, 46–52.
| Postpartum emotional support: a qualitative study of women’s and men’s anticipated needs and preferred sources.Crossref | GoogleScholarGoogle Scholar |
Schmied V, Donovan J, Kruske S, Kemp L, Homer C, Fowler C (2011) Commonalities and challenges: a review of Australian state and territory maternity and child health policies. Contemporary Nurse 40, 106–117.
| Commonalities and challenges: a review of Australian state and territory maternity and child health policies.Crossref | GoogleScholarGoogle Scholar |
Schmied V, Fowler C, Rossiter C, Homer C, Kruske S, CHoRUS team (2014) Nature and frequency of services provided by child and famly health nurses in Australia: results of a national survey. Australian Health Review 38, 177–185.
Schmied V, Homer C, Fowler C, Psaila K, Barclay L, Wilson I, Kemp L, Fasher M, Kruske S (2015) Implementing a national approach to universal child and family health services in Australia: professionals’ views of the challenges and opportunities. Health & Social Care in the Community 23, 159–170.
| Implementing a national approach to universal child and family health services in Australia: professionals’ views of the challenges and opportunities.Crossref | GoogleScholarGoogle Scholar |
Schmied V, Langdon R, Matthey S, Kemp L, Austin MP, Johnson M (2016) Antenatal psychosocial risk status and Australian women’s use of primary care and specialist mental health services in the year after birth: a prospective study. BMC Women’s Health 16, 69
| Antenatal psychosocial risk status and Australian women’s use of primary care and specialist mental health services in the year after birth: a prospective study.Crossref | GoogleScholarGoogle Scholar |
Scullard P, Peacock C, Davies P (2010) Googling children’s health: reliability of medical advice on the internet. Archives of Disease in Childhood 95, 580–582.
| Googling children’s health: reliability of medical advice on the internet.Crossref | GoogleScholarGoogle Scholar |
Strange C, Bremner A, Fisher C, Howat P, Wood L (2016) Mothers’ group participation: associations with social capital, social support and mental well-being. Journal of Advanced Nursing 72, 85–98.
| Mothers’ group participation: associations with social capital, social support and mental well-being.Crossref | GoogleScholarGoogle Scholar |
Taft A, Hooker L (2017) Domestic and family violence. In ‘Psychosocial Resilience and Risk in the Perinatal Period: Implications and Guidance for Professionals’. (Eds G Thomson, V Schmied) pp. 90–105. (Routledge: London, UK)