Enriching health research through consumer involvement ? learning through atypical exemplars

Abstract

Objective: The goal of this exploratory study was to identify and describe notable cases of consumer involvement in Australian health research to generate insights and concepts, and assist others to develop and build capacity in this area. Methods: In-depth interviews were conducted with nine organisations known to be active in this area. The interviews were supplemented with content analysis of relevant documentation to further examine involvement strategies. Results: Key attributes that aid consumer involvement competence and contribute to success in this area are identified, including the availability of time, resources and supporting policies, principles and attitudes that securely back opportunities for consumers to be involved in meaningful ways. Conclusion: This study provides an important contribution to our knowledge and understanding of consumer involvement practice in Australian health research. The examples do not offer definitive approaches but rather highlights and lessons drawn from experiences in consumer involvement across a diverse range of organisations. Key words: sociology, consumer, involvement, health, research