Does patient activation matter? An examination of the relationships between patient activation and healthcare use in older adults with mild frailty after discharge from an emergency department
Kristie Harper A B C * , Melinda Williamson A , Glenn Arendts D , Deborah Edwards A , Bridgette Buller A , Jenna Haak A , Angela Jacques A E , Annette Barton A , Antonio Petta A and Antonio Celenza A DA
B
C
D
E
Abstract
Patient engagement, as measured by the Patient Activation Measure (PAM®), has been used to assess patients’ ability to manage their own care. This study aimed to determine whether the PAM® could predict healthcare use in older adults aged >70 years, living independently in the community with mild frailty, within 30 days after emergency department (ED) discharge.
A prospective single-centre observational cohort study was completed including older adults who presented to an ED. The 13-item PAM® and selected International Consortium for Health Outcomes Measures were completed prior to ED discharge.
Two hundred patients were recruited with a mean age of 84.8 years (s.d. 6.9). The mean PAM® score was 58.6 (s.d. 13.3), with 12.5% at Level 1 (n = 25), 40% at Level 2 (n = 80), 34.5% at Level 3 (n = 69) and 13.0% at Level 4 (n = 26). The PAM® level was significantly associated with ED presentations in the past 6 months (P = 0.030). The PAM® level did not predict healthcare use within 30 days of discharge consisting of time until ED representation (P = 0.557), number of ED representations (P = 0.560), number of hospital admissions (P = 0.499), length of stay in hospital (P = 0.254) and number of post-discharge contacts (P = 0.667).
Overall, the PAM® did not predict prospective short-term healthcare use. However, the PAM® was significantly associated with 6-month previous ED use. With more than 50% of patients at Level 1 or 2, indicating lower capacity for self-management, tailored interventions are required to assist mildly frail patients to manage discharge care plans and engage in preventative strategies.
Keywords: aftercare, aged, emergency department, frailty, hospitals, patient activation, patient discharge, self-management.
References
1 Hibbard JH, Mahoney ER, Stockard J, et al. Development and testing of a short form of the Patient Activation Measure. Health Serv Res 2005; 40(6): 1918-30.
| Crossref | Google Scholar | PubMed |
2 Skolasky RL, Green AF, Scharfstein D, et al. Psychometric properties of the Patient Activation Measure among multimorbid older adults. Health Serv Res 2011; 46(2): 457-78.
| Crossref | Google Scholar | PubMed |
3 Insignia Health. Patient Activation Measure. Phreesia; 2004. Available at https://www.insigniahealth.com/pam/ [cited 8 April 2020].
4 Greene J, Hibbard JH. Why does patient activation matter? An examination of the relationships between patient activation and health-related outcomes. J Gen Intern Med 2012; 27(5): 520-6.
| Crossref | Google Scholar | PubMed |
5 Kinney RL, Lemon SC, Person SD, et al. The association between patient activation and medication adherence, hospitalization, and emergency room utilization in patients with chronic illnesses: a systematic review. Patient Educ Couns 2015; 98(5): 545-52.
| Crossref | Google Scholar | PubMed |
6 Greene J, Hibbard JH, Sacks R, et al. When patient activation levels change, health outcomes and costs change, too. Health Aff 2015; 34(3): 431-7.
| Crossref | Google Scholar | PubMed |
7 Anderson G, Rega ML, Casasanta D, et al. The association between patient activation and healthcare resources utilization: a systematic review and meta-analysis. Public Health 2022; 210: 134-41.
| Crossref | Google Scholar | PubMed |
8 Mitchell SE, Gardiner PM, Sadikova E, et al. Patient activation and 30-day post-discharge hospital utilisation. J Gen Intern Med 2014; 29(2): 349-55.
| Crossref | Google Scholar | PubMed |
9 Hibbard JH, Greene J, Overton V. Patients with lower activation associated with higher costs; delivery systems should know their patients’ ‘scores’. Health Aff 2013; 32(2): 216-22.
| Crossref | Google Scholar | PubMed |
10 Deeny S, Thorlby R, Steventon A. Reducing emergency admissions: unlocking the potential of people to better manage their long-term conditions. London: The Health Foundation; 2018. Available at https://www.health.org.uk/publications/reducing-emergency-admissions-unlocking-the-potential-of-people-to-better-manage-their-long-term-conditions [cited 20 May 2020].
11 Roberts NJ, Kidd L, Dougall N, et al. Measuring patient activation: the utility of the patient activation measure within a UK context - results from four exemplar studies and potential future applications. Patient Educ Couns 2016; 99(10): 1739-46.
| Crossref | Google Scholar | PubMed |
12 Janamian T, Greco M, Cosgriff D, et al. Activating people to partner in health and self-care: use of the Patient Activation Measure. Med J Aust 2022; 216(S10): S5-8.
| Crossref | Google Scholar | PubMed |
13 Barker I, Steventon A, Williamson R, et al. Self-management capability in patients with long-term conditions is associated with reduced healthcare utilisation across a whole health economy: cross-sectional analysis of electronic health records. BMJ Qual Saf 2018; 27(12): 989-99.
| Crossref | Google Scholar | PubMed |
14 Lindsay A, Hibbard JH, Boothroyd DB, et al. Patient activation changes as a potential signal for changes in health care costs: cohort study of US high-cost patients. J Gen Intern Med 2018; 33: 2106-12.
| Crossref | Google Scholar | PubMed |
15 Harper KJ, Williamson M, Edwards D, et al. Older women’s view on frailty and an Emergency Department evidence-based Frailty Intervention Team (FIT) program: an evaluation using the Reach, Effectiveness, Adoption, Implementation, Maintenance RE-AIM framework. Australas Emerg Care 2023; 26(3): 264-70.
| Crossref | Google Scholar | PubMed |
16 Mitnitski AB, Mogilner AJ, Rockwood K. Accumulation of deficits as a proxy measure of aging. Sci World J 2001; 1(2)): 323-36.
| Crossref | Google Scholar | PubMed |
17 Overbeek A, Rietjens JAC, Jabbarian LJ, et al. Low patient activation levels in frail older adults: a cross-sectional study. BMC Geriatr 2018; 18(1): 7.
| Crossref | Google Scholar | PubMed |
18 Tan KK, Chan SW-C, Wang W, et al. A salutogenic program to enhance sense of coherence and quality of life for older people in the community: a feasibility randomized controlled trial and process evaluation. Patient Educ Couns 2015; 99(1): 108-16.
| Crossref | Google Scholar | PubMed |
19 Frosch DL, Rincon D, Ochoa S, et al. Activating seniors to improve chronic disease care: results from a pilot intervention study. J Am Geriatr Soc 2010; 58(8): 1496-1503.
| Crossref | Google Scholar | PubMed |
20 Sheikh S, Hendry P, Kalynych C, et al. Assessing patient activation and health literacy in the ED. Am J Emerg Med 2016; 34(1): 93-6.
| Crossref | Google Scholar | PubMed |
21 Schumacher JR, Lutz BJ, Hall AG, et al. Feasibility of an ED-to-home intervention to engage patients: a mixed-methods investigation. West J Emerg Med 2017; 18(4): 743-751.
| Crossref | Google Scholar | PubMed |
22 Deen D, Lu W-H, Rothstein D, et al. Asking questions: the effect of a brief intervention in community health centers on patient activation. Patient Educ Couns 2011; 84(2): 257-60.
| Crossref | Google Scholar | PubMed |
23 Whittaker W, Anselmi L, Kristensen SR, et al. Associations between extending access to primary care and Emergency Department visits: a difference-in-differences analysis. PLoS Med 2016; 13(9): e1002113.
| Crossref | Google Scholar | PubMed |
24 Franchi C, Nobili A, Mari D, et al. Risk factors for hospital readmission of elderly patients. Eur J Intern Med 2013; 24(1): 45-51.
| Crossref | Google Scholar | PubMed |
25 von Elm E, Altman DG, Egger M, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Lancet 2007; 370(9596): 1453-7.
| Crossref | Google Scholar | PubMed |
26 Rockwood K, Theou O. Using the Clinical Frailty Scale in allocating scarce health care resources. Can Geriatr J 2020; 23(3): 210-15.
| Crossref | Google Scholar | PubMed |
27 Harper KJ, Barton AD, Arendts G, et al. Controlled clinical trial exploring the impact of a brief intervention for prevention of falls in an Emergency Department. Emerg Med Australas 2017; 29(5): 524-30.
| Crossref | Google Scholar | PubMed |
28 Harris PA, Taylor R, Minor BL, et al. The REDCap consortium: building an international community of software platform partners. J Biomed Inform 2019; 95: 103208.
| Crossref | Google Scholar | PubMed |
29 Turner-Stokes L, Siegert RJ. A comprehensive psychometric evaluation of the UK FIM+FAM. Disabil Rehabil 2013; 35(22): 1885-95.
| Crossref | Google Scholar | PubMed |
30 Akpan A, Roberts C, Bandeen-Roche K, et al. Standard set of health outcome measures for older persons. BMC Geriatr 2018; 18(1): 36.
| Crossref | Google Scholar | PubMed |
31 Ware Jr JE. SF-36 health survey update. Spine 2000; 25(24): 3130-9.
| Crossref | Google Scholar | PubMed |
32 Sanson-Fisher RW, Perkins JJ. Adaptation and validation of the SF-36 Health Survey for use in Australia. J Clin Epidemiol 1998; 51(11): 961-7.
| Crossref | Google Scholar | PubMed |
33 Hughes ME, Waite LJ, Hawkley LC, et al. A short scale for measuring loneliness in large surveys: results from two population-based studies. Res Aging 2004; 26(6): 655-72.
| Crossref | Google Scholar | PubMed |
34 Hogervorst VM, Buurman BM, De Jongh A, et al. Emergency department management of older people living with frailty: a guide for emergency practitioners. Emerg Med J 2021; 38(9): 724-9.
| Crossref | Google Scholar | PubMed |
35 Begum N, Donald M, Ozolins IZ, et al. Hospital admissions, Emergency Department utilisation and patient activation for self-management among people with diabetes. Diabetes Res Clin Pract 2011; 93(2): 260-7.
| Crossref | Google Scholar | PubMed |
36 van Seben R, Reichardt LA, Aarden JJ, et al. The course of geriatric syndromes in acutely hospitalized older adults: the hospital-ADL study. J Am Med Dir Assoc 2019; 20(2): 152-8 e2.
| Crossref | Google Scholar | PubMed |
37 Hwang U, Dresden SM, Rosenberg MS, et al. Geriatric emergency department innovations: transitional care nurses and hospital use. J Am Geriatr Soc 2018; 66(3): 459-66.
| Crossref | Google Scholar | PubMed |
38 McLaughlin T, Dejong H, Jones L, et al. An occupational therapy care coordination team 2 home service supporting emergency department discharge: a quality improvement initiative. NZJOT 2022; 69(1): 17-23.
| Crossref | Google Scholar |
39 Carleton-Eagleton K, Walker I, Gibson D, et al. Testing the validation and reliability of the Caregiver-Patient Activation Measure (CG-PAM). PEC Innov 2022; 1: 100098.
| Crossref | Google Scholar | PubMed |