‘I don’t know why they don’t come’: barriers to participation in cardiac rehabilitation
Michelle L. DiGiacomo A H , Sandra C. Thompson B C , Julie S. Smith D E , Kate P. Taylor C , Lynette A. Dimer D , Mohammed A. Ali C , Marianne M. Wood F , Timothy G. Leahy G and Patricia M. Davidson AA Centre for Cardiovascular and Chronic Care, Curtin Health Innovation Research Institute, Curtin University and University of Technology Sydney, Level 7, Building 10, 235-253 Jones Street, Ultimo NSW 2007, Australia. Email: p.davidson@curtin.edu.au
B Combined Universities Centre for Rural Health, University of Western Australia, PO Box 109, Geraldton, WA 6531, Australia. Email: sandra.thompson@cucrh.uwa.edu.au
C Centre for International Health, Curtin Health Innovation Research Institute, Curtin University, GPO Box U1987, Perth, WA 6845, Australia. Email: k.taylor@curtin.edu.au; m.ali@curtin.edu.au
D National Heart Foundation (Western Australia), 334 Rokeby Road, Subiaco, WA 6008, Australia. Email: julie.smith@heartfoundation.com.au; lynette.dimer@heartfoundation.com.au
E Royal Perth Hospital, GPO Box X2213, Perth, WA 6001, Australia.
F Derbarl Yerrigan Health Service, 156 Wittenoom Street, East Perth, WA 6004, Australia. Email: woodm@derbarlyerrigan.com.au
G Aboriginal Health Council of Western Australia, Dilhorn House, 2 Bulwer Street, Perth, WA 6849, Australia. Email: tim.leahy@ahcwa.org
H Corresponding author. Email: m.digiacomo@curtin.edu.au
Australian Health Review 34(4) 452-457 https://doi.org/10.1071/AH09803
Submitted: 2 July 2009 Accepted: 9 March 2010 Published: 25 November 2010
Abstract
Objectives. To describe health professionals’ perceptions of Aboriginal people’s access to cardiac rehabilitation (CR) services and the role of institutional barriers in implementing the National Health and Medical Research Council (NHMRC) guidelines Strengthening Cardiac Rehabilitation and Secondary Prevention for Aboriginal and Torres Strait Islander peoples.
Design. Qualitative study.
Setting. Metropolitan and rural tertiary and community-based public CR services and Aboriginal health services in WA.
Participants. Thirty-eight health professionals working in the CR setting.
Method. Semistructured interviews were undertaken with 28 health professionals at public CR services and 10 health professionals from Aboriginal Medical Services in WA. The participants represented 17 services (10 rural, 7 metropolitan) listed in the WA Directory of CR services.
Results. Emergent themes included (1) a lack of awareness of Aboriginal CR patients’ needs; (2) needs related to cultural awareness training for health professionals; and (3) Aboriginal health staff facilitate access for Aboriginal patients.
Conclusions. Understanding the institutional barriers to Aboriginal participation in CR is necessary to recommend viable solutions. Promoting cultural awareness training, recruiting Aboriginal health workers and monitoring participation rates are important in improving health outcomes.
What is already known about this subject? Significant health and social inequity exists for Aboriginal Australians. Despite the persisting high rates of morbidity and mortality related to cardiovascular disease in Aboriginal Australians, participation rates in cardiac rehabilitation remain low.
What does this paper add? Despite widespread dissemination of NHMRC guidelines, there remains a disconnect between CR health professionals’ understandings and practices and the needs of Aboriginal people in WA. Increasing the volume and quality of cultural awareness training as well as access to Aboriginal health professionals are crucial in addressing this disparity.
What are the implications for practitioners? Increasing the number and support of Aboriginal people trained as health professionals will assist the system to respond better to the needs of communities. Collaborative partnership models where Aboriginal and non-Aboriginal health professionals work together to increase mutual understanding are warranted.
References
[1] The health and welfare of Australia’s Aboriginal and Torres Strait Islander peoples. Canberra: Australian Bureau of Statistics and Australian Institute of Health and Welfare; 2003.[2] Strengthening Cardiac Rehabilitation and Secondary Prevention for Aboriginal and Torres Strait Islander Peoples: A Guide for Health Professionals. Canberra: Australian Government; 2005.
[3] Scott IA, Lindsay K, Hardam H. Utilisation of outpatient cardiac rehabilitation in Queensland. Med J Aust 2003; 179 341–5.
| 14503895PubMed |
[4] Thompson SC, DiGiacomo ML, Smith J, Taylor K, Dimer L, Ali M, et al Are the processes recommended by the NHMRC for improving cardiac rehabilitation for Aboriginal and Torres Strait Islander people being implemented? An assessment of CR services across Western Australia. Aust New Zealand Health Policy 2009; 6 29
| Are the processes recommended by the NHMRC for improving cardiac rehabilitation for Aboriginal and Torres Strait Islander people being implemented? An assessment of CR services across Western Australia.Crossref | GoogleScholarGoogle Scholar | 20042097PubMed |
[5] Alfred A, Kalucy E, McIntyre E. Presenting Australian primary health care research. Adelaide: Primary Health Care Research and Information Service; 2008.
[6] Western Australia Health Consumer, Carer and Community Engagement Framework. Perth: Western Australia Department of Health; 2007.
[7] Stone L. Cultural influences in community participation in health. Soc Sci Med 1992; 35 409–17.
| Cultural influences in community participation in health.Crossref | GoogleScholarGoogle Scholar | 1:STN:280:DyaK38zptVOmsQ%3D%3D&md5=3628b86ab576d0fa804b51388389aec6CAS | 1519093PubMed |
[8] Betancourt JR, Green AR, Carrillo JE, Ananeh-Firempong O. Defining cultural competence: a practical framework for addressing racial/ethnic disparities in health and health care. Public Health Rep 2003; 118 293–302.
| 12815076PubMed |
[9] Strengthening cardiac rehabilitation and secondary prevention for Aboriginal and Torres Strait Islander peoples: a guide for health professionals. Canberra: National Health and Medical Research Council; 2005.
[10] Overcoming indigenous advantage in Western Australia. Report 2005. Perth: Department of Indigenous Affairs; 2005.
[11] Everett B, Salamonson Y, Zecchin R, Davidson PM. Reframing the dilemma of poor attendance at cardiac rehabilitation: an exploration of ambivalence and the decisional balance. J Clin Nurs 2009; 18 1842–9.
| 19220609PubMed |
[12] National Heart Foundation of Australia (WA Division). Directory of Western Australian Secondary Prevention Services. Perth: Heart Foundation of WA; 2007.
[13] Grbich C. Qualitative Research in Health: An Introduction. Sydney: Allen & Unwin; 1999.
[14] Kitto SC, Chesters J, Grbich C. Quality in qualitative research. Med J Aust 2008; 188 243–6.
| 18279135PubMed |
[15] National Heart Foundation of Australia. Directory of Western Australian Secondary Prevention Services. Perth: National Heart Foundation of Australia (WA Division); 2007.
[16] Gilles MT, Wakerman J, Durey A. ‘If it wasn’t for OTDs, there would be no AMS’: overseas-trained doctors working in rural and remote Aboriginal health settings. Aust Health Rev 2008; 32 655–63.
| ‘If it wasn’t for OTDs, there would be no AMS’: overseas-trained doctors working in rural and remote Aboriginal health settings.Crossref | GoogleScholarGoogle Scholar | 18980561PubMed |
[17] Deeble J, Agar J, Goss J. Expenditures on health for Aboriginal and Torres Strait Islander Peoples 2004–05. Canberra: Australian Institute of Health and Welfare; 2008. Health and Welfare Expenditure series no. 33. Cat. no. HWE 40.
[18] Cheng MH. Aboriginal workers key to indigenous health in Australia. Lancet 2007; 370 1533–6.
| Aboriginal workers key to indigenous health in Australia.Crossref | GoogleScholarGoogle Scholar | 17992724PubMed |
[19] Shepherd F, Battye K, Chalmers E. Improving access to cardiac rehabilitation for remote Indigenous clients. Aust N Z J Public Health 2003; 27 632–6.
| Improving access to cardiac rehabilitation for remote Indigenous clients.Crossref | GoogleScholarGoogle Scholar | 14723412PubMed |
[20] Davidson PM, DiGiacomo M, Abbott P, Sheerin N, Heal PE, Meine L, et al A partnership model in the development and implementation of a collaborative, cardiovascular education program for Aboriginal Health Worker. Aust Health Rev 2008; 32 139–46.
| A partnership model in the development and implementation of a collaborative, cardiovascular education program for Aboriginal Health Worker.Crossref | GoogleScholarGoogle Scholar | 18241157PubMed |