A consumer-initiated survey of women's experiences of breast cancer services in New South Wales

Abstract

Advocates of consumers of breast cancer care are increasingly seeking to influence the cancer research agenda, by urging the investigation of those aspects of cancer prevention and treatment that are of most interest to them. Consumer advocates can either influence existing scientific and behavioural research, or they can instigate consumer-driven research themselves. This article describes an example of the latter—a survey of women’s experiences of breast cancer services in NSW, initiated and conducted by the cancer advocacy group, Breast Cancer Action Group NSW.